Posted 9/13/2007 5:44 PM (GMT -6)
When first Dx, I was maintained pretty well by just Rowasa, I could even get down to every other day, sometimes every three. about 3-4 years ago sx's increased and had to go to Rowasa every day, then Dx w/IBS and other meds were added. Every colonoscopy shows some increase in the disease, but not enough to freak me out. Last year was the worst, why I can't tell you, couldn't stop catching a cold, had--not embellishing here--five flues throughout the year and in October of 06 had a major flare that ended me in the hospital for two weeks and out of work for five months and I'm still no where near where I was. And you can see by my signature below all the lovely meds I currenlty have to take, long way from just Rowasa. O.k., now here's the "positive" message for you: yes, things are a lot worse, but for some reason I don't have a fear about it (or the future), it is what it is. If it get's worse than this I'll deal w/it somehow. For the most part I'm TIRED (and frustrated) of the vigilance of my health, meds, etc. I've posted some good "vents" on this forum on days I'm feeling fragile. I think the best thing that came out of all this is that I really don't sweat the small stuff since this illness, or much, for the most part; I secretly laugh at some of the stuff I hear from people, "Can't sleep over which private school to send my kid to? Should I get botox? Do I look fat, I feel fat? I wish I had a bigger house, I hate my house????, I know I shouldn't have, but I spent 1700. on a LV bag, but I'm worth it: my mother-in-law (fill in the blank)...." I guess, everyone has their own reality. O.k, where am I going w/this, oh yeah, live in the moment, who knows what tomarrow will bring. You may worry yourself sick over ten years from now and maybe five years from now somebody may have this all figured out and we will all be cured. Who knows?
Dx Ulcerative Colitis 1999; IBS; CP: Asacol x3 x3/day, Rowasa, Proctofoam, Prilosec, Bentyl, Prozac, Endocet (as needed), multi vit, probiotic, fish oil caps x2/day, calcium 1200 mg./day, Prednisone (off/on, unfortunately).