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isotired
Regular Member


Date Joined Apr 2006
Total Posts : 40
   Posted 9/6/2007 12:42 AM (GMT -7)   
Hey everyone,
 
Has anyone been told by their GI to not drink Milk?  That was one of the first things my GI told me not to drink.  I love Milk, but I havent had it in over a year.  The reason I am asking is I want to find out the reason why I should not drink it.  I know it coats the intestine pretty well, in fact, I saw an article saying milk might replace barrium dye for some intestine tests.  I figured, if it coats the intestine, and you have ulcers, it would probably make those ulcers not feel very good.  However, if it has something to do with the Lactose and the way it is broken down, and creates gas, then that is something completely different, and would go for any dairy across the boards.
 
This will help me out because I will know if I can only drink soy milk, rice milk, or if I can get closer to those milk alternatives that actually taste like milk, like lactaid.  Oh what I wouldn't do for some milk and cookies.  But for now, I will settle for my rice milk (non-dairy) and puffed corn cereal.
 
Thanks everyone.
Diagnosed with UC through out my entire colon on March 23rd 2006.
Hospitalized for severe Anemia on May 19th to May 26th, 2006.
   
The bad days of this disease make you pay attention to the small beautiful things in this world.  I hate this disease but im thankful for opening my eyes.  I will over come this and I will love life to its fullest.
 
 


KitKatBaker
Veteran Member


Date Joined Feb 2005
Total Posts : 1146
   Posted 9/6/2007 3:28 AM (GMT -7)   
I would guess that you were told that because a high number of people with IBD are lactose intolerant.  My first GI told me the same thing.  When I asked about diet, he said to eat whatever I could tolerate, and that a lot of people have problems with milk.
Katina
Co-Moderator Crohn's Disease Forum
Co-Moderator Ulcerative Colitis Forum
 
Asacol 6/day, Prevacid 2/day, Acidophilus Complex Probiotics, Green Tea Extract, Flax Oil
 
Help support Healingwell!!!
 


njguy69
Regular Member


Date Joined Jul 2006
Total Posts : 276
   Posted 9/6/2007 3:43 AM (GMT -7)   
www.notmilk.com
UC since 1986.

Asacol - six a day
6 MP - one a day.
Remicade - every eight weeks.


tjf
Veteran Member


Date Joined Dec 2005
Total Posts : 3238
   Posted 9/6/2007 5:26 AM (GMT -7)   
I drink Lactaid milk. It doesn't bother me. My GI told me that milk is hard on the digestive system period.....whether you have tummy troubles like we do or not. I just try to use it in moderation.
Tabitha (Tab)

100mg Azathioprine, 2 Fibercon, Colazal-6 a day, Acidopholis Pearls, Prilosec OTC

http://www.healingwell.com/donate
Co-Moderator UC Forum


princesa
Veteran Member


Date Joined Aug 2007
Total Posts : 2198
   Posted 9/6/2007 7:18 AM (GMT -7)   
People who have impaired digestions often have problems with both dairy and gluten. If dairy products bother you, it could be the lactose, the milk sugar, in which case you could experiment with lactose-free milk. But some folks also have problems with casein, the milk protein, in which case you're better off avoiding dairy altogether. Once your intestines are healed or at least less inflamed, you may be able to tolerate milk products.

For me personally, it's not worth the risk. I've tried Lactaid, goat milk, homemade yogurt, the whole nine yards. I just feel better when I eliminate dairy from my diet. Very occasionally, I'll have a sprinkle of cheese or a little butter, but no milk, ice cream, whipped cream, cream-based sauces, etc.
Diagnosed with ulcerative colitis spring 1999
Possibly misdiagnosed
 
Maintenance dose sulfasalazine
Probiotics, l-glutamine and fish oil caps
 
 


pb4
Elite Member


Date Joined Feb 2004
Total Posts : 20577
   Posted 9/6/2007 7:44 AM (GMT -7)   
Milk is disgusting in my opinion...it's cow mucus, yuck! I know some people love it but it just grosses me out, sorry.

