How long is ok on preds?

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Date Joined Aug 2006
Total Posts : 49
   Posted 9/21/2007 7:26 PM (GMT -6)   
How long is it ok to take preds?  I've been on them at varying doses since 2003, with one break for a few months.  The lowest dose when on them was 10mg, highest was 40mg as far as I can recall.  I've been on them continually for over two years now.  I've had bone density tests and I've been assured everything's fine.  I did try a special non absorbent type a month ago which didn't seem to work for me, so changed back two weeks ago.  I'm still having a flare up with loads of blood and mucus numerous times a day and severe cramping.  My doctor says it's ok to be on them, he's like to get me off them but everything he's tried hasn't worked.
Any suggestions?
Diagnosed 2002, had first endoscopy on my 27th birthday!!
Preds x 20mg a day
Azathiaprine x 4 a day
Aloe - didn't work for me

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