I can feel my colon moving

Oh my Beth, I hate that when I have the stomach gurgles and diarreah. Add it to the stress of knowing that I'm going out of town and it seems to just increase. I am trying to get myself straightened out also. I was doing so well on the Asacol alone and now I don't know whats going on. My mother passed away after her "minor" surgery on Sept. 8th. Leading up and after that (with the wake and funeral) were days of unrelenting stress along with not eating properly (the day she passed I honestly think all I ate was six pack of oreos that one of the nurses gave me - I just didn't want to leave her side and not be there for her as she passed). The wake and funeral were Tuesday and Wednesday of last week and to be honest with you my stomach has not been the same since. Now is the process of cleaning out her house and belongings and that is stressful in its own way on me. I think to myself that with this *&%$# disease that I will eventually end up like her, with a colostomy and I now have this deep "fear" of having any type of surgical procedure done since her death after a minor surgical procedure. I been on the Asacol now for around two months. I don't know if this is from the stress of everything that has happened or if the Asacol is no longer working. I hope you can have an enjoyable weekend in NYC, you deserve it with everything you have been through lately with your health scare. Sorry - didn't mean to turn your post into a post about me!
Zurich

hey beth,
oh man, i can relate. as someone with the funkiest colon in all the land (ok, i know i am preaching to the choir)--i can always feel as my food digests. my stomach pushes out, makes shockingly loud noises, swells like a balloon, the whole nine yards. i like to take it as a sign that--if nothing else--it is working. i have had two major bowel obstructions and the WORST thing is NOT hearing noise. if you have "bowel sounds" it may be uncomfortable but it is a good thing. similarly, if you have D there is no way you could have a blockage. nonetheless, it is irritating, i know. good to know it happens to other people.

Zurich, we haven't spoken before, but reading beth's post i would like to add my condolences. my thoughts are with you.

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katie
22
diagnosed with cecal volvulus, 2006; two colon resections in the same year
diagnosed with colitis 2007
malrotated colon
no cecal valve, removed during surgery

VSL #3
Amitriptyline to slow gastric emptying
Forvia

Beth- I get little spasms that I can feel- kind of like when your leg muscles spasm and twitch. It doesn't hurt it just feels weird. I asked my doc if it was really my colon I was feeling and he said "yep". He also said it is pretty common and related to IBS as well as UC. But he wasn't very concerned about it.

Zurich- I'm so sorry to hear about your mother. My brother died last December and my body really reacted. You just need to make sure that you are taking care of yourself. It will get better- all of it.

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Pancolitis since October 2004
Currently experiencing symptoms- blood and mild pain. Have started ANOTHER round of enemas.
My drugs of choice: Asacol 2-3 times a day (if I remember), Imuran, Canasa suppositories every other day, probiotics, fish oil, Iron, multi-vitamin
My other therapies of choice: Yoga, walking, my animals, and whining.

Zurich...my deepest condolences to you on the passing of your mom. I can truly understand your fears regarding surgeries, etc in the future..maybe a discussion with the doctor could explain exactly as to the why.

When my mom and dad died, I ended up flaring because of the family issues involved. Both times were extremely stressful.

The rectal meds (I would suggest Rowasa) will help with your symptoms to deal with the inflammation while you're going through this time. I couldn't imagine what I was going through and dealing with uncontrolled flares.

Please consider the meds...

Healing thoughts sent your way.

quincy

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*Heather*Status:mini flare June 23* 6asacol daily+ Salofalk (tapered every 3rd night)

~diagnosed January 1989 UC (proctosigmoiditis)

~5ASA: Asacol + Salofalk enemas (increase for flares tapered to maintenance)

~Bentylol (dicyclomine) 20mg as needed

~vitamins/minerals 

~Probiotic 2 (Natural Factors Protec) + 1 (Primadophilus Reuteri) at bedtime

~Natural Factors Multi Digestive Enzymes with supper

~Ranitidine,Pariet (reflux) Effexor XR 75mg;  Pulmicort/Airomir (asthma)

~URSO for PSC (or PBC) 500mg X 2 daily (LFTs back to NORMAL!!)

My doc's logic.. "TREAT (FROM)BOTH ENDS"  worth it !!!