Scared about starting Pred. but making progress...

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FosterDad
Regular Member


Date Joined Aug 2007
Total Posts : 97
   Posted 8/31/2007 3:10 PM (GMT -7)   
Hello all....
Well my gut still has'nt mellowed and now the doc has issued me Pred. 20mg x 2 / day.  I am quite nervous about taking it as I have seen a lot of people discussing the side effect of it.  Also the doctor told me about the other side effect of brittle bones or joints (mainly hips) 
Is there any suggestions or advice any of you that have taken it, can give a first timer to maybe make the experience as pain free as possible?
 
Thanks...


Just diagnosed Aug. 14/07
Asacol 2 x 4 (5-Aminosalicylic Acid 400mg)
Pred. 20mg x 2/day

Post Edited (FosterDad) : 9/4/2007 9:31:55 PM (GMT-6)


Old Hat
Veteran Member


Date Joined Feb 2007
Total Posts : 5135
   Posted 8/31/2007 4:14 PM (GMT -7)   
Pred can be an awesome help to serious flare of UC. 40 mg/daily is a reasonable starting dose; hopefully it will work fast so that you can begin to taper after 8-10 days. Drink plenty of water, avoid heavily salted foods, keep your calcium & vitamin D intake up to help protect bones, practice good oral hygiene, get plenty of rest, & try to eat a healthful, balanced diet. This drug HAS helped many of us to avoid hospitalization and/or surgery during major crises with UC-- it can be a blessing. / Old Hat

quincy
Elite Member


Date Joined May 2003
Total Posts : 29859
   Posted 8/31/2007 4:32 PM (GMT -7)   
Hi...were you on rectal meds as well?

you don't HAVE to take the pred if you don't want to.... you could ask for Entocort pills and use the steroid rectal meds in conjunction if the 5ASA meds aren't working for you.

Did your doc not offer you other options? Pred is a high price to pay if there are other options.

Just an alternative perspective.

q
*Heather*Status:mini flare June 23* 6asacol daily+ Salofalk (tapered every 3rd night)
~diagnosed January 1989 UC (proctosigmoiditis)
~5ASA: Asacol + Salofalk enemas (increase for flares tapered to maintenance)
~Bentylol (dicyclomine) 20mg as needed
~vitamins/minerals 
~Probiotic 2 (Natural Factors Protec) + 1 (Primadophilus Reuteri) at bedtime
~Natural Factors Multi Digestive Enzymes with supper
~Ranitidine,Pariet (reflux) Effexor XR 75mg;  Pulmicort/Airomir (asthma)
~URSO for PSC (or PBC) 500mg X 2 daily (LFTs back to NORMAL!!)
My doc's logic.. "TREAT (FROM)BOTH ENDS"  worth it !!!


TheLori
Regular Member


Date Joined Aug 2007
Total Posts : 277
   Posted 8/31/2007 4:55 PM (GMT -7)   
The only real problem i have with prednisone is it messes up my sleeping..But i take a ativan and it helps me sleep. Sometimes it increases my appetite and my face swells a little. Im down from 60 to 30m now. You probably wont get ALL the side effects you read about so try not to assume you will :)
Lori
37/F
UC diagnosed 1991
Asacal, Coloazal, prednisone 50, adding zoloft..currently flaring


FosterDad
Regular Member


Date Joined Aug 2007
Total Posts : 97
   Posted 8/31/2007 4:56 PM (GMT -7)   
Thanks guys....
Lets see....Ive been on Asacol for 4 weeks and it seems to have helped a little and Ive only been on the Cortofoam for 4 days and havent really noticed a difference. (not enough time Im guessing) The problem is that I am still unable to eat. I will be doing fine with almost no blood and little mucos and the urgencies very limited (probably because I have nothing in my system) but as soon as I eat anything, everything gets escallated. The mucos and blood increases quite a bit and the urgencies become much worse. I have now lost 31lbs in 4 weeks and my system is no longer absorbing the Ensure, it just goes straight through me now. My doctor did not give me any other alternatives, he just said that I need to start on the Pred. for approx. 2 weeks. I dont know were else to turn or what to do. My dietition gave me a big list of foods that I can eat but also suggested that I talk with my doctor about Pred. when I talk to my doctor he said that he does not want me to eat until this gets under control. I asked for an alternative to the Ensure and he said that I can eat banana, rice pablom and applesauce. He also told me to continue my other meds while on Pred.

