My colonoscopy today

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Rami
New Member


Date Joined Oct 2005
Total Posts : 14
   Posted 9/5/2007 10:06 AM (GMT -7)   
Hey all! just an update about my colonoscopy. It went GREAAAAATTTTTTTT...


The doc said he found no ulcers or any sign of ulcerative colitis.. he didnt even take a biopsy!.. he even doubted the original diagnosis.. lol .. and he took me off all medication he said that medication wont reduce the chance for me to flare up because ive been in remission for 5 years.. also those drugs reduce inflamation but i dont have any inflammation so no need for that.



im so happy!!! woohooooooooooooooooooo he said i should do a colonoscopy in 3 years! woot

Post Edited (Rami) : 7/18/2014 4:08:44 AM (GMT-6)


love4cats
Regular Member


Date Joined May 2007
Total Posts : 458
   Posted 9/5/2007 10:15 AM (GMT -7)   
5 years of remission!  That is fantastic.  What are you doing to achieve that?
 
 
Dx:  2006
 
Meds:  None so far. Garlic works to ease flares. My GI laughed when I told him and said it was just coincidence.
 
Diet:  Regular fresh garlic, Biobest yogurt daily, Omega 3 supplements, very limited junk food, carbs and processed food, low fat diet.  Lots of fresh fruit and veggies (limited potatoes). 
 
Added: tumeric and probiotics.
 
 


pb4
Elite Member


Date Joined Feb 2004
Total Posts : 20577
   Posted 9/5/2007 10:57 AM (GMT -7)   
That's fantastic, but I don't know why your doc would make that statement about initially it being a wrong DX...cold simply be that you're in full remission...most docs will suggest you stay on maintenance drugs even while in remission just incase the disease flares up again with a vengance.

Glad you're in remission and feeling great!

Eat healthy and stay fit!

:)
My bum is broken....there's a big crack down the middle of it!  LOL  :)


Another UC wife
Veteran Member


Date Joined Jun 2007
Total Posts : 2111
   Posted 9/5/2007 3:02 PM (GMT -7)   
great news..............very happy for you

60 yr old male~Colitis 1st diagnosed Jan '05-cleared up within a few wks. Flared again in May '06 ... left sided UC now, fully involved and trying to get in remission. Acute inflammation-pancolitis-tenesmus rectal pain-granulation is showing some healing started. Osteopena of spine from prednisone DX 8/07  July 07 good days & bad days 75mg Imuran 40  mg prednisone (tapering 8/07) 12 Asacol, Lidocaine Hydrochloride Jelly 2%,multi vitamin, iron 3X day, DanActive, chewable calcium, Prilosec 20mg, enalapril 10mg, glipizide 5 mg, zocor 20 mg, baby aspirin, (Fentanyl pain patch 50mg 72 hrs  Morphine Sulf 15 mg twice daily)Colocourt enemas at night. Fosamax and mthly B12 shots folic acid 1mg


quincy
Elite Member


Date Joined May 2003
Total Posts : 29860
   Posted 9/5/2007 10:32 PM (GMT -7)   
Definitely good news. The fact that no biopsies were taken is puzzling, however....

q
*Heather*Status:mini flare June 23* 6asacol daily+ Salofalk (tapered every 3rd night)
~diagnosed January 1989 UC (proctosigmoiditis)
~5ASA: Asacol + Salofalk enemas (increase for flares tapered to maintenance)
~Bentylol (dicyclomine) 20mg as needed
~vitamins/minerals 
~Probiotic 2 (Natural Factors Protec) + 1 (Primadophilus Reuteri) at bedtime
~Natural Factors Multi Digestive Enzymes with supper
~Ranitidine,Pariet (reflux) Effexor XR 75mg;  Pulmicort/Airomir (asthma)
~URSO for PSC (or PBC) 500mg X 2 daily (LFTs back to NORMAL!!)
My doc's logic.. "TREAT (FROM)BOTH ENDS"  worth it !!!


birdiem
Regular Member


Date Joined Aug 2007
Total Posts : 326
   Posted 9/6/2007 5:02 AM (GMT -7)   
sedation free?? very impressive. congrats!
katie
22
diagnosed with cecal volvulus, 2006; two colon resections in the same year
diagnosed with colitis 2007
malrotated colon
no cecal valve, removed during surgery
on antibiotics while undergoing further testing by doctor
will start VSL #3 when antibiotics are done.


