Daughter flaring again?

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Bennie
Veteran Member


Date Joined Nov 2006
Total Posts : 552
   Posted 9/22/2007 10:36 PM (GMT -7)   
Hi. Bratcat seems to be beginning to flare again. She started getting looser bowel movements. Then started to see a little bit of blood. She started back on Rowasa nightly this past week. Was out of school for the past 3 days. Took hydrocortisone enemas for the past 3 nights. Seems to be helping a bit (or at least keeping the flare at bay). She had more good hours today than she has for the past few days. But tonight she felt lousy.
 
When she is not flaring, she can eat pretty much anything within reason. Nothing seems to work now.
I know it sounds dumb but we can't remember what she ate when she was sick the first time. Any suggestions?
 
Also, her calves are cramping (this happened the first time also). We believe her electrolytes are low. She drank some Gatorade but (1) it's causing her to go to the bathroom more and (2) I stupidly gave her the colonoscopy prep with Gatorade last year so she now hates Gatorade!  Any suggestions to stop the calves from cramping?
 
It was almost exactly around this time last year that she got sick. The only thing better now is that we know what is wrong and she is already on medication. Last year she got sick in September and wasn't diagnosed until October. Then first started meds.
 
Hopefully she will be able to get back to school this week. Besides missing classes, she has Jazz Ensemble audition on Friday and Homecoming (which she watched from the sidelines so very ill last year) on Saturday. We keep remembering the 9 weeks that she was out of school last year and keep hoping that it won't be a repeat this year.
 
Arrrggghhh!!!
--Mom of bratcat (16 years old)--
bratcat was diagnosed with pancolitis October 2006
Current meds:
Asacol - 4 pills/3Xday
Rowasa - 7/07 tapering slowly
 
hydrocortisone enema - alternating with Rowasa
11/14/06 - started prednisone; 1/28/07 - finished prednisone!
3/3/07 - began to taper off hydrocortisone sloowwly! No more hydrocortisone enemas! Summer 2007 - slowly began tapering Rowasa
Keeping our fingers and toes crossed!!
9/07 -- flaring? Nightly Rowasa. 9/21/07 -- added hydrocortison enemas.


quincy
Elite Member


Date Joined May 2003
Total Posts : 29840
   Posted 9/23/2007 12:04 AM (GMT -7)   
Hi Bennie....It wasn't food causing a flare, but sometimes food will give symptoms..but they wouldn't last as does a flare.  If you ask bratcat, she'll probably be able to look back and see some symptoms that have been creeping up.
 
How many times a day is she having diarrhea? 
 
What was her schedule at for Rowasa?
 
The Gatorade might have had aspartame or artificial sweeteners in them that would have possibly caused her some more diarrhea.  She could try to use a fibre supplement to bulk up the stook a bit.
 
Is she taking a any supplements?  Is she taking any calcium supplements?
 Is she able to eat anything at all?
 
Hope she's able to get things controlled fairly quickly.
quincy


*Heather*Status:mini flare June 23* 6asacol daily+ Salofalk (tapered every 3rd night)
~diagnosed January 1989 UC (proctosigmoiditis)
~5ASA: Asacol + Salofalk enemas (increase for flares tapered to maintenance)
~Bentylol (dicyclomine) 20mg as needed
~vitamins/minerals 
~Probiotic 2 (Natural Factors Protec) + 1 (Primadophilus Reuteri) at bedtime
~Natural Factors Multi Digestive Enzymes with supper
~Ranitidine,Pariet (reflux) Effexor XR 75mg;  Pulmicort/Airomir (asthma)
~URSO for PSC (or PBC) 500mg X 2 daily (LFTs back to NORMAL!!)
My doc's logic.. "TREAT (FROM)BOTH ENDS"  worth it !!!


Bennie
Veteran Member


Date Joined Nov 2006
Total Posts : 552
   Posted 9/23/2007 8:05 AM (GMT -7)   

Hi Quincy, we know that the food didn't cause the flare. But now that the flare is here, the food is exacerbating it. The problem now is that she isn't eating much again so going to the bathroom often is producing more blood than anything else. She knows she has to eat but is trying to find something that won't make her go to the bathroom immediately after. This morning is another bad day.

She is doing Rowasa every night. (Although she has been doing hydrocortisone enemas for the past few nights instead). Probably will begin alternating Rowasa and Hydrocortisone enemas each night (Sunday-rowasa, Monday-hydrocortisone, Tuesday-rowasa, etc). That is what her doctor had her doing last year.

She usually gets enough calcium so she hasn't taken calcium pills. We will look into fiber supplements. Are fiber supplements just a temporary fix?