Thanks...


Just diagnosed Aug. 14/07
Asacol 2 x 4 (5-Aminosalicylic Acid 400mg)
Pred. 20mg x 2/day

Post Edited (FosterDad) : 8/31/2007 5:58:43 PM (GMT-6)


TheLori
Regular Member


Date Joined Aug 2007
Total Posts : 277
   Posted 8/31/2007 5:00 PM (GMT -7)   
I was like that a few weeks ago and was bleeding so much and in the bathroom constantly..ended up in the hospital 7 days.  Very dehidrated.  After the 7 days in the hospital (4 days of no food or drink) It has been very slow going but Ive been out 2 weeks now and every day is a little better...slowwww goingggg....
Lori
37/F
UC diagnosed 1991
Asacal, Coloazal, prednisone 50, adding zoloft..currently flaring


cycling_sasquatch
Regular Member


Date Joined May 2007
Total Posts : 167
   Posted 8/31/2007 6:37 PM (GMT -7)   
I've tolerated Prednisone pretty well. I've had three courses this year; finally getting off one (hopefully.) As pointed out, just because you hear a lot of nasty stuff about pred. doesn't mean it will happen to you. The only immediate problems I have had is sleep issues, some minor acne, increased appetite, and some minor moodiness (wife might beg to differ "minor".) I can handle all of these if it means putting a stop to a flare, which it always does. Be cautious, but not scared.
Dx Left-sided UC Dec. 2006
Currently:
Azathioprine (Imuran) 125mg/day
Prednisone 15mg/day (trying to taper-started at 60 6/1)
Lialda 4/day


quincy
Elite Member


Date Joined May 2003
Total Posts : 29859
   Posted 8/31/2007 11:10 PM (GMT -7)   
FosterDad said...
Thanks guys....
Lets see....Ive been on Asacol for 4 weeks and it seems to have helped a little and Ive only been on the Cortofoam for 4 days and havent really noticed a difference. (not enough time Im guessing) The problem is that I am still unable to eat. I will be doing fine with almost no blood and little mucos and the urgencies very limited (probably because I have nothing in my system) but as soon as I eat anything, everything gets escallated. The mucos and blood increases quite a bit and the urgencies become much worse. I have now lost 31lbs in 4 weeks and my system is no longer absorbing the Ensure, it just goes straight through me now. My doctor did not give me any other alternatives, he just said that I need to start on the Pred. for approx. 2 weeks. I dont know were else to turn or what to do. My dietition gave me a big list of foods that I can eat but also suggested that I talk with my doctor about Pred. when I talk to my doctor he said that he does not want me to eat until this gets under control. I asked for an alternative to the Ensure and he said that I can eat banana, rice pablom and applesauce. He also told me to continue my other meds while on Pred.

Thanks...

OK..let me get this straight...your doctor told you to NOT eat???
 
Exactly how many times a day you're having bms?  31 pounds is a lot to lose for sure...
Is your UC throughout your colon?
 
q
*Heather*Status:mini flare June 23* 6asacol daily+ Salofalk (tapered every 3rd night)
~diagnosed January 1989 UC (proctosigmoiditis)
~5ASA: Asacol + Salofalk enemas (increase for flares tapered to maintenance)
~Bentylol (dicyclomine) 20mg as needed
~vitamins/minerals 
~Probiotic 2 (Natural Factors Protec) + 1 (Primadophilus Reuteri) at bedtime
~Natural Factors Multi Digestive Enzymes with supper
~Ranitidine,Pariet (reflux) Effexor XR 75mg;  Pulmicort/Airomir (asthma)
~URSO for PSC (or PBC) 500mg X 2 daily (LFTs back to NORMAL!!)
My doc's logic.. "TREAT (FROM)BOTH ENDS"  worth it !!!


tjf
Veteran Member


Date Joined Dec 2005
Total Posts : 3238
   Posted 9/1/2007 6:42 AM (GMT -7)   
I didn't know alot about UC when I had my first major flare. My GI put me on pred. and it almost immediately stopped my symptoms. My side effects were insomnia, shakiness and head in the clouds feeling.

