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Posted 9/11/2007 1:23 PM (GMT -7)
I just read something I had to share from another forum I found.
 
 
Read  - Colitis case closed. I read all entries. Some have links to more information.  
 
Has anyone else tried this before?
colitis -diagnosed Jan 2007 -daughter 12
intestional malrotation
Asacol, Prednisone, Entocort, Caprylic Acid, Vit. B50
No remission since diagnosed- but not severe

Posted 9/11/2007 8:48 PM (GMT -7)
Yup, I've read it..I sometimes post there myself.

No, I havn't tried it.


:)
My bum is broken....there's a big crack down the middle of it!  LOL  :)

Posted 9/11/2007 8:51 PM (GMT -7)
Well I just went and read the site, and I dont know if it works but it cant hurt and its cheap so I am going to buy some and have it on hand.I kind of understand what he is saying about the acid on the stomach because when I was dx with uc shortly there after I had to have the scope down the throat test and my doctor couldnt believe how much acid I had on my stomach. he put me taking 2 protonix a day and 4 carafate pills a day, which coats your stomach so the acid doesnt eat a whole in the lining of your stomach. So his tapioca flour mixture may coat the stomach and help with the pain.
Rona

synthroid .088 mg, lowpressor 50 mg x 2, cozaar 25mg x2, imdur 30 mg
nitroquick, proventol, plavix 75 mg, protonix 40 mg x 2, asacal 400mg x 9
carafate 1 gm x 4, zyrtec 10 mg, rhinocort aqua nose spray, fish oil,
potassium.

Posted 9/11/2007 9:03 PM (GMT -7)
Interesting site.

pb4 - Interesting that someone was trying to tell you refined sugar isn't bad for us (I'm assuming that was you). =)
23 years old
Diagnosed with UC March 2007
Current inflamation in the rectum
Asacol 4 tablets 3x/day
Rowasa (generic) - nightly
Nature's Way Primadophilus Reuteri 1/day; Chewable multivitamin

Posted 9/12/2007 1:46 AM (GMT -7)
i tried it for months. Verdict: benign, but probably useless or of such minor benefit it is not worth the effort.

That's just me.
Dx:

Left-sided UC, Jun 2005. Flex-sig only... clear for first 20cms, then inflamed through next 30cms.

Therapies:

Pharmaceutical: Pentasa 3G/day, hydrocort 1x every 7 days
Probiotics: Acidophilus Pearls, Primadophilus Bifidus
Naturals: Caprylic Acid, Methylated B-12, Vit ACDE, Zinc (w/copper), Selenium, Turmeric, Bromelain, Luteolin
Killer Foods: Soda, Fried Food (especially french fries!), Beer, Red Wine, Pepperoncinis

Posted 9/12/2007 2:23 PM (GMT -7)
ok well I went to the super wal-mart which is pretty much the only store I have around me but I couldnt find the flour they was talking about does anyone no what kind of store carries it.
Rona

synthroid .088 mg, lowpressor 50 mg x 2, cozaar 25mg x2, imdur 30 mg
nitroquick, proventol, plavix 75 mg, protonix 40 mg x 2, asacal 400mg x 9
carafate 1 gm x 4, zyrtec 10 mg, rhinocort aqua nose spray, fish oil,
potassium.

Posted 9/13/2007 2:23 AM (GMT -7)
Is this not the old acid / alkaline theory? Too much acid leads to irritation which if it persists will lead to inflammation. Therefore you try and alkalize your GI tract. I presume the mixture of flour is meant to get the PH up to normal levels. Don't people use baking soda enemas for the same purpose?

Of course the theory says nothing aout the immune system (i stand to be corrected on this).
3200 mg Asacol + 500mg suppositories as needed
Digestive Enzymes
Acidophilus
Calcium
Aloe Vera Juice
Anti Fungal Supplements
No Stress and a positive attitude (mostly!)
 
 
 
 
 

Posted 9/16/2007 1:04 AM (GMT -7)
Not sure about th etheory behind it but it's cheap and I'm sick of the pain so I'm guna try it keep you posted as to wether it has any effect. I still think it has more to do with the bodies immune system.
Posted 9/16/2007 11:30 AM (GMT -7)

Yes, I saw this post and thought I would give it a try.  Been using it for 2 days now and not seen any difference yet.