Rami
New Member


Date Joined Oct 2005
Total Posts : 14
   Posted 9/6/2007 9:13 AM (GMT -7)   
in response to what was said..
 
he didnt say the diagnosis was wrong but he doubted it and asked me if i had one or more episodes because if i only had one he would have told me that i had a different condition not ulcerative colitis.
 
about the biopsies, he said biopsies are infact becoming a waste of time because the bowel looks completely normal with no inflammation at all. Infact he said that the idea of biopsies is being changed and instead doctors are advised to look more carfully instaed of concentrating on biopsies as the chances of catching anything significant is very small. There is a lot of debate around biopsies, etc.. i trust what he says because he's one of the pioneers in the IBD field.
 
about medication, asacol/pentasa/etc work to lessen the inflammation of the colon. Average people with UC have a chance of 70% flare up every year without asacol/pentasa. That is reduced to 20% with asacol/pentasa. If you havent had one in 5 years and havent been on any medication for one year and your bowel looks clean with no inflammation at all then there is no neeed to take anti-inflammation drugs. He told me I will probably get a flare up sometime again. Maybe in 5 years, 10yrs, 15 who knows maybe i will never get another one but it has no connection to taking the medication - in my case. also he said that if there is any reason to take it, it would be to reduce the cancer risk and if theres not much activity in the colon then the cancer risk is low anyway - not at normal levels but at the lower end of the UC spectrum.

quincy
Elite Member


Date Joined May 2003
Total Posts : 29860
   Posted 9/6/2007 11:14 AM (GMT -7)   
It sounds as though you have it all figured out based on stats. It's an interesting way to justify you're in the clear.

I disagree with the biopsy excuse...for a base-line regarding cancer and other microscopic inflammation ,it would be a good thing to have.

I too hope all stays well for you. I would suggest you pay good attention to any subtle continual changes that happen in bowel habits and get it dealt with before they get too "obvious".

quincy
*Heather*Status:mini flare June 23* 6asacol daily+ Salofalk (tapered every 3rd night)
~diagnosed January 1989 UC (proctosigmoiditis)
~5ASA: Asacol + Salofalk enemas (increase for flares tapered to maintenance)
~Bentylol (dicyclomine) 20mg as needed
~vitamins/minerals 
~Probiotic 2 (Natural Factors Protec) + 1 (Primadophilus Reuteri) at bedtime
~Natural Factors Multi Digestive Enzymes with supper
~Ranitidine,Pariet (reflux) Effexor XR 75mg;  Pulmicort/Airomir (asthma)
~URSO for PSC (or PBC) 500mg X 2 daily (LFTs back to NORMAL!!)
My doc's logic.. "TREAT (FROM)BOTH ENDS"  worth it !!!


Rami
New Member


Date Joined Oct 2005
Total Posts : 14
   Posted 9/7/2007 1:31 AM (GMT -7)   
It is not based on stats but on studies.. and thats the only information we have on UC.. and as I said, drugs work to lessen inflammation. If there is no inflammation im just hurting my kidneys/liver for no reason..

Concerning the biopsies.. the colon is over a metre long.. so unless you take a biopsy every milimetre then you have to be pretty lucky to catch anything.. biopsies are taken at abnormal areas to check for dysplasia.. if there are no abnormal areas then 1) highly unlikely to have dysplasia and 2) if there is, it would be literally impossible to catch..

I will pay attention to any changes as that would call for a colonoscopy..

AshnaG
Regular Member


Date Joined Feb 2007
Total Posts : 79
   Posted 9/7/2007 5:53 AM (GMT -7)   
When you say you used Asacol Does that mean Salofalk?

What is pentasa?
 


AshnaG
Regular Member


Date Joined Feb 2007
Total Posts : 79
   Posted 9/7/2007 5:54 AM (GMT -7)   
I have my colonoscopy next friday, I have an ultrasound on monday (been feeling pain higher up near my chest).

Also what probiotics are you taking?
 

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