The second time i went on pred. I had to use a higher dosage to get the same results. I also became steriod dependent and eventually went on Imuran.

I have never once had a GI (I'm on my second) to tell me not to eat. It seems like you have lost a ton of weight. Have you considered a second opinion?
Tabitha (Tab)

100mg Azathioprine, 2 Fibercon, Colazal-6 a day, Acidopholis Pearls, Prilosec OTC

http://www.healingwell.com/donate
Co-Moderator UC Forum


Sideshowbob
Veteran Member


Date Joined Sep 2005
Total Posts : 698
   Posted 9/1/2007 7:25 PM (GMT -7)   
I never thought i was having any problems with prednisone-until i got a hole in my small intestine and went to the hospital and missed four months of work. ;)
34 year old Male
First Flare was February 2005. Diagnosed June 2005-left-sided Colitis, suspect it has since spread. Started 4000 mg Oral Salofalk June 2005-stopped January 2007. Remission until November 2006.
Been in a flare to various degrees since November 2006 to February 2007. Currently in remission.
Presently on 0 mg Prednisone-down from 60 mg!
Nightly 4000 mg Salofalk enemas.
Daily 4000 mg Salofalk oral.
Started Omeprazole 40 mg February 2007.
Co-Moderator-UC Forum


BenY
Regular Member


Date Joined Aug 2007
Total Posts : 60
   Posted 9/2/2007 5:49 AM (GMT -7)   
I wouldn't worry too much about it - it sounds like you need pred to me. I agree with what Old Hat says in terms of what to do when you are taking it. The tricky part is how to get off it once you are on, if you are on it for more than two weeks or so. But, when you need it you need it. I lost a bunch of weight too, but it was not so much due to a flair as to a bad reaction to Lialda that even 40mg of pred could only partially help. Once I went off the Lialda, I had perfect bm's/urgency, etc like I had never had for years - and I only got diagnosed UC last spring! Problem is, I dropped the pred too quick and the symptoms returned around 6.5mg. Plus, pred isn't a cure anyway, I still need to find a long term solution.

As for side effects, I do wake up earlier. Face puffing (some) after three weeks, acne after a few months. But when you've lost weight, face puffing is okay. You get a little jittery, but you sort of have more energy. I didn't have much emotional change. Knees are affected a little, but this went away at smaller doses.
Ben, 38
 
Symptoms started 10/06, diagnosed 4/07.
Currently on Prednisone (w/Prilosec&calcium), which helps; Limited help from hydrocortisone enemas; Bad reactions to Colazal and Lialda.
Diet mostly: whole grains, pasta, rice, cooked root vegetables, green drinks, fish, lactose-free dairy, keifer, nuts, protein smoothies, bananas.


marty1976
Veteran Member


Date Joined Nov 2005
Total Posts : 2045
   Posted 9/2/2007 6:24 AM (GMT -7)   
I would ask why he wants to put you on 20mgs twice a day. You should be taking 40mgs in the morning i think . Splitting the dose will only make it really hard to get some decent sleep.Especially as your second dose will be in the evening or night time.I was on 80 mgs Of Pred there for ten days after five months on 60mgs daily. The massive dosage done the trick and i have been doing really well tapering every week.
I took My Pred at 7am every morning as soon as i got up.If i hadn't have taken it at that time every day i would have had an even harder time getting to sleep.As Quincy said already check out all your options before starting Pred.I have been off and on it now for 16years and it really has prevented me from losing my colon on many occasions.The main side effects are moon face, mood swings, really bad insomnia and weight gain.
I would say that if you have tried everything else and its not working then go for Pred. I hope it does do the trick for you.Oh yeah please eat something everyday, you don't want to go down that road. I've been there and its not a pleasant trip at all.You will really mess yourself up. Try plain rice, babyfoods,anything. If your not eating, your brain can't function properly either. Things will start getting crazy both physically and mentally!So please please eat!!!
If you've any questions or i can do anything to help you, my email address is in my profile
Get better soon
`
keep the faith

