what medications you take for UC? (a list all in one place)

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SaraJean
Regular Member


Date Joined Jan 2007
Total Posts : 40
   Posted 9/3/2007 3:05 PM (GMT -7)   
Hey y'all. I was wondering if you could list what meds you take for your UC in this thread, how much, how often, etc. and maybe your feelings about it, ie: if you think it is helpful, how it makes you feel, other meds you've tried that you don't like and why. etc. etc.

I'm going to see my GI October 2nd for the first time since I was diagnosed. I want to find out information about the different medication options before I go because I stopped taking my sulphasalize long ago because I felt like the amount of pills (the hassle) I was taking wasn't as bad as a minor flare here and there. So I am hoping to find something a little more manageable.

(another quick question for anyone who knows... obviously flaring and getting ulcers inside our bodies is bad for our health (the only direct effects Ive experienced are obviously pain and energy drain)... I don't take my pills and I guess I "allow myself" to have a full day to day and a half of having diarrhea about once a week. Is that so bad? Will that really effect my health in the long run? IMO its not as bad as having to choke down pills everyday. Is it a no-no to let it go like that? Or should I really make an effort to be completely flare free? Does light flaring here and there still lead to health problems? Which ones? colon cancer? removal of the colon?)

Thanks so much for your help! Hope you are all doing alright! -Sarah Jean
22/female/ college student in NC Diagnosed w/ UC or Crohn's? Nov 2006 ~ in remission since 12/ 2006

Meds:
Sulfazine EC Tab (2 tabs 3x's a day)
1 Folic acid
1 One A Day womens vitamin
2 Metamucil plus calcium capsule
1 ortho tri cylen lo
1 Zyrtec


lil slowpoke
Regular Member


Date Joined Sep 2006
Total Posts : 290
   Posted 9/3/2007 4:00 PM (GMT -7)   
Hi, Sara,
Many of my pills listed, Bc, atenolol, b vitamins, are for migraine managment. The yogurt, colazal, multivitamin and fish oil are for UC. Fishoil helps the joints.
I'd say take your pills. Eating up your gut isn't good. But everyone is so diffferent, I'm not sure anyone could tell you if letting yourself flare would make you more likely to need colon removal. There might be an argument that an angry colon is a happy spot for cancer, and that is why we are more prone to it.
I can now take 3 pills at a time. Never thought that would happen, but it is less hassle. Just take tabs together and capsules together. They go down differently.
Best to you,
Merry
uc since feb '05
colazol 9 day, calcium, multivitamin, fishoil
atenolol, bc pills, b-2, b-6 ( for migraine relief)
stonyfield farm yogurt
in remission


Red_34
Forum Moderator


Date Joined Apr 2004
Total Posts : 23549
   Posted 9/5/2007 4:45 AM (GMT -7)   
By not taking medication, you can be setting yourself up for disease progression/severe future flares/or the increased risk of colon cancer. By taking a 5-ASA it has been shown to decrease our risks of colon cancer significantly. Also by taking your medications, you may not have to be so "accepting" of having a weekly occurance of D.

The meds I take are:
Colazal - 9 daily - I feel it has helped me 100% more then Asacol. My symptoms increased in the beginning but after 2 weeks of adjustment, the number of bms went down alot, the pain lessened and the bleeding lightened up.

6mp - 50mgs(Mon,Wed,Fri,Sat & Sun), 75mgs(Tues & Thurs) - this is what helped me the most. Of course this is considered a heavy duty drug and mostly reserved for patients that are resistant to other types of meds and/or are steroid dependant.

Canasa Suppositories - nightly - these have helped alot as well. It keeps my rectal flares under control.
 @--->--SHERRY--<---@
Left sided Uc since '92 - meds - Colazal, Canasa (when needed), 6MP (50-75mgs), Forvia, Biotin (IN REMISSION - sort of!)
Secondary Raynauds Syndrome '04  - meds - Norvasc
Fibromyalgia '06 - no meds
Severe seasonal allergies - meds - Allegra 
PLEASE HELP HEALINGWELL CONTINUE TO HELP OTHERS BY CLICKING HERE: DONATE
@--->--Moderator for Allergies/Asthma and Co-moderator for UC--<---@
 
 
 
 

 
 


kb5
Veteran Member


Date Joined Jan 2007
Total Posts : 1015
   Posted 9/5/2007 6:25 AM (GMT -7)   
I stopped taking my meds because i thought it was a hassle too. Besides, i felt fine. Well I did get a nice five year remission but now I am paying for it. My UC has spread throughout my entire colon (which my GI says most likely would not have happened if I had stayed on my asacol) and I am stuck in a year long flare that will not go away. As much of a hassle as 12 pills a day is I would much rather take them than be back here again. I haven't been able to work or enjoy so much that has gone on this year (my college graduataion, husbands 30th birthday,best friends wedding, ect)

That said. I would talk to your doc about lialda, it's the same make up as asacol but fewer pills.

