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progression of UC

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Ulcerative Colitis
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Posted 9/3/2007 12:06 PM (GMT -6)
can someone please share with me how were they diagnosed with UC? How much (cm/inches) was it limited to? How did it progress? and over what period of time.

much appreciation to all of you

30y male

ASACOL 2(SUPS)

ASKED BY DOCTOR TODAY TO START 6PILLS + 2 sups.

Posted 9/3/2007 1:35 PM (GMT -6)

My UC followed a bout of proctitis (after a couple of years).  In the 12 years of having UC it never really progressed out of the rectum. 

Sue

Posted 9/3/2007 1:52 PM (GMT -6)
I had diareah for 2 weeks then it turned to bloody diareah. I went to the doctors and she set me up with a GI, who gave me a colonoscopy. I was then told that I had UC and it was throughout my whole colon.
I always had digestive problems ever since I had my gallbladder out in the 80's. I then was told that I had IBS in the 90's.
I think I had UC longer than before I was diagnosed. (2005) There was a time when i was bleeding, but i just thought it was hemeroids. I quit bleeding for about 5 years, then all hell broke loose, in July of 2005.
Janice
Posted 9/3/2007 6:38 PM (GMT -6)
I had a sudden bout of diarrhea and severe weight loss over a period of 3 weeks. My doctor at the time gave me lomotil but never did any stool samples (I did suspect food poisoning from eggs).

I had gut issues/diarrhea for almost 3 years....then the bleeding started in explosive diarrhea.

After being referred to a GI (only good thing my doc at the time did for me) and having the many tests, I was diagnosed with UC...15" (about 38 cms).. proctosigmoiditis.

I was put on 5ASA oral (Asacol)and rectal enema (Salofalk)....I've never been as bad as when I was diagnosed...it's not spread as of yet..and flares are mostly limited to the rectum.

I have my 7th c-scope tomorrow....so, hopefully everything is copacetic.

quincy
Posted 9/3/2007 10:41 PM (GMT -6)
I was diagnosed way back when...in 1961.
I was 15. It came on suddenly. I was out ice skating, came home, had a bath and went to bed. Woke up an hour later with terrible diarrhea that lasted all night, a fever and achy.
My parents took me to the doctor where I had recently had work done on my sinus.....thinking it was an infection. For a week, this jerk doctor acted like I was faking it and just told my parents to give me aspirin for the fever. After a week, my dad got frustrated and took me to the regular family doctor. After a few days, he put me in the hospital. In that short period I lost 30 lbs and needed six blood tranfusions.
There were no colonoscopies (at least not at that hospital) so they kept doing barium enemas. And x rays. It took them two weeks to give it a name...ulcerative colitis.

Forty six years later and I still have UC but the symptons have gotten progressively better. I have been getting yearly colonoscopies for 30 years. And my condition having gone from severe pancolitis in the first year to moderate left side for decades to mild for now.

I have been taking Azulfadine for the past thirty years. I went for about five years in my twenties where I refused to see a doctor, because the first several years I was on prednisone a lot, and I got tired of all of it. Luckily I have never had to go on any other drugs or have surgery, though there were many times in my twenties when I wished I could just have the darned colon removed.

That's my long story....
Posted 9/4/2007 6:17 AM (GMT -6)
I was dx'd in 1998 after about 3 months of blood, mucus and diahrea. I was 18 and didn't tell anyone what was going on. I lost about 30 lbs before my friends called my parents to tell them what was going on. I was suppose to spend the semester in Europe studying art and got my dx 3 days before my plane was to leave. Needless to say I didn't get to go. I was told I had left sided colitis. It took about three years to get me into remission where I stayed for 5 years. I was very dumb and stopped my meds during this time. When I first saw symptoms last year I immedietly called my gi and found that my colitis had spread throughout my enitire colon. My Gi told me if I had stayed on my meds this flare wouldn't be as bad as it has been. Maybe the UC would not have spread, who knows. I am now stuck ina year long flare and am waiting for imuran to kick in. And that's my story.
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