I was afraid it wasn't working any longer. about a week before my last infusion, I started to cramp and get D, but no bleeding. Since I started the cort enemas, the bleeding has gone away. I just wonder how to plan my life with this disease. That might be a topic for another post. It's so hard and not alot of people understand this disease. I'm still trying to figure things out. I always think it could be worse, it's hard to put it all in perspective when you are so frustrated and flaring and dealing with all the medications,etc. My dr said that if the Remi doesn't work, my next option would be to be evaluated for surgery and after reading the j-pouch website, it doesn't sound so bad. At least the disease would be gone and no more meds. Just have to adjust to the surgery, but it seems you wouldn't be battling UC all your life. So confusing!!!
Hearing your feedback has made me feel better. Thanks!!!
Starting Remicade!!!!! 5th Infusion Sept 28th
Dx with UC In Mar 2004. Mainly Left sided, at times has skipped through the whole colon. Also have IBS.
Remission from April 2005 to May 2006
UC Difficult to contol since May 2006
150mgs of Imuran, Asacol 3/3x's day, Bentyl as needed