It's so temping to stop the medication when we're feeling great. I also go into full remission for long stints. I soon forget why I'm taking the drugs (after 23 yrs you'd think I'd learn). Sometimes I get on special diets like SCD, or healthy special supplements and think "It's working"! I get off the meds, workout, run...Then, a flare.
Especially the Colozal (9 large capsules per day). It's easy to forget those. Time goes on and you're only taking 6 then 3 a day and things are still great for several months. In 2005 I stopped the Colozal altogether and for months I was fine and in great shape. Then, I got very ill with a virus and several weeks later another flare. I lost 1/4 my body weight, major bleeding, pain, high fever, almost lost the colon, and had to go on high doses of steriods and other nasty drugs.
Thanks for this message because I can't let it happen again. Shame, because my sister is urging me to take VSL#3 and get off the med.'s like she did. She swears by the stuff.
I'm staying on the med.'s for sure!