Remicade and flare up

I'm going thru just what you are right now- tell me about frustration!!!!! The only new med I'm on right now is Cipro- my doc told me it's used as a Pred alternative, & it does seem to help a little. After Remicade, it's my understanding that surgery is the next step. If you opt for it, of course. I'm looking into Humira, but my doc won't give it to me yet! Which also frustrates me, but I understand his reasoning- since it's not FDA approved for use in UC, it hasn't been sufficiently tested in UC patients. Come on.....!!!!! But I have a 2nd opinion consult (at the urging of my GI) with a really reputable doctor at Beth Israel Deaconess Hosp. in Boston, & am hoping he can give me some info/advice, etc. I wish I had better news for you.... I also felt fabulous when the Remicade first worked. I've also had 4 infusions, & have not yet scheduled the 5th- not sure right now if I wll or not, seeing as it's not working anymore.

I was afraid it wasn't working any longer. about a week before my last infusion, I started to cramp and get D, but no bleeding. Since I started the cort enemas, the bleeding has gone away. I just wonder how to plan my life with this disease. That might be a topic for another post. It's so hard and not alot of people understand this disease. I'm still trying to figure things out. I always think it could be worse, it's hard to put it all in perspective when you are so frustrated and flaring and dealing with all the medications,etc. My dr said that if the Remi doesn't work, my next option would be to be evaluated for surgery and after reading the j-pouch website, it doesn't sound so bad. At least the disease would be gone and no more meds. Just have to adjust to the surgery, but it seems you wouldn't be battling UC all your life. So confusing!!!

Hearing your feedback has made me feel better. Thanks!!!

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