Some people also believe the MAP theory regarding milk and IBD, if you google MAP you should get lots of article regarding this...of course MAP is also found in other sources like water and such so that's why it's very contraversal.

And true, many with IBD do have a higher risk of becomming lactose intolerant, but the probiotic I use daily aids with that so I no longer have to use lactaid pills anymore.

:)
My bum is broken....there's a big crack down the middle of it!  LOL  :)


kb5
Veteran Member


Date Joined Jan 2007
Total Posts : 1015
   Posted 9/6/2007 7:52 AM (GMT -7)   
When I was young i was lactose intolorent but have grown out of it. When flaring I do stay away from dairy (though i pretty much stay away from most things) Too much dairy can make me nauseas but I really have to pig out on it. Moderations is what I have found works for me.
Kelly, 29

Left sided UC diagnosed 1/98 age 19, Pan colitis diagnosed 1/07
Currently on 4x3 Asacol, Rowasa every other night, down to 20 mg pred.
75mg Imuran starting 8/23/07---fingers crossed!
Prontonix once daily for acid reflux, zofran twice daily for nausea


ediekristen
Veteran Member


Date Joined Apr 2007
Total Posts : 1366
   Posted 9/6/2007 8:58 AM (GMT -7)   
In my opinion, Lactaid milk tastes TERRIBLE. I don't mind the Rice milk too much, but I did not like the Vanilla flavored one. I don't drink milk anymore (unless I'm really feeling 'rebellious' and decide to have a glass of chocolate milk, haha) because it just hurts my stomach. Same with Orange Juice... I haven't drank orange juice since.... Well, it's been over 5 years I can tell you that much. It just makes my stomach burn.
Female, 22, Ulcerative colitis (pancolitis) since 1999; GERD; gastritis; osteopenia in hip & lumbar region of spine from long term prednisone use

Current Meds:
Primadophilus Reuteri
40 mg Citalopram (for depression/social anxiety)
125mg Imuran
10meq Potassium Cl
Caltrate Bone & Colon Health- 600 mg calcium + 400 IU of vitamin D
Vitamin B-12 Supplement
 


texaswindmill
Regular Member


Date Joined Mar 2007
Total Posts : 42
   Posted 9/6/2007 10:47 AM (GMT -7)   

Hi,

My GI told me "no milk when flaring". So, I drink no milk when I flare. I don't drink milk anyway; however, every so often, I go on a cream in my coffee kick (for the past month, I have been drinking cream in my coffee). Now, I am "off" cream. I just go through phases where I want the cow's mucus, as it were :-) .

Once in a blue moon, I will drink chocolate milk and around Thanksgiving a little 'nog action. Last year, when I was dx, I didn't touch dairy. This year...hee hee hee, looking forward to a little 'nog, if I am not flaring devil


Cheers,
Texas Windmill

UC: Left sided colitis, DX Nov-06
Started treatment 13-April-7: Asacol 3x3 and Bentyl as needed
As of 1-Sept-07: Bowels are behaving.


Sara14
Veteran Member


Date Joined Mar 2007
Total Posts : 4034
   Posted 9/6/2007 7:32 PM (GMT -7)   
My GI told me I could drink/eat whatever I want. I drink milk and eat other dairy problems and they don't seem to affect me at all. I don't think you have to avoid milk unless you're lactose intolerant...that's what I have been told by 2 GIs and from research I've done. If you're craving it, you might as well try it and see how you react to it.
23 years old
Diagnosed with UC March 2007

Asacol 4 tablets 3x/day
Rowasa (generic) - once a week
Nature's Way Primadophilus Reuteri 1/day; Chewable multivitamin


kazygirl
Veteran Member


Date Joined Sep 2007
Total Posts : 955
   Posted 9/19/2007 4:29 AM (GMT -7)   
weird thing... im only lactose intolerant when im flaring. it gives me a horrible gut ache for hours if i drink it or put in cereal or coffee... but when im not flaring, im good to go. i can have tons of it. i guess try it and see if it bothers you, if not, then drink away, if it does, then dont drink it...