Pred50mgs/asacol/proctifoam/omoparazole 40mgs/Domperidone10mgs x 3 daily(and its not for breastfeeding i'm using it :).[/color]</b>





http://www.myspace.com/martybuzz1<FONT]


Jjc2007
Regular Member


Date Joined Apr 2007
Total Posts : 194
   Posted 9/2/2007 6:04 PM (GMT -7)   
Foster Dad

You really need to get under control and eat. So don't panic.
I took pred.....at a pretty high dose when I was fifteen and was on it for over a year.
I had lost 30 lbs and needed six blood transfusions.

Pred got me out of the hospital and back on track. Within a year, 98% of the inflammation was gone. I was left with mild, left side UC.
I hated the moon face (but I was a 16 year old girl) and I had the appetite of ten men. I once ate an entire angel food cake.

Once I started tapering, so did the side effects. Long term has not been all that bad. I am 61 and my bone density is great for my age group...I walk a lot. I have these goofy bumps on my wrists and ankles and there was premature lines on the face...stretch marks from moon face.

However, the trade off was worth it for me. To be able to go back to a relatively normal life was great.

And when I was having a lot of trouble with foods, my docs suggested baby foods. It wasn't all that bad,
diagnosed with UC in 1962
regualr meds:
Asulfadine (500mg tablets, 6 daily)
Folic Acid
Zantac as needed
open heart surgery in 2005 for removal of aortic root aneurysm


Another UC wife
Veteran Member


Date Joined Jun 2007
Total Posts : 2111
   Posted 9/2/2007 6:51 PM (GMT -7)   
Definitely the calcium with vitamin D. We prefer the caramel chews. Instead of another pill it's like having a piece of candy. Vivactin is the name brad - we get the Publix brand instead which is identical in dosage.

60 yr old male~Colitis 1st diagnosed Jan '05-cleared up within a few wks. Flared again in May '06 ... left sided UC now, fully involved and trying to get in remission. Acute inflammation-pancolitis-tenesmus rectal pain-granulation is showing some healing started. Osteopena of spine from prednisone DX 8/07  July 07 good days & bad days 75mg Imuran 40  mg prednisone (tapering 8/07) 12 Asacol, Lidocaine Hydrochloride Jelly 2%,multi vitamin, iron 3X day, DanActive, chewable calcium, Prilosec 20mg, enalapril 10mg, glipizide 5 mg, zocor 20 mg, baby aspirin, (Fentanyl pain patch 50mg 72 hrs  Morphine Sulf 15 mg twice daily)Colocourt enemas at night. Fosamax and mthly B12 shots folic acid 1mg


Another UC wife
Veteran Member


Date Joined Jun 2007
Total Posts : 2111
   Posted 9/3/2007 7:31 AM (GMT -7)   
I forgot to mention - after being on the prednisone off and on for almost a year I discussed with his doctor getting a bone scan done to establish a base line and it's a good thing as it shows some osteopenia in his low spine - the other areas are ok. This can be reversed from what I understand with the fosamax once a week and hopefully getting back into some weight bearing exercise at some point.

If your insurance allows it might not be a bad idea to get one now and keep tabs on it later if you get on the prednisone and need it to help bring about remission(s). The calcium supplements is most important as mentioned to keep your bones as healthy as possible.

