New Topic Post Reply Printable Version
[ << Previous Thread | Next Thread >> ]

birdiem
Regular Member


Date Joined Aug 2007
Total Posts : 326
   Posted 9/13/2007 5:04 AM (GMT -7)   
hey guys,
so i have just started the VSL #3 (although i am flaring so i can't tell if it is working). anyway, i hate the way it tastes mixed with water, so i have been putting the powder on yogurt in the morning. is that just as effective? i don't see why it wouldn't be...
katie
22
diagnosed with cecal volvulus, 2006; two colon resections in the same year
diagnosed with colitis 2007
malrotated colon
no cecal valve, removed during surgery

VSL #3
Amitriptyline to slow gastric emptying
Forvia


blankslatejoe
Regular Member


Date Joined Jun 2006
Total Posts : 71
   Posted 9/13/2007 5:51 AM (GMT -7)   
should be.... I used to mix the VSL with chocolate pudding. Then, to make the texture a little less noticable I would mix in a few chocolate chips. It made for a great snack!

AshnaG
Regular Member


Date Joined Feb 2007
Total Posts : 79
   Posted 9/13/2007 7:57 AM (GMT -7)   
Where can I get VSL # 3?
 


birdiem
Regular Member


Date Joined Aug 2007
Total Posts : 326
   Posted 9/13/2007 9:09 AM (GMT -7)   
http://www.vsl3.com/VSL3/default.asp it is expensive tho, i can only do one month of it
katie
22
diagnosed with cecal volvulus, 2006; two colon resections in the same year
diagnosed with colitis 2007
malrotated colon
no cecal valve, removed during surgery

VSL #3
Amitriptyline to slow gastric emptying
Forvia


Carlow
Regular Member


Date Joined Sep 2007
Total Posts : 113
   Posted 9/13/2007 10:25 AM (GMT -7)   
I used to take the caplets just because I was, and still am, on so many pills I felt like it would be easier to incorporate them into my daily cocktail. I hope it helps!
Diagnosed Fall of 2004

Meds:
Asacol 3tab x 2 400mg
6MP 1/2tab x 2 25mg (had to go off due to possible "adverse reaction")
Remicade 3 infusions
Rowasa 1 at night


Lew1201
Regular Member


Date Joined Mar 2007
Total Posts : 111
   Posted 9/13/2007 10:32 AM (GMT -7)   
You may want to check with insurance. We are on an HMO and the doctor called in a "double dose" which apparently puts it under the prescription category and it was covered as a prescription. My son used to put in in applesauce.
Mother of 17 year old son
Remicade
Asacol 4 pills 2 x per day
6MP 100mg
Back on Prednisone tapering b/c of Remicade infusion
 


therearemiracles
Veteran Member


Date Joined Dec 2006
Total Posts : 3570
   Posted 9/14/2007 7:32 AM (GMT -7)   
I had a presciption from my GI and took to the pharmacy, they said they can not fill it. They can't get it??? I ordered if off the net but's very expensive. It really hasn't done much for either.
I had the Rocephin shot and 2 weeks of Omnicef, this helped with my bloating and digestion. That was 4/15/07
Had Cipro and Predison for 10 & 5 days, 7/3/07
Colonoscopy & Endoscopy 7/27, Left sided colitis and near cecum (mild)
Had a shot of steriods for my ear inflammation 8/31
Stopped Colozal 9/11/07
On Standard Process supplements, trying a new protocal from a
natural path as of 9/10/07
 
 
 


birdiem
Regular Member


Date Joined Aug 2007
Total Posts : 326
   Posted 9/14/2007 9:11 AM (GMT -7)   
it is super expensive. that is why i can only do it for a month. i hope it starts working, so far i haven't noticed a difference (except in my savings account!!)
katie
22
diagnosed with cecal volvulus, 2006; two colon resections in the same year
diagnosed with colitis 2007
malrotated colon
no cecal valve, removed during surgery

VSL #3
Amitriptyline to slow gastric emptying
Forvia


okiemom
Regular Member


Date Joined Sep 2007
Total Posts : 104
   Posted 9/14/2007 10:47 AM (GMT -7)   
How long does it take  most people to show any signs of improving with VSL#3  and how much did you improve.
 
I just started taking a different brand about 1 week ago.
 
