Diagnosed with Crohns.

Kanditron

Regular Member

Joined : Oct 2006

Posts : 148

Posted 9/18/2007 6:17 PM (GMT -7)

After and eight day stay in the hospital, I was diagnosed with Crohns. Ugh. I'm heartbroken.

25 years old
Diagnosed 9/06 with Pancolitis
Asacol 3 3x's a day... not any more
Colazal 3 3x's a day
Can not tolerate Prednisone in the slightest amount
Imuran 100mg a day. Which I started 8/24.

tamtam10

Regular Member

Joined : Aug 2007

Posts : 78

Posted 9/18/2007 8:36 PM (GMT -7)

I am so sorry to hear that.

So you had UC and it has developed into chrons? I am sorry you are having to deal wiht this. My prayers are with you.

TamTam10

Diagnosed with Pan Colitis 2004 (age 23).

Asacol 12 per day

~~Prednisone, off 2006~~

~~6mp 75mg per day (got off becuase I am starting Remicade)~~

Canasa when needed

Remicade second infusion Aug 21st

pb4

Elite Member

Joined : Feb 2004

Posts : 20577

Posted 9/18/2007 10:35 PM (GMT -7)

Actually UC cannot develop "into crohns" or vise-versa, misDX is more likely what happened...TamTam see the reply I left on your post about "skin tags".

Kanditron :)

I'm sorry about the change in your DX, I have crohns, sounds like you have it pretty bad in the colon (aka: crohns-colitis) if they initially DX you with pan colitis (aka: UC inflamming the entire colon), because typically with CD there are skipped patterns of healthy tissue and with UC it's more common that one area will be completely inflammed, so I hope you're able to get the severity under control and hopefully it won't start to penetrate the many layers of the intestinal tissue, as it's also typical for CD to behave that way as well.

:)

My bum is broken....there's a big crack down the middle of it! LOL :)

KitKatBaker

Veteran Member

Joined : Feb 2005

Posts : 1146

Posted 9/19/2007 12:51 PM (GMT -7)

Hi Kanditron~

I went through the same thing you are going through now. It is heartbreaking, I know. So many people don't seem to "get" that, so I wanted to let you know that I DO. It was really hard for me to have my dx changed to Crohn's. For me, it was like being told I was sick all over again. So many people tried to reassure me, and tell me that it really wasn't any different than if I had UC, but the truth is that it is different. There are more complications, and you no longer have that "surgical cure".

I guess what I am trying to say is it's ok to be heartbroken for awhile. You kind of have to go through that whole greiving process all over again. At least I had to.

Katina

Co-Moderator Crohn's Disease Forum

Co-Moderator Ulcerative Colitis Forum

Asacol 6/day, Prevacid 2/day, Acidophilus Complex Probiotics, Green Tea Extract, Flax Oil

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Kanditron

Regular Member

Joined : Oct 2006

Posts : 148

Posted 9/19/2007 2:53 PM (GMT -7)

Kitkat- thanks.
I never gave my self the time to deal with being told that I have UC.. I just shrugged it off and went about my life with medications and doctor appointments added. But I'm having a hard time picking my self up from this one. After watching my aunt deal with it all of my life I know what I can expect with time and I'm just really scared.

25 years old
Diagnosed 9/06 with Pancolitis
Asacol 3 3x's a day... not any more
Colazal 3 3x's a day
Can not tolerate Prednisone in the slightest amount
Imuran 100mg a day. Which I started 8/24.

KitKatBaker

Veteran Member

Joined : Feb 2005

Posts : 1146

Posted 9/20/2007 4:18 AM (GMT -7)

You're welcome. You will pick yourself up again. There's nothing wrong with being upset about it first though.

Katina

Co-Moderator Crohn's Disease Forum

Co-Moderator Ulcerative Colitis Forum

Asacol 6/day, Prevacid 2/day, Acidophilus Complex Probiotics, Green Tea Extract, Flax Oil

http://www.myspace.com/kitkatbaker

Help support Healingwell!!!

https://www.healingwell.com/donate

Red_34

Forum Moderator

Joined : Apr 2004

Posts : 23572

Posted 9/20/2007 5:11 AM (GMT -7)

Kanditron, I've been here on HW for a while and I've seen a handful of people get their diagnoses changed. They were just as heart broken as you because they realize that the surgical cure is not an option anymore. I watched my mother suffer from CD so I know it's not an easy road. The best you can do now is dust yourself off, take your meds/supplements/etc as required and try to lead a normal life as you can. Don't dwell on the what ifs and try not to think about what your life with Cd holds. Think about the positive things in your life as of now. Hang in there and remember no matter which board you frequent now, Crohns or UC, that we are here for you.

^{@--->--SHERRY--<---@}

^{Left sided Uc -'92 - Colazal, Canasa, 6mp, Prilosec, Biotin, Forvia}

^{Secondary Reynauds Syndrome - '04 - Norvasc}

^{Fibromyalgia - '06}

^{PLEASE HELP HEALINGWELL CONTINUE TO HELP OTHERS BY CLICKING HERE: DONATE}

^{@--->--Moderator for Allergies/Asthma and Co-moderator for UC--<---@}

http://www.myspace.com/82595818

MitzMN

Veteran Member

Joined : Feb 2007

Posts : 660

Posted 9/20/2007 6:28 AM (GMT -7)

Kanditron:

I understand your heartbreak and I am so sorry that this happened to you.

Hugs,
Mitz

Sporadic proctitis since about 1985. Mother had UC, then J-pouch surgery 1983.
DX'd with clostridium difficile in 2000. Prednisone, two courses of Flagyl, then Vancomycin finally got rid of it. Symptomatic with UC after that.
Colonoscopy in 2001 dx'd left-sided UC. Was pretty darn ill at that time. Treated with prednisone, Rowasa, Asacol. Asacol not working so switched to Imuran. Three small flares since in 2002, 2005, and 2007.
Gall bladder attack 6/13; ultrasound showed stones; surgery before end of 2007.
100 mg Azathioprine and 225 mg Effexor XR (for chronic, longstanding depression) daily.

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