Hi Beth...I wouldn't take any 5ASA if I were in your situation given the information you've found. Is prednisone the only thing that you could take or would other immunosuppressants be an option...?
long-term meds or care? What did your doc say about
that? Was it a kidney specialist you saw?
Have you checked out any other kidney disease sites? I know the healthboards has a kidney disease forum...there would for sure be others where you can pose your queries.
Worth the research considering you're in early stages with the opportunity to possibly reverse or stop the progression...pred may only be the way to go...but do know all the possible treatments so that you can make a good judgement on your care.
As for the UC...there is always Entocort and steroid foam/liquid enemas that you could consider .. not systemic with much less side effects than pred.
The more research you do....especially considering you have more than one disease to care for...the better it is to make the decisions.
Regarding prednisone...does it have to be a high dosage or can it be a low dosage for longer?
You've already found valuable information which has now altered a choice med for UC.
What do you think?
*Heather*Status:mini flare June 23* 6asacol daily+ Salofalk (tapered every 3rd night)
~diagnosed January 1989 UC (proctosigmoiditis)
~5ASA: Asacol + Salofalk enemas (increase for flares tapered to maintenance)
~Bentylol (dicyclomine) 20mg as needed
~Probiotic 2 (Natural Factors Protec) + 1 (Primadophilus Reuteri) at bedtime
~Natural Factors Multi Digestive Enzymes with supper
~Ranitidine,Pariet (reflux) Effexor XR 75mg; Pulmicort/Airomir (asthma)
~URSO for PSC (or PBC) 500mg X 2 daily (LFTs back to NORMAL!!)
My doc's logic.. "TREAT (FROM)BOTH ENDS" worth it !!!