Thanks
Billie Jo

kazygirl
Veteran Member


Date Joined Sep 2007
Total Posts : 955
   Posted 9/15/2007 1:48 AM (GMT -7)   
I took VSL #3 for 2 months and had no change in my UC.

UCSFer
Regular Member


Date Joined Aug 2007
Total Posts : 25
   Posted 9/15/2007 2:39 AM (GMT -7)   
From what I hear it usually takes about 3 month before you can see any effect. I wouldn't go for it if you can only do it for a month:(

birdiem
Regular Member


Date Joined Aug 2007
Total Posts : 326
   Posted 9/15/2007 4:22 AM (GMT -7)   
hmm, again i feel like this is something my doctor should have known...(or told me!)
katie
22
diagnosed with cecal volvulus, 2006; two colon resections in the same year
diagnosed with colitis 2007
malrotated colon
no cecal valve, removed during surgery

VSL #3
Amitriptyline to slow gastric emptying
Forvia


birdiem
Regular Member


Date Joined Aug 2007
Total Posts : 326
   Posted 9/21/2007 7:40 PM (GMT -7)   
does anyone know the nutritional content of vsl #3. is there sugar in it? lactose? i am talking about the powder form...
katie
22
diagnosed with cecal volvulus, 2006; two colon resections in the same year
diagnosed with colitis 2007
malrotated colon
no cecal valve, removed during surgery

VSL #3
Amitriptyline to slow gastric emptying
Forvia


Burli
Veteran Member


Date Joined May 2003
Total Posts : 1251
   Posted 9/21/2007 9:45 PM (GMT -7)   
For active UC the VSL #3 site suggests 4-8 packets a day (that's very expensive but I think it shows potential to work if you use enough). That's 1800 to 3600 billion acitve bacteria a day. Their double-blind studies show one needs that much for active UC. For this reason I just can't see how taking 1-35 billion bacteria per day (most other product's daily doses) could actually benefit--unless the disease is in remission and your uses it as a preventative measure.

From their web site..."Some dairy ingredients are used in the culture medium but are removed during fermentation and concentration. There might be trace amounts at very low levels and, for this reason, VSL#3® is not defined as a dairy-free product but as a non-dairy product. Evidence suggests that probiotics may be useful in the treatment of patients with lactose maldigestion and lactase deficiency. Recent studies have demonstrated that lactose is better digested from yogurt than from milk by lactase-deficient individuals and yogurt ingestion by these patients is paralleled by reduced symptoms. Many patients confirmed that their intolerance was greatly reduced with the use of VSL#3®. If you are lactose intolerant, you may wish to start with a very low intake of VSL#3® to see how you respond before increasing the amount."
 


birdiem
Regular Member


Date Joined Aug 2007
Total Posts : 326
   Posted 9/28/2007 1:18 PM (GMT -7)   
thanks, i have started putting it in vanilla yogurt--i think it actually tastes really good--maybe too sweet for some people but i think it is delicious :)
katie
23
diagnosed with cecal volvulus, 2006; two colon resections in the same year
diagnosed with colitis 2007
malrotated colon
no cecal valve, removed during surgery
gastritis

VSL #3
Amitriptyline to slow gastric emptying
Forvia
compazine


Harpo
Regular Member


Date Joined Jul 2007
Total Posts : 262
   Posted 10/2/2007 6:37 AM (GMT -7)   
I see a ton of people on here with VSL #3 in their signature still stating what seems to be some pretty nasty UC symptoms.. Why bother? It doesn't seem to work.
Male 36yrs old. Indeterminate Colitis 6 yrs.


Lialda 2 a day

Protonix
multi vitamin


birdiem
Regular Member


Date Joined Aug 2007
Total Posts : 326
   Posted 10/2/2007 7:13 AM (GMT -7)   
just in the process of looking for something else, haven't changed my sig yet
katie
23
diagnosed with cecal volvulus, 2006; two colon resections in the same year
diagnosed with colitis 2007
malrotated colon
no cecal valve, removed during surgery
gastritis

VSL #3
Amitriptyline to slow gastric emptying
Forvia
compazine


Harpo
Regular Member


Date Joined Jul 2007
Total Posts : 262
   Posted 10/2/2007 7:21 AM (GMT -7)   
Im trying this Pro-Bio stuff... We'll see..
Male 36yrs old. Indeterminate Colitis 6 yrs.