60 yr old male~Colitis 1st diagnosed Jan '05-cleared up within a few wks. Flared again in May '06 ... left sided UC now, fully involved and trying to get in remission. Acute inflammation-pancolitis-tenesmus rectal pain-granulation is showing some healing started. Osteopena of spine from prednisone DX 8/07  July 07 good days & bad days 75mg Imuran 40  mg prednisone (tapering 8/07) 12 Asacol, Lidocaine Hydrochloride Jelly 2%,multi vitamin, iron 3X day, DanActive, chewable calcium, Prilosec 20mg, enalapril 10mg, glipizide 5 mg, zocor 20 mg, baby aspirin, (Fentanyl pain patch 50mg 72 hrs  Morphine Sulf 15 mg twice daily)Colocourt enemas at night. Fosamax and mthly B12 shots folic acid 1mg


princesa
Veteran Member


Date Joined Aug 2007
Total Posts : 2198
   Posted 9/3/2007 8:49 AM (GMT -7)   
FosterDad said...
...but as soon as I eat anything, everything gets escallated. The mucos and blood increases quite a bit and the urgencies become much worse.
It's normal that any time you eat, you're going to aggravate the inflammation/ulceration in your colon. You might want to do some research on the option of putting yourself on an elemental (liquid) diet for a period of time to allow your gut a chance to rest and heal. Some have found this a viable alternative to steroids. Check out The IBD Remission Diet by Jini Patel Thompson to learn more... http://www.caramal.com/ibdrd/ibddescription.asp
Diagnosed with ulcerative colitis spring 1999
Possibly misdiagnosed
 
Maintenance dose sulfasalazine
Probiotics, l-glutamine and fish oil caps
 
 


FosterDad
Regular Member


Date Joined Aug 2007
Total Posts : 97
   Posted 9/4/2007 10:49 AM (GMT -7)   
Hey guys....
 
Well, lets see.  I started pred. almost a week ago as recomended by my dietition, naturalpath and my doctor.  I was so excited when I was talking to my dietition because she gave me a list of safe foods that I could eat which sounded great, but then 15 minutes after talking with her, I was talking with my doctor to get my pred. prescription and told him about the list of foods and he told me that the only thing I was aloud to eat was apple sauce, banana and rice pablum. (how freakin disheartening)  Ive now lost 37 lbs. thats approx. 14% of my body mass.  My energy level is very low, my mood is spuratic and now this crap that the doctor has me eating is making me bunged up which makes me feel sick.  Im still getting a little mucos and blood in the morning, but the urgency's have subsided slightly but I feel so bloated.  I have a appointment with my GP today, so hopefully we can get something figured out.
 
With regards to my UC.  All I know is that its from my rectum to my transvercolon.  How much of the transverscolon it has affected, I dont know.
 
The thing I found kinda weird is that the pred. that I am taking are little white 5 mg pills with no coating, so the pretty much disolve as soon as I put them in my mouth.  Is that normal?
 
Im still taking my Asacol and Cortofoam as well.
 
The last couple days I have been on a very low pitty party. I feel so bad for my wife and baby.  Im almost ready to give up and book the surgery.  I dont know how you long timers managed to do this.  Ive only been diagnosed for 3 weeks today and Ive about had it.
 
Thanks again for all your support people.
Hope to talk to you soon.
 
Just diagnosed Aug. 14/07
Asacol 2 x 4 (5-Aminosalicylic Acid 400mg)
Pred. 20mg x 2/day


litljen
Regular Member


Date Joined Mar 2003
Total Posts : 50
   Posted 9/4/2007 12:23 PM (GMT -7)   

FosterDad, your "pity party" is part of the package with going on prednisone. Any time I go on it I have about a week of depression and feeling sorry for myself and then it goes away as my body gets used to the drug. While it is evil with all of its side effects (and I get them ALL: puffy moon face, weight gain, oral thrush, heartburn/acid reflux, sleeplessness, hot flashes, joint pain/weakness, shakiness, mood swings, change in eye sight, brittle nails, acne), it still works to get you back on track when nothing else will. Everyone gave you really great advice about what to do to while taking it. Another important thing is to keep active even if it just means walking for 5 minutes a day. My doctor said that as long as I walked at a slow pace for 5 minutes each day on the treadmill, I would stop bone density loss since I was weight bearing on my legs. I've been on 60mg of Prednisone 4 times in my life for 3-4 months at a time and my bone density tests have shown no loss which I'm really thankful for.

