feeling tired even when in remission ??

tabitha m

Regular Member

Joined : May 2007

Posts : 139

Posted 9/22/2007 7:14 AM (GMT -6)

Hi all

ive been in remission since late june ( am taking my meds religiously ) but still seem to get tired really easily, ive just had the most relaxing 2 week holiday and been back at work 2 weeks and feel shattered !

Is this just me being a wimp / getting old or could this be someting to do with this condition. Was just wondering

hope all that are flaring get well soon

Tab

Diagnosed Proctitis 2003

leaped to Pancolitis May 2007

bye bye Pred (fingerscrossed )!

2000mg pentasa

omega 3

Allergic to Sulphalizine

In remission since june

Red_34

Elite Member

Joined : Apr 2004

Posts : 23551

Posted 9/22/2007 7:19 AM (GMT -6)

Do you take a vitamin? If not, a good multivitamin might help increase your stamina. My bet is that yes, it's this disease. Your body is constantly fighting itself even in remission so of course it lowers our energy. I was always tired until I started on Forvia which is a multivitamin for IBD'ers. Also too, you might want to have your B-12 checked by blood test. Many of us have a lowered B-12 count due to this disease. There are still days though that I feel I can barely move my arms without exhausting myself, so I just take it easy that day and just do what I can.

^{@--->--SHERRY--<---@}

^{Left sided Uc -'92 - Colazal, Canasa, 6mp, Prilosec, Biotin, Forvia}

^{Secondary Reynauds Syndrome - '04 - Norvasc}

^{Fibromyalgia - '06}

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tabitha m

Regular Member

Joined : May 2007

Posts : 139

Posted 9/22/2007 7:32 AM (GMT -6)

Hi Red

I do take a mulitvitamin, and eat healthily . Its probably a combination of things thinking about it . I get up at 5.30 am and work 8 hours straight through ( im a chef) . i probably should go to bed earlier !! Will look into the B12 thing though .

Thanks

Tab

Diagnosed Proctitis 2003

leaped to Pancolitis May 2007

bye bye Pred (fingerscrossed )!

2000mg pentasa

omega 3

Allergic to Sulphalizine

In remission since june

tjf

Veteran Member

Joined : Dec 2005

Posts : 3238

Posted 9/22/2007 7:49 AM (GMT -6)

I'm tired all the time. I never felt like this until I was diagnosed w/ UC and started all the meds. I started working out regularly which helps alot. Hang in there!

Tabitha (Tab)

100mg Azathioprine, 2 Fibercon, Colazal-6 a day, Acidopholis Pearls, Prilosec OTC

http://www.healingwell.com/donate
Co-Moderator UC Forum

MitzMN

Veteran Member

Joined : Feb 2007

Posts : 651

Posted 9/22/2007 8:31 AM (GMT -6)

I'm constantly low, low, LOW energy. I just hate it. I used to be a can-do person. Now I just want to sit or sleep. I keep my house up (sometimes) and run my business, take care of my pets, but that's all I am able to get done. I envy folks who have boundless energy. Everything feels like it's just too much for me.

~huge sigh~

I'm unsure of the lack of energy relates more to my depression or my colitis, but I do have to deal with it daily.

Good luck!

Eating right and getting some exercise can only help.

Mitz

Sporadic proctitis since about 1985. Mother had UC, then J-pouch surgery 1983.
DX'd with clostridium difficile in 2000. Prednisone, two courses of Flagyl, then Vancomycin finally got rid of it. Symptomatic with UC after that.
Colonoscopy in 2001 dx'd left-sided UC. Was pretty darn ill at that time. Treated with prednisone, Rowasa, Asacol. Asacol not working so switched to Imuran. Three small flares since in 2002, 2005, and 2007.
Gall bladder attack 6/13; ultrasound showed stones; surgery before end of 2007.
100 mg Azathioprine and 225 mg Effexor XR (for chronic, longstanding depression) daily.

tabitha m

Regular Member

Joined : May 2007

Posts : 139

Posted 9/22/2007 9:57 AM (GMT -6)

So its not me being a weakling then ! I live my life pretty fully but just always have this lethargic edge to it . i do need to get back into some form of exercise .

Thanks for your replies , as ever you have all been better than any doctor !

Take care all

Tab x

Diagnosed Proctitis 2003

leaped to Pancolitis May 2007

bye bye Pred (fingerscrossed )!

2000mg pentasa a day

omega 3

Allergic to Sulphalizine

In remission since june

Multivitamin and calcium supplement

ks1905

Veteran Member

Joined : Sep 2005

Posts : 5203

Posted 9/22/2007 12:28 PM (GMT -6)

Tabitha,

Tell your doctor that you are exhausted all the time during remission. I had steroid withdrawal and exhaustion wasn't even the word to discribe it; I had to go back on steroids for a short amount of time to get rid of the withdrawal. You may also want to have your b-12 levels check.

