Hi everyone. I am usually down in the Lyme forum as I have chronic Lyme disease for the last 5 months. I am posting in several of the GI forums today.
I visit you today because I am having serious GI issues. I have had chronic diarrhea for at least a year and a half. 98% of bm is diarrhea. I never really bothered to get Checked out for it as I either just thought it was the way I was or got used to it. I did have a Toxoplasmosis infection/exposure last year.
Basically I have a fever every day they are calling it Fever of unknown origins. I have diarrhea all day everyday. They have found a lot of white blood cells and lactoferrin in my fecal samples over the last year. No parasites, no blood, C. Diff etc. I have had about $8,000 easily in labwork nothing major there. My medical bills are about $100,000 so far (thank goodness for ins).. I also have a PCP/ID doc, GI doc, and Lyme/ID doc (controversial) so I am stressed out.
I have already had upper and lower GI barium studies a few months ago supposedly normal. I saw a GI doc yesterday and he says he knows something has to be going on in my colon due to the fecal tests. I also lost 25 pounds (I am overweight) without trying. I have severe nausea and no appetite. I have joint pains and muscle pains etc. My regular blood work is all normal except C-Reactive Protein is constantly really high (despite taking a strong NSAID) sed rate is ok.
It is hard for me (and I am sure my docs) to distinguish GI issues from Lyme issues. I am worried about any treatment of an inflammatory colitis issues, as such things as steroids and immunosupressants are contraindicated in Lyme disease.
I am having a colonoscopy in 2 weeks. I am just wondering if anyone has any opinions or suggestions. Does it cause pain all over? I do not have blood in my stools would that be possible in UC? I also have gas, bloating, urgency and explosive movements (sorry TMI). I know this is a bit premature, as I have no idea what may be going on, but I would like to research as much as possible. The Lyme complicates everything!!!!
I am disabled from Lyme at age 29 for the last 5 months. Just worried! Thanks in advance
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