Hi, don't think I can suggest anything, but just wanted to say that i totally relate to what you're saying!
I'm in Scotland and have been on a combination of drugs since May, Asacol, Prednisolone, Predfoam enemas, Predsol enemas...nothing worked. I gained over a stone, which I blamed the oral Pred for, and now I can't seem to shift it. I had a scope last week and they've discovered the inflammation is rectal and now I've got Asacol Supps. Which are already making a difference in a couple of days I'm pleased to say. I'm just a bit peed off that I had to go through the delights of prednisolone and now they turn round and say that oral meds won't work because its so low down! (I've been told to stop the oral Asacol) I wonder if I'll see a change without any oral drugs?
My back and hip joints ache, I'm 39 and feel like 89! I've had back probs before but this has just brought it all back. I get cramps in my feet, my finger joints are swollen. I seem to get one day when I feel I have a normal amount of energy and then 2 days when I've got no motivation whatsoever. I'm sleeping for about
10hrs a night which was never a thing I would never do. My GP just puts it down to being part of the inflammatory process, which I can understand, but it's still a complete pain. I'd stopped taking Ibuprofen when this flare started but I've gone back on it as I can't stand the joint pain
So that's my moan! Wish i could suggest something...heat helps my back and cold water on the hands eases the joints first thing in the morning