I have been on remicade for almost two years and while it has allowed me to live a much better life I still have a few bad days here and there.
Yesterday and today I have really been feeling it and I just had my infusion last week. I stayed home yesterday and my boss sent me home today cause I look like heck. Having a few extra bm's is no big deal but the urgency crept in this morning and it scares me to death to think I may be flaring. I have had this happen before but I was usually sick with a cold or flu. I'm hoping it clears up by tomorrow or i'll hafta call my Doc or GI...Never know which one to call first.
We have a new human resource assistant and she was asking me about my illnes. She said that I need to beat my colitis because she knows several people who have. That is when I had to explain that it is not colitis but Fulminent Ulcerative Colitis and that I would never "kick it" because it was a disease. I told her I wasn't looking for sympathy just understanding. I gave her a few gross descriptions of how it affected me and she said "sounds like it'll lead to Cancer"....Anyway, so now i'm home again and even though i'm feeling a bit better, depression is sinking in.
I know I don't visit often but I'm looking for some kind words from someone who understands how it feels to have this DD take pieces of your life and turn them upside down.