I'm really confused as to why you were told not to eat as well. It sounds like you were put on the BRAT diet (bananas, rice, applesauce, toast) which is prescribed for diarrhea. That's a good place to start but you definitely will need to be adding in more as you tolerate it. I'm surprised your doctor told you not to eat anything. How could you possibly get nutrients and the strength to heal?  I'v always taken the little white pills as well. I think that's the normal dosing.

It's so hard to function when you can barely keep your head up.  I hope the Prednisone will start to work for you quickly so that you can get back on track.


~Jennifer
 
Diagnosed w/ UC in 1991
7th Remicade Infusion due October 1st
100mg 6MP
Canasa Suppositories
Prevacid
 


quincy
Elite Member


Date Joined May 2003
Total Posts : 29859
   Posted 9/4/2007 1:23 PM (GMT -7)   
Foster Dad...what did the dietitian suggest for you to eat?

Are you following the doctor's suggestion or the dietitian's? You need protein to help you heal.

You'll be malnutritioned before you get better....something seems off..maybe you need to seek out another doctor?

q
*Heather*Status:mini flare June 23* 6asacol daily+ Salofalk (tapered every 3rd night)
~diagnosed January 1989 UC (proctosigmoiditis)
~5ASA: Asacol + Salofalk enemas (increase for flares tapered to maintenance)
~Bentylol (dicyclomine) 20mg as needed
~vitamins/minerals 
~Probiotic 2 (Natural Factors Protec) + 1 (Primadophilus Reuteri) at bedtime
~Natural Factors Multi Digestive Enzymes with supper
~Ranitidine,Pariet (reflux) Effexor XR 75mg;  Pulmicort/Airomir (asthma)
~URSO for PSC (or PBC) 500mg X 2 daily (LFTs back to NORMAL!!)
My doc's logic.. "TREAT (FROM)BOTH ENDS"  worth it !!!


princesa
Veteran Member


Date Joined Aug 2007
Total Posts : 2198
   Posted 9/4/2007 2:58 PM (GMT -7)   
On another note, there is an excellent book out there about prednisone and what to expect while you're on it, how to eat to avoid excess weight gain and fluid retention, etc. all written from the user's point of view. (The author had to take a pretty major course of it.) I found it at my local library. I feel knowledge is power... the more we can learn about these things, the better off we'll be. It's called "Coping with Prednisone: It May Work Miracles, but How Do You Handle the Side Effects?" by Eugenia Zuckerman.

http://www.amazon.com/Coping-Prednisone-Other-Cortisone-Related-Medicines/dp/0312195702/ref=pd_bbs_sr_1/002-6060902-1888064?ie=UTF8&s=books&qid=1188943032&sr=8-1
Diagnosed with ulcerative colitis spring 1999
Possibly misdiagnosed
 
Maintenance dose sulfasalazine
Probiotics, l-glutamine and fish oil caps
 
 


FosterDad
Regular Member


Date Joined Aug 2007
Total Posts : 97
   Posted 9/4/2007 8:31 PM (GMT -7)   
Hey Guys....

Well I just got back from my doctor and I had a good LLOOONNNGG talk with him about the doctor that was covering for him. My doctor has changed a couple things for me. He has told me to take my Pred. once a day in the morning instead of spliting them up. He also says that I can eat blan foods (ie rice, potato, apple sauce, banana) just for the next couple of days because then I have another appointment with him on Thursday. He wants to see how Im doing after being on the Pred. for 1 week. He is hooking me up with a good GI and we will be working together with him. I will be taking the list of foods, that the dietition recomended for me, in on Thursday and will have him check off what he thinks I can eat. Right now I am following my doctors orders as long as the recomendations are moving forward as today is the first time I have actually seen MY doctor, and not the fill in doctor. My doctor just found out today that I have UC.
Oh ya....and just to add insult to injury, I thought I might have a roid and it turns out that my doc says it a freakin fisher (?spelling?) and probably gonna need surgery on that. Cmon already enough is enough.