I am back on asacol (and proud of my 12 pills a day), prednisone (tapering slowly to give the imuran a chance to kick in) which i will never be back on again! I am also steroid dependent. I started imuran which has only been a week so nothing on that yet. Rowasa enemas have helped tons! The protonix is for my acid reflux. hmm.. is that it? I think so.
Kelly, 29

Left sided UC diagnosed 1/98 age 19, Pan colitis diagnosed 1/07
Currently on 4x3 Asacol, Rowasa every other night, down to 20 mg pred.
75mg Imuran starting 8/23/07---fingers crossed!
Prontonix once daily for acid reflux, zofran twice daily for nausea


Beth75
Veteran Member


Date Joined Jul 2007
Total Posts : 2148
   Posted 9/5/2007 7:12 AM (GMT -7)   
when I was first dx'd I took Rowasa nightly for two weeks and sulfasalazine (I don't remember the dosage) for 6 years. The Rowasa gave me immediate improvement (my UC is in my rectum).

Then Doc changed me to Asacol one year ago, I took 2400mg 2xday, it was great, and I did not have to take it w/food. Noticable difference between sulfasalazine and ascaol to me, my pee was not super yellow any more and I did not have to take it w/food, made it a little easier. Also, Doc told me to take Calicum + Vit D 500 mg 2xday, said I needed to while on Asacol.

A few weeks ago, I started Lialda I take 2.4mg 1xday. Basically same as asacol but instead of taking pills 2xday, take them 1xday.

I did not take all my pills as prescribed while on Asacol and am on week 10 of taking my meds like I am supposed to and working on coming out of a flare, doing much better but still not completely there yet. That's why he put me on Lialda, so it would be easier to take all my meds 1xday rather than 2xday and not miss them.

HTH!
Beth, 31
 
UC Diagnosed March 2000
Lialda 2.4mg 1xday since 8/24/07 (prev. Asacol 4800mg day)
Calcium and Vitamin D 500 mg 2xday
Simvastatin 20 mg 1xday
Diovan 80mg 1xday (dx: hematuria w/proteinuria): I have normal blood pressure, this is for my kidney - waiting for a dx.
 


Another UC wife
Veteran Member


Date Joined Jun 2007
Total Posts : 2111
   Posted 9/5/2007 3:09 PM (GMT -7)   
Hey Sara Jean.....please listen to some of the good advice you're being given and mull it over with your GI. If we only had that crystal ball to give us insight down the road if the decisions we make now are the right ones.

Maintenance drugs certainly sound like the way to go to keep you in check and stay ahead of things. Remission is not a cure - it can be longlasting (hopefully) but to have it come back with a vengeance as some have stated would be a terrible thing for you to deal with.

Best of luck to you!!!

60 yr old male~Colitis 1st diagnosed Jan '05-cleared up within a few wks. Flared again in May '06 ... left sided UC now, fully involved and trying to get in remission. Acute inflammation-pancolitis-tenesmus rectal pain-granulation is showing some healing started. Osteopena of spine from prednisone DX 8/07  July 07 good days & bad days 75mg Imuran 40  mg prednisone (tapering 8/07) 12 Asacol, Lidocaine Hydrochloride Jelly 2%,multi vitamin, iron 3X day, DanActive, chewable calcium, Prilosec 20mg, enalapril 10mg, glipizide 5 mg, zocor 20 mg, baby aspirin, (Fentanyl pain patch 50mg 72 hrs  Morphine Sulf 15 mg twice daily)Colocourt enemas at night. Fosamax and mthly B12 shots folic acid 1mg


jwogie
Regular Member


Date Joined Aug 2007
Total Posts : 35
   Posted 9/5/2007 8:11 PM (GMT -7)   

I also have started Lialda, and it is much easier to take pills just once a day.  I think they are working, but am also on entocort and will begin tapering off that next month.

Why do you forego your medicine?  Why on earth would you want to have diarrhea??  It seems like you would be in a continuous cycle of adjusting back to the normal dose. 

Lialda is better tolerated than some of the other drugs for this disease, it doesn't break down until it reaches the colon and you only have to take it once a day.  Maybe you should ask your doctor about it, if you're interested in changing meds.

  

 


- 45 year old; female
- diagnosed with UC in Sept 1991
- appendectomy and 7 years remission
- almost constant flare-ups in past 5 years
- currently on 9 mg Entocort, fish oil--feeling good!
- Lialda started 8/21, 2 pills per day

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