I'm 18 and Sick of being sick

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becca89075
New Member


Date Joined Sep 2007
Total Posts : 2
   Posted 9/6/2007 1:14 PM (GMT -7)   
 

Post Edited By Moderator (Loneylane) : 9/6/2007 4:13:42 PM (GMT-6)


KFS
Regular Member


Date Joined Jul 2007
Total Posts : 20
   Posted 9/6/2007 1:41 PM (GMT -7)   

Read some of the forums on Dragonpack.com or even on this site. Could be much worse. Some children start at 2 or 3 years. My daughter was diagnosed this year at 12.  

This happened to us:
I took my daughter for an upper Endo. at the hospital. While we were waiting and she was complaining about another test...why me...everything happens to me...I dont want to do this........etc. A little girl came in with leukemia -no hair, holding a bed pan to be sick in, and in a baby stroller, she looked to be about 10 years old. My daughter quickly decided maybe she didnt have it really bad.
 
They say god only gives you what you can handle.
 
This is a terrible disease. But.... you have company.
colitis -diagnosed Jan 2007 -daughter 12
intestional malrotation
Asacol, Prednisone, Entocort, Caprylic Acid, Vit. B50
No remission since diagnosed- but not severe


njguy69
Regular Member


Date Joined Jul 2006
Total Posts : 276
   Posted 9/6/2007 1:43 PM (GMT -7)   
I was in the same boat you are in back in 1986 and asking why me? I was planning on going to college on a baseball scholarship when it was all taken away from me. First thing you need to do is to stop asking why me and start thinking why not me? I know that sounds cruel, but thats how I started dealing with it. I guess somebody has to get this disease, so I guess we've been chosen. I'd have to say because we can deal with it, where as people like the ones that made those comments about the hockey player getting UC, can't!! People like that would commit suicide the first day. So start looking at it like that.
UC since 1986.

Asacol - four a day
6 MP - one a day.
Remicade - every eight weeks.


Jeremy "Mr. Snuts"
Regular Member


Date Joined Oct 2004
Total Posts : 162
   Posted 9/6/2007 1:44 PM (GMT -7)   
I thought the same thing.. I was diagnosed when I was 18, the best years of my life(supposedly), and I had to go through this while in it? It takes a while, and I still have those days when I think of Why Me, although few and far between now after surgery. My advice is really focus on the good things in your life. Having this sickness has made me appreciate life, friends, and the people I love so much more.
Diagnosed with Severe Ulcerative Colitis 1/04 -(18 at the time)
11/04 Total Colectomy
2/05 Ostomy Takedown
1/06 DVT In leg
5/06 Pulmonary Embolii
4/07 Another DVT In leg
Current Medications -
Vicodin 800mg when needed(yumyum)
Coumadin

http://www.myspace.com/mrsnuts/
http://www.livejournal.com/users/mistersnuts/


marty1976
Veteran Member


Date Joined Nov 2005
Total Posts : 2045
   Posted 9/6/2007 1:53 PM (GMT -7)   
I too was diagnosed at 15. The one key thing to living with this disease is having a positive attitude, and we all know how hard that is when your going through any illness.It is really hard trying to come to terms with this disease especially when diagnosed so young, but stressing and anxiety only makes it worse.Many of us have learnt that the depressive thoughts and feelings have to be overcome for us to remain sane and stop our flares getting worse.Stress causes flares to last longer and get nastier.
I hope you get remission soon so you can get your life back
Marty
keep the faith

Pred50mgs/asacol/proctifoam/omoparazole 40mgs/Domperidone10mgs x 3 daily(and its not for breastfeeding i'm using it :).[/color]</b>





http://www.myspace.com/martybuzz1<FONT]


I Gotta Go
Regular Member


Date Joined Sep 2007
Total Posts : 44
   Posted 9/6/2007 2:00 PM (GMT -7)   
Becca,

I am so sorry to hear what you're going through at such a young age. You are absolutely right, you're at an age when you should be having the time of your life. And you know what? Don't let the disease get you down. A very famous person (Winston Churchill) once said, "Never, never, never give up."

Please look at life like the proverbial glass of water that is "half full" versus being half empty. Yes, you will need to take precautions in your young life but that doesn't mean you still can't live as much of a normal young adult life as possible. Make sure you see your life as "half full" instead of the more negative "half empty." Take care of yourself by eating right and exercising and doing everything else that your doctors need you to do. But at the same time be you. Live life as you want to. Think about reaching out to others who are less fortunate than you by serving them in some way. And be happy! And never give up.

tjf
Veteran Member


Date Joined Dec 2005
Total Posts : 3238
   Posted 9/6/2007 2:11 PM (GMT -7)   
Did I miss something here?
Tabitha (Tab)

100mg Azathioprine, 2 Fibercon, Colazal-6 a day, Acidopholis Pearls, Prilosec OTC

http://www.healingwell.com/donate
Co-Moderator UC Forum


pb4
Elite Member


Date Joined Feb 2004
Total Posts : 20577
   Posted 9/6/2007 2:22 PM (GMT -7)   
Ya?? I don't know what the original poster wrote but I'm getting an idea of what it was about so I'll add my 2 cents...

I don't think there's any good age to get a horrid disease like this, but it's definitely worse the younger you are when you get it, especially because it is a chronic life-long disease.

:)
My bum is broken....there's a big crack down the middle of it!  LOL  :)


jellybean1887
Veteran Member


Date Joined May 2005
Total Posts : 1362
   Posted 9/6/2007 2:31 PM (GMT -7)   
I am actually kind of glad I have had IBD since I was about 8 even though I wasn't diagnosed until 14. It is really the only way I have known how to live my life, so I never got a chance to know what normalcy was! Just my thoughts....take care!
"Of one thing I am certain, the body is not the measure of healing - peace is the measure. ~George Melton~"


becca89075
New Member


Date Joined Sep 2007
Total Posts : 2
   Posted 9/6/2007 3:08 PM (GMT -7)   
sorry, I tried to edit it but ended up erasing it. Sorry! It just basically said that I am sick of being sick and that I am only 18. I shouldn't have to deal with it. I just asked how to keep myself positive.
sorry about erasing it.
Thanks

justcallm3jack
Regular Member


Date Joined Jan 2007
Total Posts : 149
   Posted 9/6/2007 3:32 PM (GMT -7)   

im with you on that one becca.

 

im 18 as well. ive been diagnosed for about 3 years now

and it sucks.

 

keep ya head up


The name is Jacquelyn, but you can just call me Jack.

Eighteen yr old female diagnosed w/ UC in 2004

Probotics:
-UltraInflamX 360
-LactoFlamX
-EPA-DHA 6:1™ Enteric-Coated

Other:
-Prednisone (tapering)
-Asacal
-Imuran
-Mesalamine Enemas

Calcium, Iron, & One-a-day.

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