Lialda 2 a day

Protonix
multi vitamin


amrit
New Member


Date Joined May 2008
Total Posts : 3
   Posted 5/17/2008 11:14 PM (GMT -7)   
ive been taking vsl #3 powder but whenever i take it my mouth and throat get very itchy and chest slightly gets tight

is it possible im allergic to it?

Robert P
Regular Member


Date Joined Apr 2005
Total Posts : 127
   Posted 6/12/2008 12:08 AM (GMT -7)   
Sugest anyone taking or considering taking VSL3 or any other probiotic read Jini's articles at http://www.jinipatelthompson.com/articles_by_jini.php
titled "Wild Oregano Oil and other Antimicrobials" and "Probiotic Therapy for IBD and IBS" at a minimum and really suggest that you get her "Listen to Your Gut" system (yes it's not cheap but isn't your health woth it and compared to the years of research and trial and error the book is cheap) as the book has a great section on selecting a Probiotic. That section alone is worth the cost of the book since the probiotics are so expensive themselves and you don't want to be flushing your money down the drain, right?

At the new Jun 08 price of $45/60 capsuls I believe, but don't quote me, that VSL3 is on par price wise with the Natren brand that Jini promotes. Unfortunately I'm not aware of a prescription level Natren probiotic so my insureance definitely won't cover it, they're closed right now so I can't ask about VSL3. Both should be allowed from a FSA (Flex Spending Account) perspective as I read in a HW thread if it wasn't this one.

As for do they work, Natren does according to Jini and others posting on her forum and my experience has shown that my symptoms either subside or stay in remission when I follow Jini's Wild Oregano Oil/Probiotic protocol. Good combination. A significant investement in my health but how much does it cost when you're feeling miserable and can't do anything?
Robert

Dx Crohn's 1999; Started Flagyl 6/8/08 (500mg 3/day) in an effort to eliminate a persistent perianal fistula.  Aside from that have been drug free for a long time thanks to a number of lifestyle changes, much of which was learned from the Listen to Your Gut book.

"Coming together is a beginning.
Keeping together is progress.
Working together is success."
- John C. Maxwell


jeffereyr123
Regular Member


Date Joined Jul 2007
Total Posts : 65
   Posted 6/12/2008 8:44 AM (GMT -7)   
Make sure your doctor writes the prescription for vsl # 3 DS. The first time my doctor wrote me a prescription for the regular vsl # 3 and insurance wouldn't cover it.

jujub
Forum Moderator


Date Joined Mar 2003
Total Posts : 10407
   Posted 6/12/2008 1:38 PM (GMT -7)   
I took 6 packets a day for three months. It didn't affect my flare at all, but did give me more gas and cramping. They recommend 4-8 packets a day while flaring ($300 - 575/month) and 1-2 when in remission ($80 - 150.)

Primadophilus Reuteri capsules (90 for $21 including shipping) seem to work better for me, and the cost is about $7 a month. You just have to try things to see what works for you.
Judy
 
Moderate to severe left-sided UC (21 cm) diagnosed 2001.
Avascular necrosis in both shoulders is my "forever" gift from steroid therapy.
Colazal,  Remicade, Nature's Way Primadophilus Reuteri. In remission since April, 2006.
 
Co-Moderator UC Forum
Please remember to consult your health care provider when making health-related decisions.


Alycacc
Regular Member


Date Joined Jun 2008
Total Posts : 46
   Posted 6/13/2008 11:05 AM (GMT -7)   
I started taking Fiber Smart probiotics and it really helped me for 4 months then I switched to a more potent one called Healthy Trinity by Natren.  Then I got a flare 1 month later so not sure what happened but I was doing GREAT for 5-6 months!
New Topic Post Reply Printable Version
Forum Information
Currently it is Sunday, February 25, 2018 1:08 AM (GMT -7)
There are a total of 2,933,049 posts in 321,813 threads.
View Active Threads


Who's Online
This forum has 160485 registered members. Please welcome our newest member, treyb190.
237 Guest(s), 5 Registered Member(s) are currently online.  Details
Girlie, Anna95, ambling, Gunner34, PA_grandma