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ant body tried Xifaxan ...think its a antibiotic..

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ant body tried Xifaxan ...think its a antibiotic..  
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Posted 9/8/2007 8:42 PM (GMT -6)
Hello
My Doc gave me Xifaxan 10 day treatment
any expirence would be of help thanks ...been in a flare since Dec.
Thanks..
colazal 750mg 3x3 a day
entocort 3mg 2x2 a day
mercaptopurine 50mg 1 a day

rowasa enema pm
multi vitamin
folic acid
fish oil
alo vera gel
dx 2004 uc
7-9 -07 started Allopurinol 100mg 1/2 tap a day
 

Posted 9/8/2007 9:01 PM (GMT -6)
It's made by Salix, the same manufacturer of Colazal.  Looks like it treats e-coli related diarrhea.
 
 
 
My GI gave me a different 10 day antibiotic, Flagyl, and seemed to very much help my bowel problems, but gave me horrid food-poisoning-like symptoms so I couldn't finish the last 6 days.  I wish I could have finished because I'm still flaring and I frequently wonder "what if" I'd been able to take the full 10 days.   
Posted 9/9/2007 11:31 AM (GMT -6)
Thank you UC Dallas
That was helpful
colazal 750mg 3x3 a day
entocort 3mg 2x2 a day
mercaptopurine 50mg 1 a day

rowasa enema pm
multi vitamin
folic acid
fish oil
alo vera gel
dx 2004 uc
7-9 -07 started Allopurinol 100mg 1/2 tap a day
 

Posted 9/9/2007 12:04 PM (GMT -6)
My doctor gave me a 10 day treatment of Xifaxan once when I was in a flare and couldn't eat anything for days. Within 2 days, the diarrhea was gone. So even though it was a temporary solution, it at least made me functional again.
-25 year old female with left-sided UC and ulcerative proctitis
-Diagnosed May 2004, in remission for four months currently
-Past medications: Rowasa, Canasa, Dipentum, Asacol
-Current meds: Colazal 9 pills a day (finally off prednisone--yayy!), Flora-Q, multi-vitamin

Posted 9/9/2007 3:57 PM (GMT -6)

I just started Xifaxan yesterday.  I most likely will be on it long term.  So far so good.  I had been on cipro for 1 week prior, Cipro and Flagyl for 1 week before that.  Flagyl made me very naseous.  My doctor didn't think Cipro was good enough alone, so he prescribed Xifaxan.  The intestinal pain is mostly gone, my BM's are down to 4 times today from 8-10 since I started antibiotics. I don't notice any side affects yet.  My insurance covers it with a 35 dollar copay, but I noticed it was very expensive.  I've been in a flare since January and couldn't get off steriods. They wanted to put me on Remicade and MTX, but I wasn't quite ready for that.

 

Posted 9/9/2007 4:30 PM (GMT -6)
i just finished my ten day dose of xifaxan. i didn't have any negative side effects but i didn't feel like it helped either. sorry (hopefully it is just me). now my doctor has started me on VSL #3. did your doc mention probiotics when you are done with the xifaxan. also insurance is a devil with xifaxan. how did you deal with it?
katie
22
diagnosed with cecal volvulus, 2006; two colon resections in the same year
diagnosed with colitis 2007
malrotated colon
no cecal valve, removed during surgery
on antibiotics while undergoing further testing by doctor
will start VSL #3 when antibiotics are done.

Posted 9/9/2007 5:14 PM (GMT -6)
Day one
lot of gas and D's but no to much pain so i will try and make it 10 days
I am on Probiotics ...my insurance has capped out at 2,400 so i am on my own till Jan... Xifaxan are samples the Doc gave me.

Thanks for the info
colazal 750mg 3x3 a day
entocort 3mg 2x2 a day
mercaptopurine 50mg 1 a day

rowasa enema pm
multi vitamin
folic acid
fish oil
alo vera gel
dx 2004 uc
7-9 -07 started Allopurinol 100mg 1/2 tap a day
 

Posted 9/9/2007 5:25 PM (GMT -6)
I went for a second opinion at MGH in Boston.  The doctor there fought the insurance company, I didn't even need a pre-authorization.  There is some evidence that I have Crohn's disease and not UC (IBD First Step showed Crohn's marker, but not UC marker, patchy inflammation, respond well to antibiotics), so I'm thinking they told the insurance company I had Crohn's.  A 30 day supply was almost 1300 dollars, good thing it was covered.
 
He didn't mention probiotics, but I'm already taking one, so maybe that's why.  I take Primadophulus Reuteri.  Also, I was told I would be on the antibiotics as long as it does the job. 
 
Sorry it didn't work for you.  Does your insurance company cover the VSL #3? Just curious.  I looked into taking that, but it was too expensive.   
Posted 9/9/2007 9:01 PM (GMT -6)
xifaxin is the one antibiotic that has consistently shown effectiveness against UC. I posted a lot of evidence about it in an earlier thread (member pumpfast was taking it, I think). Enjoy the dosing-- I wish they would get Xifaxin approved for UC!
Dx:

Left-sided UC, Jun 2005. Flex-sig only... clear for first 20cms, then inflamed through next 30cms.

Therapies:

Pharmaceutical: Pentasa 3G/day, hydrocort 1x every 7 days
Probiotics: Acidophilus Pearls, Primadophilus Bifidus
Naturals: Caprylic Acid, Methylated B-12, Vit ACDE, Zinc (w/copper), Selenium, Turmeric, Bromelain, Luteolin
Killer Foods: Soda, Fried Food (especially french fries!), Beer, Red Wine, Pepperoncinis

Posted 9/10/2007 12:46 AM (GMT -6)
no, the insurance doesn't cover vsl #3. i am only taking it for a month (on my dr recommendation) and then i am switching to less expensive probiotics that i can actually afford.
katie
22
diagnosed with cecal volvulus, 2006; two colon resections in the same year
diagnosed with colitis 2007
malrotated colon
no cecal valve, removed during surgery

VSL #3
Flagyl to slow gastric emptying

Posted 9/10/2007 12:15 PM (GMT -6)

My Dr. gave me a ten-day supply sample once for gas and bloating, worked quite well. When I said I really liked it and it worked well she gave me a prescrption for 60/month. My insurance said they'd only pay for NINE/month. They wanted like $300 to get al 60! No way. I just do without.

Stupid insurance company.

Ulcerative colitis (entire colon) & Diverticulitis
Very Mild Flare (1-2 loose BM's/day)
SCDiet since 4/1/07 - I love it! Works great for me.
10mg Prednisone/day, tapering!   
4 Asacol 2x/day  
4.8g Fish oil
Probiotics (KAL Acidophilus-5 3bil & Primadophilus Reuteri)
Bee propolis, Turmeric (just got them, experimenting) 
1500mg Calcium/day, B-complex vitamin w/Folic Acid, Biotin

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