progression of UC

New Topic Post Reply Printable Version
[ << Previous Thread | Next Thread >> ]

New Member

Date Joined Jul 2007
Total Posts : 14
   Posted 9/3/2007 1:06 PM (GMT -6)   
can someone please share with me how were they diagnosed with UC? How much (cm/inches) was it limited to? How did it progress? and over what period of time.
much appreciation to all of you
30y male

Veteran Member

Date Joined Feb 2006
Total Posts : 5698
   Posted 9/3/2007 2:35 PM (GMT -6)   

My UC followed a bout of proctitis (after a couple of years).  In the 12 years of having UC it never really progressed out of the rectum. 



dx proctitis in 1987
dx UC in 1991, was stable until 1998
1998 started prednisone, asacol, pentasa, nortriptylene, ativan, 6MP, rowasa enemas and suppositories, hydrocortisone enemas, tried the SCD diet, being a vegetarian, omega 3s, flax, pranic healing, yoga, acupuncture, probiotics
2000 lost all my B-12 stores and became anemic
2001 opted for j-pouch surgery- now living life med-free

Veteran Member

Date Joined Jul 2005
Total Posts : 1614
   Posted 9/3/2007 2:52 PM (GMT -6)   
I had diareah for 2 weeks then it turned to bloody diareah. I went to the doctors and she set me up with a GI, who gave me a colonoscopy. I was then told that I had UC and it was throughout my whole colon.
I always had digestive problems ever since I had my gallbladder out in the 80's. I then was told that I had IBS in the 90's.
I think I had UC longer than before I was diagnosed. (2005) There was a time when i was bleeding, but i just thought it was hemeroids. I quit bleeding for about 5 years, then all hell broke loose, in July of 2005.
Diagnosed July 2005 with Pancolitis
Asacol 4 tabs 3 times daily
GNC Probiotic

Elite Member

Date Joined May 2003
Total Posts : 30828
   Posted 9/3/2007 7:38 PM (GMT -6)   
I had a sudden bout of diarrhea and severe weight loss over a period of 3 weeks. My doctor at the time gave me lomotil but never did any stool samples (I did suspect food poisoning from eggs).

I had gut issues/diarrhea for almost 3 years....then the bleeding started in explosive diarrhea.

After being referred to a GI (only good thing my doc at the time did for me) and having the many tests, I was diagnosed with UC...15" (about 38 cms).. proctosigmoiditis.

I was put on 5ASA oral (Asacol)and rectal enema (Salofalk)....I've never been as bad as when I was's not spread as of yet..and flares are mostly limited to the rectum.

I have my 7th c-scope, hopefully everything is copacetic.

*Heather*Status:mini flare June 23* 6asacol daily+ Salofalk (tapered every 3rd night)
~diagnosed January 1989 UC (proctosigmoiditis)
~5ASA: Asacol + Salofalk enemas (increase for flares tapered to maintenance)
~Bentylol (dicyclomine) 20mg as needed
~Probiotic 2 (Natural Factors Protec) + 1 (Primadophilus Reuteri) at bedtime
~Natural Factors Multi Digestive Enzymes with supper
~Ranitidine,Pariet (reflux) Effexor XR 75mg;  Pulmicort/Airomir (asthma)
~URSO for PSC (or PBC) 500mg X 2 daily (LFTs back to NORMAL!!)
My doc's logic.. "TREAT (FROM)BOTH ENDS"  worth it !!!

Regular Member

Date Joined Apr 2007
Total Posts : 194
   Posted 9/3/2007 11:41 PM (GMT -6)   
I was diagnosed way back 1961.
I was 15. It came on suddenly. I was out ice skating, came home, had a bath and went to bed. Woke up an hour later with terrible diarrhea that lasted all night, a fever and achy.
My parents took me to the doctor where I had recently had work done on my sinus.....thinking it was an infection. For a week, this jerk doctor acted like I was faking it and just told my parents to give me aspirin for the fever. After a week, my dad got frustrated and took me to the regular family doctor. After a few days, he put me in the hospital. In that short period I lost 30 lbs and needed six blood tranfusions.
There were no colonoscopies (at least not at that hospital) so they kept doing barium enemas. And x rays. It took them two weeks to give it a name...ulcerative colitis.

Forty six years later and I still have UC but the symptons have gotten progressively better. I have been getting yearly colonoscopies for 30 years. And my condition having gone from severe pancolitis in the first year to moderate left side for decades to mild for now.

I have been taking Azulfadine for the past thirty years. I went for about five years in my twenties where I refused to see a doctor, because the first several years I was on prednisone a lot, and I got tired of all of it. Luckily I have never had to go on any other drugs or have surgery, though there were many times in my twenties when I wished I could just have the darned colon removed.

That's my long story....
diagnosed with UC in 1962
regualr meds:
Asulfadine (500mg tablets, 6 daily)
Folic Acid
Zantac as needed
open heart surgery in 2005 for removal of aortic root aneurysm

Veteran Member

Date Joined Jan 2007
Total Posts : 1015
   Posted 9/4/2007 7:17 AM (GMT -6)   
I was dx'd in 1998 after about 3 months of blood, mucus and diahrea. I was 18 and didn't tell anyone what was going on. I lost about 30 lbs before my friends called my parents to tell them what was going on. I was suppose to spend the semester in Europe studying art and got my dx 3 days before my plane was to leave. Needless to say I didn't get to go. I was told I had left sided colitis. It took about three years to get me into remission where I stayed for 5 years. I was very dumb and stopped my meds during this time. When I first saw symptoms last year I immedietly called my gi and found that my colitis had spread throughout my enitire colon. My Gi told me if I had stayed on my meds this flare wouldn't be as bad as it has been. Maybe the UC would not have spread, who knows. I am now stuck ina year long flare and am waiting for imuran to kick in. And that's my story.
Kelly, 29

Left sided UC diagnosed 1/98 age 19, Pan colitis diagnosed 1/07
Currently on 4x3 Asacol, Rowasa every other night, down to 20 mg pred.
75mg Imuran starting 8/23/07---fingers crossed!
Prontonix once daily for acid reflux, zofran twice daily for nausea

New Topic Post Reply Printable Version
Forum Information
Currently it is Thursday, August 16, 2018 5:08 AM (GMT -6)
There are a total of 2,993,196 posts in 328,024 threads.
View Active Threads

Who's Online
This forum has 161219 registered members. Please welcome our newest member, uln82413.
222 Guest(s), 2 Registered Member(s) are currently online.  Details
ntzguy, andwes