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Wooky
Regular Member


Date Joined Sep 2007
Total Posts : 41
   Posted 9/21/2007 9:23 PM (GMT -7)   
 Just wondering if any1 out there has a good solution, beside taking iron tablets ( makes my stool too hard very painful ) for iron depletion. mine is very low it's at a 3 shld be between 10-30. Can't eat steaks too much red meat i can't digest i t properly end up with pancreatitis. any ideas?

Wiped Out
Regular Member


Date Joined Jun 2007
Total Posts : 71
   Posted 9/21/2007 11:05 PM (GMT -7)   
It's good to eat those foods high in iron content but to put things in perspective, you would have to eat about 10 lbs. of chicken livers to equal the iron in one iron supplement.  If your iron deficiency is too severe, diet alone may not overcome the cause ( i.e. bleeding).  Talk to your GI about the constipation and perhaps he can help.  Anemia is a condition you must take care of quickly.  It is too stressful on the entire body.  Good luck.
 
Left-sided UC Diagnosed 2004
Iron Deficiency Anemia Diagnosed 2007
Indeterminate Dysplasia Biopsy Result 2006   
Colazal  -  3X3 daily 
Entocort - 3 daily
Nexium
Folic Acid 
Ferrous Sulfate - 325 mg X3 daily
Vitamin C - 500 mg 
Canasa - As Needed
 
 
 
 


Another UC wife
Veteran Member


Date Joined Jun 2007
Total Posts : 2111
   Posted 9/22/2007 4:52 AM (GMT -7)   
My husband is on the iron pills 3 times a day - it does not constipate him too badly - maybe the combination of foods he is eating is a good balance for the stool's consistency.

However - he is getting a B12 shot monthly. He just had his 2nd one last week and he is noticing he is not as fatigued and has a little more energy and stamina than he had prior to the shots. Maybe that might be something to discuss with the doctor???

60 yr old male~Colitis 1st diagnosed Jan '05-cleared up within a few wks. Flared again in May '06 ... left sided UC now, fully involved and trying to get in remission. Acute inflammation-pancolitis-tenesmus rectal pain-granulation is showing some healing started. Osteopena of spine from prednisone DX 8/07  July 07 good days & bad days 75mg Imuran 40  mg prednisone (tapering 8/07) 12 Asacol, Lidocaine Hydrochloride Jelly 2%,multi vitamin, iron 3X day, DanActive, chewable calcium, Prilosec 20mg, enalapril 10mg, glipizide 5 mg, zocor 20 mg, baby aspirin, (Fentanyl pain patch 50mg 72 hrs  Morphine Sulf 15 mg twice daily)Colocourt enemas at night. Fosamax and mthly B12 shots folic acid 1mg


kazygirl
Veteran Member


Date Joined Sep 2007
Total Posts : 955
   Posted 9/22/2007 7:07 AM (GMT -7)   
i have read studies that show that iron tablets actually exacerbate ulceration and inflammation of the colon. its kind of a darned if you do, darned if you dont situation.
my doctor had me have iron infusions at the hospital.
i was way way low and had like no iron in me at all. it is a 6 hour day at the hospital with an iv in your arm. but after that, your good to go for quite a while.
you should ask about that. its better on your body than the tablets anyway.
make sure you get them to do it for 6 hours. i have read stories of complications from 2, 3 and 4 hour sessions. they pump it in too fast and it screws with your system. have them do it nice and slow. it is definitely a boring and long day, but much better that than having some adverse reaction from rushing it.

Seahorselover
Regular Member


Date Joined Sep 2007
Total Posts : 30
   Posted 9/22/2007 9:11 AM (GMT -7)   
One of my doctor's told me to eat liver to get my iron up... supposed to have alot of iron. 