FosterDad
Regular Member


Date Joined Aug 2007
Total Posts : 97
   Posted 9/19/2007 7:27 AM (GMT -7)   
I was told that I should be drinking RAW MILK. Even though it is illegal to get in Canada. Apparently, even people that are lactose intollerant are able to drink it and the benifits are suppose to be huge. I dont know yet because I havent really done any research on it.

Any thoughts???
Just diagnosed Aug. 14/07
Asacol 8 / day (5-Aminosalicylic Acid 400mg)
Pred. 50mg
Cortafoam (butt mousse, not emima)


pb4
Elite Member


Date Joined Feb 2004
Total Posts : 20577
   Posted 9/19/2007 11:29 AM (GMT -7)   
I've never hear of that ....where in Canada are you? I'm in Alberta...the primadophilus reuteri probiotic I take aids with lactose intolerance, I no longer have to use lactaid pills and I had severe lactose issues, I don't drink milk but will have other types of dairy on occassion.

:)
My bum is broken....there's a big crack down the middle of it!  LOL  :)


FosterDad
Regular Member


Date Joined Aug 2007
Total Posts : 97
   Posted 9/19/2007 11:52 AM (GMT -7)   

Im on Vancouver Island...(West Coast)  I was talking with the owner of a very reputable health food/all natural store and her daughter has had UC for 21 years.  She says that raw milk does not affect lactose problems and it actually helped with her daughter who can not have any dairy.  I thought it sounded weird but my wife grew up on a farm and basically used to drink right from the cow and said its great.  The owner of the store said that she was unable to provide me with a source of raw milk because it is apparently illegal to sell any unpasturized milk in Canada (maybe its just BC....not really sure) 

But before I crawl under a cow and start feeding I wanna be sure about this...lol


Just diagnosed Aug. 14/07
Asacol 8 / day (5-Aminosalicylic Acid 400mg)
Pred. 50mg
Cortafoam (butt mousse, not emima)


me,too
Regular Member


Date Joined Mar 2007
Total Posts : 97
   Posted 9/24/2007 4:54 PM (GMT -7)   
If you're interested in the benefits of Raw Milk, here's a useful link:

http://www.realmilk.com/

FosterDad
Regular Member


Date Joined Aug 2007
Total Posts : 97
   Posted 9/25/2007 6:49 AM (GMT -7)   
Thanks for the link **me,too** they actually had a link on the site to a place right by me to buy raw dairy products.


Just diagnosed Aug. 14/07
Asacol 8 / day (5-Aminosalicylic Acid 400mg)
Pred. 50mg
Cortafoam (butt mousse, not emima)

Post Edited (FosterDad) : 9/25/2007 1:57:02 PM (GMT-6)


Sara14
Veteran Member


Date Joined Mar 2007
Total Posts : 4034
   Posted 9/25/2007 9:34 AM (GMT -7)   
There's a reason it's illegal to sell unpastuerized milk. It's not safe to drink it.

http://www.health.gov.on.ca/english/public/pub/foodsafe/milk_unpast.html
23 years old
Diagnosed with UC March 2007
Current inflamation in the rectum
Asacol 4 tablets 3x/day
Rowasa (generic) - nightly
Nature's Way Primadophilus Reuteri 1/day; Chewable multivitamin


NuffinButtTrouble
Veteran Member


Date Joined Mar 2007
Total Posts : 679
   Posted 9/25/2007 10:33 AM (GMT -7)   
uc veteran,

I just read the information at the site you provided...it really makes a lot of sense and the studies speak for themselves. For me, milk just makes my uc condition worse...then add to that cereal (sugar)...it's a recipe for disaster...at least for me anyway.

NBT
Diagnosed with Ulcerative Colitis January 2007
Meds: Remicade, Primal Defense Ultra, Multi-vitamins (also iron, B12, Magnesium and Zinc), Flaxseed/Fish Oil
Swanson Ultra Caprylic Acid (natural anti-fungal) 600mg x2 daily
Carrot & Garlic supplements (natural anti-fungal) x2 daily
 

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