Frequency is higher but emptying a pouch is not in any way, shape or form, like emptying a colon/rectum. Most of the frequency occurs during a trip to the bathroom to urinate. I would venture to guess that know one counts how many times they pee during the day. The same is true for emptying a pouch. I honestly cannot tell you what my frequency is, I do know it is greater than 4X per day but it does not interfere with my life, either at work or out exercising. Emptying a pouch is very quick, as speedy as urinating so there are never prolonged periods of time on the toilet. If your son does contemplate surgery I recommend that he 1. visit the board at www.j-pouch.org and 2. find the most qualifed CR surgeon for the surgery. This can be a 7 hour procedure in the hands of a less experienced surgeon or a 1.5 hour operation in the hands of a surgeon who has done several thousand procedures.
dx proctitis in 1987
dx UC in 1991, was stable until 1998
1998 started prednisone, asacol, pentasa, nortriptylene, ativan, 6MP, rowasa enemas and suppositories, hydrocortisone enemas, tried the SCD diet, being a vegetarian, omega 3s, flax, pranic healing, yoga, acupuncture, probiotics
2000 lost all my B-12 stores and became anemic
2001 opted for j-pouch surgery- now living life med-free