I do not have the same energy as I use to.... I am hoping with surgery that I will regain my energy.

--Keith

DX'd with Pan-Colitis June 2005

Current Status: Flaring since May

Current Meds: 6-mp & Colocort

Supplements: None

BigLucy

Regular Member

Joined : Mar 2007

Posts : 413

Posted 9/22/2007 12:34 PM (GMT -6)

I think I've developed "Chronic Fatigue" of coarse related to UC/IBS. Last Nov. was hospitalized for two weeks w/major flare and literally sat on the couch or slept for five months after discharged. about a month ago, still was feeling very lethargic, but decided to start a exercise program and start going out w/friends more. It's been little over a month and still feel exactly the same, but my body has good stamina and a little more toned. I've come to the conclusion that I'm going to feel like this if I stay home or try to do outside activities, so I try my best to go out without overdoing it--it's been great for the psychological stuff, I no longer feel my life is passing me by, which I felt a couple of months ago.

Dx Ulcerative Colitis 1999; IBS; CP: Asacol x3 x3/day, Rowasa, Proctofoam, Prilosec, Bentyl, Prozac, Endocet (as needed), multi vit, probiotic, fish oil caps x2/day, calcium 1200 mg./day, Prednisone (off/on, unfortunately).

birdiem

Regular Member

Joined : Aug 2007

Posts : 326

Posted 9/22/2007 12:39 PM (GMT -6)

tab,
i can't add much to the advice here, although i agree with it all.
keith, as someone who had had two major surgeries on my coloni just want you to be aware that you will be EXHAUSTED for months. that is not to say that eventually your energy won't come back full force, but please don't expect too much too soon. i know i did and i was bummed, i couldn't even go downstairs to the kitchen without needing a nap after. now things are better, but i just wouldn't want you to be surprised like i was. good luck and both tab and keith, i ope you let us know how you are doing!

katie
22
diagnosed with cecal volvulus, 2006; two colon resections in the same year
diagnosed with colitis 2007
malrotated colon
no cecal valve, removed during surgery

VSL #3
Amitriptyline to slow gastric emptying
Forvia

Old Hat

Veteran Member

Joined : Feb 2007

Posts : 5195

Posted 9/22/2007 5:18 PM (GMT -6)

Oh, yes-- I'm tired most of the time. It feels great to lie flat on my back and read or nap. This behavior is only condoned in housecats, though. I'm missing out on a lot, but I believe that most everyone has some obstacles thrown into their path at 1 or another point in life. So, as long as the blood tests, etc. turn out o.k., there's no reason to mope-- just prioritize & do what you have to do to stay gainfully employed & proceed from there. We all could stand to win a nice fat lotto prize!!!!!! / Old Hat (nearly 30 yrs with left-sided UC; currently on 6 Colazal daily for July flare in descending colon; should be back in remission again soon)

Another UC wife

Veteran Member

Joined : Jun 2007

Posts : 2111

Posted 9/22/2007 10:41 PM (GMT -6)

Ditto on the B12 -- if your levels are low that may help. Hubby had his 2nd shot last week and he has noticed a change and not as fatigued as he has been. Not in a real remission yet but hopefully heading that way.

60 yr old male~Colitis 1st diagnosed Jan '05-cleared up within a few wks. Flared again in May '06 ... left sided UC now, fully involved and trying to get in remission. Acute inflammation-pancolitis-tenesmus rectal pain-granulation is showing some healing started. Osteopena of spine from prednisone DX 8/07 July 07 good days & bad days 75mg Imuran 40 mg prednisone (tapering 8/07) 12 Asacol, Lidocaine Hydrochloride Jelly 2%,multi vitamin, iron 3X day, DanActive, chewable calcium, Prilosec 20mg, enalapril 10mg, glipizide 5 mg, zocor 20 mg, baby aspirin, (Fentanyl pain patch 50mg 72 hrs Morphine Sulf 15 mg twice daily)Colocourt enemas at night. Fosamax and mthly B12 shots folic acid 1mg

tabitha m

Regular Member

Joined : May 2007

Posts : 139

Posted 9/23/2007 5:28 AM (GMT -6)

Thanks again for all the replies,l

I wouldnt say im exhausted, im still working , keeping on top of the house ( well most of the time, if i cant be bothered , i sit and read my book lol ) and generally feel ok, just never feel that energetic and i always used to.

Just gonna take the rough with the smooth i suppose, we all know you can feel a whole lot worse than tired dont we !!

Tab

Diagnosed Proctitis 2003

leaped to Pancolitis May 2007

bye bye Pred (fingerscrossed )!

2000mg pentasa a day

omega 3

Allergic to Sulphalizine

In remission since june

Multivitamin and calcium supplement

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