The foods that the dietition recomended for me were.......Yogurt(with no berry seeds) cheese, egg, banana, 100% whole wheat bread (with no seeds) cereals (rice crispy's, chex, special K) chicken, fish, smooth peanut butter, crakers (ritz, soda) potato's, rice (white or brown) apple sauce, canned fruit, soups(chicken noodle, vegitable) pasta, carrots, squash, beats, yams (all veggies steamed soft) margerine, mayo (small amounts for fat intake because of the drastic weight loss) No heavy seasonings or anything like that.

Anyways, thats what I know now.....and I think I see a slight little glimmer of hope coming. I will let you know what happens after my next appointment on Thursday.

Thanks again for all your advice and links...keep em coming KNOWLEDGE IS POWER.
Just diagnosed Aug. 14/07
Asacol 2 x 4 (5-Aminosalicylic Acid 400mg)
Pred. 20mg x 2/day


Old Hat
Veteran Member


Date Joined Feb 2007
Total Posts : 5135
   Posted 9/6/2007 10:08 AM (GMT -7)   
So the doc thinks that you have a fissure? Hopefully it will heal w/o his intervention. At least you made progress on the diet issue. RE cold cereal: I'd recommend Quaker puffed wheat or puffed rice to start. Farina is great for a soothing warm start. When these are tolerated well, you can move on to Cheerios & regular cooked oatmeal for better nutrition. I would avoid Ritz crackers due to additives-- see if you can get Health Valley products in your area because they are lower in salt generally & do not have unnecessary additives like coloring agents, etc. When I started out on Pred, the gastro gave me 10 mg tablets, which I took 4 times daily. Later as I tapered down, my RX changed to the smaller 5 mg tablets. Best wishes & hope this info helps! / Old Hat (nearly 30 yrs with left-sided UC; currently on 3 X 3 Colazal daily for July flare in descending colon)

FosterDad
Regular Member


Date Joined Aug 2007
Total Posts : 97
   Posted 9/6/2007 8:28 PM (GMT -7)   
Ok....newest update....
 
Just had another doctor visit this afternoon.  My doc apparently pulled some strings for me and instead of having to wait 4 - 8 months to get in to see a GI, I have an appointment in 1 month with one of the best on the island.  Guess its better than a kick in the crotch.  My doctor also appoligized for the mess up when I was first diagnosed (while he was on vacation) because I was only give Asacol.  He said that I should have been given steroids right then instead of having to wait 3 weeks till he got back.  So it was nice to at least hear someone acknowleging the mess-up.  He says, for only being on Pred for 1 week, I am showing signs of improvement.  He also said that I will probably be on Pred. for approx. 1 month....give or take, and he has changed it from 8 - 5mg tabs in the morning to 1 - 50mg tab in the morning.  Im guessing that the slightly higher does wont be that noticable. **fingers crossed**
 
With regards to the fissure, my doc is going to let my GI deal with that.  Im guessing I will probably need surgury as I have had one before. Can always hope it goes away though.
 
I finally got him to sit down with me and go over the food list that my dietition gave me and he gave the ok for everything except bread and prawns.  He wants me to wait a bit for that.  I also have to go easy on the oils, cheese and yogurt.  I was exstatic to have a little food list anyways.  Now I just have to try and control myself so I dont go too nuts.
 
So....it seems that now that my actually doctor is involved, things are starting to take a turn into the right direction.
 
Thanks for all your input support and kind words.


Just diagnosed Aug. 14/07
Asacol 2 x 4 (5-Aminosalicylic Acid 400mg)
Pred. 40mg

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