Sara14
Veteran Member


Date Joined Mar 2007
Total Posts : 4034
   Posted 9/22/2007 11:14 AM (GMT -7)   
What about fortified cereals or energy bars? Frosted mini-wheats have a lot of iron. Maybe a multivitamin with iron would help give you a little bit, too, without making you constipated. I know there are options besides eating meat, because I don't eat meat and I've never had low iron levels. Did your doctor suggest anything besides supplements? Are you losing a lot of blood?
23 years old
Diagnosed with UC March 2007
Current inflamation in the rectum
Asacol 4 tablets 3x/day
Rowasa (generic) - nightly
Nature's Way Primadophilus Reuteri 1/day; Chewable multivitamin


Seahorselover
Regular Member


Date Joined Sep 2007
Total Posts : 30
   Posted 9/22/2007 12:07 PM (GMT -7)   
you could also eat some spinach

Cfromutah
Regular Member


Date Joined Mar 2007
Total Posts : 369
   Posted 9/22/2007 12:29 PM (GMT -7)   
Seahorselover said...
One of my doctor's told me to eat liver to get my iron up... supposed to have alot of iron. 
one 4 ounce serving of beef liver has 38% of the daily value of iron and about 800% of the daily value of copper, not really a good idea unless you want copper overload. clams are about the highest food in iron, one 3 ounce serving of canned clams has 130% of the daily value of iron.

princesa
Veteran Member


Date Joined Aug 2007
Total Posts : 2198
   Posted 9/22/2007 1:14 PM (GMT -7)   
Kazygirl's right... oral iron is hard on a compromised digestion. The best way to go is iron infusions by I.V.
Diagnosed with ulcerative colitis spring 1999
C-scope confirmed UC diagnosis 9/18/2007
 
Maintenance dose sulfasalazine, back on a pred taper for first flare in years
Probiotics, l-glutamine and fish oil caps. About to start George's aloe vera juice and Mucosaheal.
 
 


Another UC wife
Veteran Member


Date Joined Jun 2007
Total Posts : 2111
   Posted 9/22/2007 4:34 PM (GMT -7)   
Thanks for the additional info and posts -- I will definitely ask this of the Mayo clinic for their opinion. He has so many dr's and they all know what is going on but they each have their own opinions obviously on how to treat what.

60 yr old male~Colitis 1st diagnosed Jan '05-cleared up within a few wks. Flared again in May '06 ... left sided UC now, fully involved and trying to get in remission. Acute inflammation-pancolitis-tenesmus rectal pain-granulation is showing some healing started. Osteopena of spine from prednisone DX 8/07  July 07 good days & bad days 75mg Imuran 40  mg prednisone (tapering 8/07) 12 Asacol, Lidocaine Hydrochloride Jelly 2%,multi vitamin, iron 3X day, DanActive, chewable calcium, Prilosec 20mg, enalapril 10mg, glipizide 5 mg, zocor 20 mg, baby aspirin, (Fentanyl pain patch 50mg 72 hrs  Morphine Sulf 15 mg twice daily)Colocourt enemas at night. Fosamax and mthly B12 shots folic acid 1mg


Seahorselover
Regular Member


Date Joined Sep 2007
Total Posts : 30
   Posted 9/22/2007 7:29 PM (GMT -7)   
Thank you for the information about liver, I guess I won't be eating too much liver, now.

KL
Regular Member


Date Joined Mar 2006
Total Posts : 55
   Posted 9/24/2007 7:35 AM (GMT -7)   

Wooky,

I noticed that you get Pancreatitis from red meat- will you please elaborate for me.  I had Pancreatitis this spring (my pancreatitic duct was scarred shut but they do not know why), just wondering how they figured this out for you.


Another UC wife
Veteran Member


Date Joined Jun 2007
Total Posts : 2111
   Posted 9/24/2007 7:44 AM (GMT -7)   
He does have regular bloodwork and it is closely monitored. Monthly now since he is on the B12.

My only concern is when you have a doctor for: primary care, endocrinologist, GI, urology, dermatology, VA Dr for military stuff, my feeling is they all specialize in their own areas and I am sure have a "working knowledge" of other areas. Of course they are treating him insofar as their areas of concern and I get nervous in the whole big picture something may not be totally right.

I know I keep referring to the Mayo Clinic and hope I am not putting way too much emphasis on our upcoming visit but I definitely have as one of my questions the typed listing of all his meds, the timeframes when he takes them and if they have any problems or concerns. Insofar as doses or even if something should be taken at a different time than he is doing now.

