11 days on Prednisone @ 60mg a day, how much longer should I wait?

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Beth75
Veteran Member


Date Joined Jul 2007
Total Posts : 2148
 		   Posted 9/17/2007 12:25 PM (GMT -6)   
I am going less times per day but have more blood in my stools (than when on the asacol and it is redder and not as mixed in w/the stools) the amount of blood has been steady for about a week and I can't tell if I am getting any better or not.  I know since stopping the Asacol and switching to lialda on 8/24 my flare increased when I thought I was almost out of it.  Took me about 8 weeks of Asacol to get me almost back to normal.  Stopped lialda on 9/6 and started prednisone on 9/7.
 
How do I know if I am steriod reistant?  I want to throw myself a pity party!!!!
Beth, 31
UC Diagnosed March 2000
Lialda 2.4mg 1xday since 8/24/07 (prev. Asacol 4800mg day),Calcium and Vit D 500mg 2xday.
Minimal Change Disease (Kidney Disorder) Diagnosed Sept 2007
Prednisone 60mg 1xday, Simvastatin 20 mg 1xday
Diovan 80mg 1xday. Fosomax 1xweek 70mg. MCD may be from hypersensitivty to 5ASA drugs.

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tjf
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Date Joined Dec 2005
Total Posts : 3238
 		   Posted 9/17/2007 12:40 PM (GMT -6)   
Why did you stop Lialda? Did you go cold turkey?

Pity party all you want! That's why we are here:)
Tabitha (Tab)

100mg Azathioprine, 2 Fibercon, Colazal-6 a day, Acidopholis Pearls, Prilosec OTC

http://www.healingwell.com/donate
Co-Moderator UC Forum

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Beth75
Veteran Member


Date Joined Jul 2007
Total Posts : 2148
 		   Posted 9/17/2007 1:11 PM (GMT -6)   
yes, I stopped the Lialda cold turkey and I think that may have something to do with it too......b/c of my kidney disease I had to stop, I believe the 5ASA drugs caused it.

do people normally stay on their maint meds & take prednisone on top of it?
Beth, 31
UC Diagnosed March 2000
Lialda 2.4mg 1xday since 8/24/07 (prev. Asacol 4800mg day),Calcium and Vit D 500mg 2xday.
Minimal Change Disease (Kidney Disorder) Diagnosed Sept 2007
Prednisone 60mg 1xday, Simvastatin 20 mg 1xday
Diovan 80mg 1xday. Fosomax 1xweek 70mg. MCD may be from hypersensitivty to 5ASA drugs.

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tjf
Veteran Member


Date Joined Dec 2005
Total Posts : 3238
 		   Posted 9/17/2007 1:57 PM (GMT -6)   
That's right...now I remember. I quit Colazal cold turkey once and I went into a nasty flare. I have always taken maintence meds while on pred.
Tabitha (Tab)

100mg Azathioprine, 2 Fibercon, Colazal-6 a day, Acidopholis Pearls, Prilosec OTC

http://www.healingwell.com/donate
Co-Moderator UC Forum

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suebear
Veteran Member


Date Joined Feb 2006
Total Posts : 5698
 		   Posted 9/17/2007 2:56 PM (GMT -6)   
If you are feeling better and you frequency is down, I wouldn't worry. I was on prednisone for over 2 years and never stopped bleeding. However, if you are not feeling better and your frequency is unchanged, you need to contact your GI.

Sue
dx proctitis in 1987
dx UC in 1991, was stable until 1998
1998 started prednisone, asacol, pentasa, nortriptylene, ativan, 6MP, rowasa enemas and suppositories, hydrocortisone enemas, tried the SCD diet, being a vegetarian, omega 3s, flax, pranic healing, yoga, acupuncture, probiotics
2000 lost all my B-12 stores and became anemic
2001 opted for j-pouch surgery- now living life med-free
 

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UCSFer
Regular Member


Date Joined Aug 2007
Total Posts : 25
 		   Posted 9/18/2007 3:46 PM (GMT -6)   
I stopped asacol when I went into a flare and had little luck with prednisone alone. As soon as I started taking asacol again my condition improved.
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