Pottygirl - you should find it in an asian supermarket

 

Back on Pred - 8mg - Steroid Dependent :-(
Azathioprine 150mg
Actonel 35mg
Predfoam Enema
VSL #3 with Activia Yoghurt
EPA Fish Oils
Various Homeopathic meds
Asacol x 9
Remicade every 8 weeks  (Stopped working)
Aloe Vera Lily of the Desert Juice  Gave me the worst D !
Primadophilus Reuteri Probiotic
Prograf Tacrolimus 4mg
 

Posted 9/16/2007 8:51 PM (GMT -7)
Will probably have to order it off line then there is nothing anywhere close around here, thank you.
Rona

synthroid .088 mg, lowpressor 50 mg x 2, cozaar 25mg x2, imdur 30 mg
nitroquick, proventol, plavix 75 mg, protonix 40 mg x 2, asacal 400mg x 9
carafate 1 gm x 4, zyrtec 10 mg, rhinocort aqua nose spray, fish oil,
potassium.

Posted 9/17/2007 6:49 AM (GMT -7)
I purchased from a health food store. Tapioca flour. same thing.
colitis -diagnosed Jan 2007 -daughter 12
intestional malrotation
Asacol, Prednisone, Entocort, Caprylic Acid, Vit. B50
No remission since diagnosed- but not severe

Posted 9/17/2007 1:03 PM (GMT -7)
Anyone know if adding Unpasturized honey instead of brown sugar would work? Or would that buggar up the mix? Just thought that maybe a more natural sugar would be better than the other.
Just diagnosed Aug. 14/07
Asacol 8 / day (5-Aminosalicylic Acid 400mg)
Pred. 50mg
Cortafoam (butt mousse, not emima)

Posted 9/18/2007 2:04 AM (GMT -7)
FosterDad
 
Im not sure of the answer to your question - but email the guy in indonesia who started the orginal thread - he usually replies real quick to any questions
 
Actually, I have stopped taking this as of yesterday.  It was making me so much worse! And I am already miserable enough with my UC.  So, Evan and his "world famous" cassava recipe was nothing short of a disaster for me... 
 
Hope you have more luck than I did.
 
 
Back on Pred - 8mg - Steroid Dependent :-(
Azathioprine 150mg
Actonel 35mg
Predfoam Enema
VSL #3 with Activia Yoghurt
EPA Fish Oils
Various Homeopathic meds
Asacol x 9
Remicade every 8 weeks  (Stopped working)
Aloe Vera Lily of the Desert Juice  Gave me the worst D !
Primadophilus Reuteri Probiotic
Prograf Tacrolimus 4mg
 

Posted 9/18/2007 6:21 AM (GMT -7)
Tapioca flour is readily available here in the philippines its cheap and its everywhere. So i have been doing some research cassava or tapioca starch is resistant starch (correct me if im wrong) its not digested by the small intestines and directly goes to the colon which ferments and fuels the good bacteria and produces butryte that helps to heal or protect the colon (this is my understanding from my research).
 
My daughter was having D two weeks ago no blood and mucus but lately was having a little mucus and blood sad pedia GI ordered a stool culture results came back  heavy growth of enterobacter cloacae she was put on cefixime antibiotic. I experimented with cassava flour for the 1st day mixing it with my daughters food and milk morning and evening. No promising results for 2 days pedia GI ordered cbc to see if my daughter's wbc is high it came back positive and changed her antibiotic to ciprobay. I continued adding cassava flour plus added potato starch 1 teaspoon each usually she takes her ciprobay at 8pm then i give her P. reuteri (probiotic) 10pm when she asks for milk (thanks to pb4) and when she asks for another milk 2-3am i will add the starches.So the results for 2 days now was pretty good no blood and mucus (knock on wood) but its not yet formed going only 2x a day. Maybe the ciprobay is doing its job and maybe the RS is helping also, i will do a stool culture and cbc tomorrow to see if there are any changes and will keep you posted.
Im currently looking for Hi-maize flour its resitant starch also and will try to mix it with cassava and potato starch. Wish me luck its just been 3 months of remission for her and i hope and pray we can continue it to be that way. :-)
daughter anya 2yrs old Dx with indeterminate colitis  4/07
,Pentasa 250mg 1x/day, probiotic, flaxseed oil, multivitamins, iron, immuzinc, barley green.
 
 

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