The Iron Infusion information I have as a separate area to discuss if that is a much better way to go. He's not thrilled at the prospect of a 6 hour ordeal if that is the case.

By the way how often is something like that needed usually? If it is every 4 or 6 months and eliminate the 3 iron pills a day and possibly the B12 shots then that wouldn't seem to bad.

The $64,000 question is why this has been such an ongoing problem for him for so many years. He has been tested from here to kingdom come and the iron always is low for him.

Fortunately he is NOT constipating from the iron - that is the last thing he needs.

60 yr old male~Colitis 1st diagnosed Jan '05-cleared up within a few wks. Flared again in May '06 ... left sided UC now, fully involved and trying to get in remission. Acute inflammation-pancolitis-tenesmus rectal pain-granulation is showing some healing started. Osteopena of spine from prednisone DX 8/07  July 07 good days & bad days 75mg Imuran 40  mg prednisone (tapering 8/07) 12 Asacol, Lidocaine Hydrochloride Jelly 2%,multi vitamin, iron 3X day, DanActive, chewable calcium, Prilosec 20mg, enalapril 10mg, glipizide 5 mg, zocor 20 mg, baby aspirin, (Fentanyl pain patch 50mg 72 hrs  Morphine Sulf 15 mg twice daily)Colocourt enemas at night. Fosamax and mthly B12 shots folic acid 1mg


expecting226
Regular Member


Date Joined Jul 2007
Total Posts : 402
   Posted 9/24/2007 8:11 AM (GMT -7)   
Wooky - Have you every tried Slow-FE? I am taking iron right now and that is what I am taking. I've been taking it for a few weeks and so far, no GI side effects.

ucforme
Regular Member


Date Joined Apr 2005
Total Posts : 72
   Posted 9/24/2007 8:12 AM (GMT -7)   
I get ferritin infusions every 3 months and it only takes a couple of hours. It's no big deal. Ferritin is what your body needs to produce iron.

This is an easy problem to solve.

Laurie
---------------------------------------------------------
 
Laurie
 
 
Ulcerative Colitis 15 years
Colectomy                        -  8/96
Illeostomy                        -  8/96
Creation of J-Pouch           - 10/96
Takedown                         - 12/96
Breast Cancer                   -   9/07
 
Lumpectomy                     -   9/07
(IDC ER/PR+ Stage 2)
No lymph node
involvement.          
 
Will be having
chemo and radiation.
 


Wooky
Regular Member


Date Joined Sep 2007
Total Posts : 41
   Posted 9/26/2007 1:51 AM (GMT -7)   
Thanx everyone
I havn't bn bak on in last couple of days cause cldn't get out of bed due to lack of iron (had menstrual cycle)
With which I've had the worst flu like symptoms a headache i can not get rid of swollen hot glands in groin, neck underarms, yet hav uncotrollable shaking from being cold. It's bn terrible. Anyway else get this (obviously just the ladies)

KL - I posted a new topic to ask who else has had pancreatitis, check it out. but I discovered I had pancreatitis 4 the 1st time in june of last yr, when I went to the emergency and they admitted me I had a constant pain in the upper abdomin, with a major uncomforable feeling like when ur constipated but it's just further up, 4 me when I was in hospital I remember lying on my stomach and it relieved the pain. I know it sounds crazy and thats what the dr's thought i was but it worked. the dr's tested my electrlytes and said they were through the roof. Now I just know what the pain feels like and hav figured that the only way to deal with it when it's serve is not eat stay very well hydrated, and as i get better don't eat things that I know will aggrivate it. In my case thats, sugar, dairy, red meat though lately I've bn handling well cooked meat it's the really red stuff that I just can't digest at all. I remember once i ate a medium rare peice of steak when I was out once(b4 I knew of the specific triggers) and I literally cldn't eat 4 2days had a major pain
Unfortunately I think once you get panc it is then very sensitive and things will always trigger it. you just hav to know what things. It wasn't caused by alcohol either I'd stopped drinking completely 8mhts prior to my first attack
27yr old female
All drugs induce pancreatitis
fibre blend twice a day
chai herbal tea
chlorophyll 60ml/litre
licorice piece's
miso soup

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