Hi. Bratcat seems to be beginning to flare again. She started getting looser bowel movements. Then started to see a little bit of blood. She started back on Rowasa nightly this past week. Was out of school for the past 3 days. Took hydrocortisone enemas for the past 3 nights. Seems to be helping a bit (or at least keeping the flare at bay). She had more good hours today than she has for the past few days. But tonight she felt lousy.
When she is not flaring, she can eat pretty much anything within reason. Nothing seems to work now.
I know it sounds dumb but we can't remember what she ate when she was sick the first time. Any suggestions?
Also, her calves are cramping (this happened the first time also). We believe her electrolytes are low. She drank some Gatorade but (1) it's causing her to go to the bathroom more and (2) I stupidly gave her the colonoscopy prep with Gatorade last year so she now hates Gatorade! Any suggestions to stop the calves from cramping?
It was almost exactly around this time last year that she got sick. The only thing better now is that we know what is wrong and she is already on medication. Last year she got sick in September and wasn't diagnosed until October. Then first started meds.
Hopefully she will be able to get back to school this week. Besides missing classes, she has Jazz Ensemble audition on Friday and Homecoming (which she watched from the sidelines so very ill last year) on Saturday. We keep remembering the 9 weeks that she was out of school last year and keep hoping that it won't be a repeat this year.
--Mom of bratcat (16 years old)--
bratcat was diagnosed with pancolitis October 2006
Asacol - 4 pills/3Xday
Rowasa - 7/07 tapering slowly
hydrocortisone enema - alternating with Rowasa
11/14/06 - started prednisone; 1/28/07 - finished prednisone!
3/3/07 - began to taper off hydrocortisone sloowwly! No more hydrocortisone enemas! Summer 2007 - slowly began tapering Rowasa
Keeping our fingers and toes crossed!!
9/07 -- flaring? Nightly Rowasa. 9/21/07 -- added hydrocortison enemas.