Any suggestions on what to eat? (I know everyone is different.)

At what point do we admit that this is not just "starting to flare" and that she is "flaring"? At what point do we call the doctor? Kind of afraid because the doctor said if she flared again he wouldn't put her back on steroids (he would consider her steroid dependent then) and would switch her to 6-MP. We are hoping to get her under control with the Asacol, rowasa, and hydrocortisone enemas again.

 


--Mom of bratcat (16 years old)--
bratcat was diagnosed with pancolitis October 2006
Current meds:
Asacol - 4 pills/3Xday
Rowasa - 7/07 tapering slowly
 
hydrocortisone enema - alternating with Rowasa
11/14/06 - started prednisone; 1/28/07 - finished prednisone!
3/3/07 - began to taper off hydrocortisone sloowwly! No more hydrocortisone enemas! Summer 2007 - slowly began tapering Rowasa
Keeping our fingers and toes crossed!!
9/07 -- flaring? Nightly Rowasa. 9/21/07 -- added hydrocortison enemas.


birdiem
Regular Member


Date Joined Aug 2007
Total Posts : 326
   Posted 9/23/2007 8:26 AM (GMT -7)   
i can;t answer the "starting to flare vs. flaring" question, but you might want to consider pedialyte--it has electrolytes but less sugar than gatorade (which could worsen the flare). please let us know how she is doing.
katie
22
diagnosed with cecal volvulus, 2006; two colon resections in the same year
diagnosed with colitis 2007
malrotated colon
no cecal valve, removed during surgery

VSL #3
Amitriptyline to slow gastric emptying
Forvia


Red_34
Forum Moderator


Date Joined Apr 2004
Total Posts : 23549
   Posted 9/24/2007 4:51 AM (GMT -7)   
Anytime there is a change in bowel consistancy with/without bleeding that lasts more then a day is usually the first indication that a flare is pending. For me, I can tell I'm heading for a flare when I start to get that annoying left sided pinchy pain with an increase/change in bm's. Then I up my rectal meds and if that doesn't stop the flare in it's tracks within 3 days, I place a call to my GI. Because I know, at least for me, that if I don't respond within 3 days to the increase of meds then I am going to need something more.

Fiber should be used in conjuction with her meds. It will bulk up her stool allowing her to be more comfortable by not running to the bathroom every 5 seconds. What about probiotics? Has she ever tried them?
 @--->--SHERRY--<---@
Left sided Uc -'92 - Colazal, Canasa, 6mp, Prilosec, Biotin, Forvia
Secondary Reynauds Syndrome - '04 - Norvasc
Fibromyalgia - '06 
PLEASE HELP HEALINGWELL CONTINUE TO HELP OTHERS BY CLICKING HERE: DONATE
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kb5
Veteran Member


Date Joined Jan 2007
Total Posts : 1015
   Posted 9/24/2007 6:48 AM (GMT -7)   
As for what to eat. When I flare I eat a lot of white rice, chicken, bananas (the potassium may help with the cramping), and as gross as it sounds....baby food. The fruit really isn't that bad and it gives you vitamins you don't get while flaring. My GI actually reccommended it.

Good luck! I hope she starts feeling better soon!
Kelly, 29

Left sided UC diagnosed 1/98 age 19, Pan colitis diagnosed 1/07
Currently on 4x3 Asacol, Rowasa every other night, down to 15 mg pred.
75mg Imuran starting 8/23/07---fingers crossed!
Prontonix once daily for acid reflux, zofran twice daily for nausea


Old Hat
Veteran Member


Date Joined Feb 2007
Total Posts : 5135
   Posted 9/24/2007 8:28 AM (GMT -7)   
Sorry to read that Bratcat seems to be in a setback; hopefully she can head off a major flare with current meds, rest, & nutritious diet. Calcium & potassium-rich foods should help with leg-cramping. I agree with kb5's diet recommendations as they have worked well for me, too, during flares. Farina, simple noodle dishes, & natural applesauce are other items that can be soothing. I would avoid Gatorade because most of the flavors contain artificial colors/dyes-- yuck! Is Bratcat lactose intolerant? If so, try lactose-free dairy products &/or soy milk to supplement kb5's recommended foods. Some of us do well with a bit of Brown Cow or StonyField Farm yogurt daily. HealthValley oat or amaranth graham crackers seemed easy for me to tolerate during major flares-- no artificial ingredients. Best wishes for Bratcat to get back under control & back to school ASAP!!!!  / Old Hat (nearly 30 yrs with left-sided UC; currently on 6 Colazal daily for July flare in descending colon; should be back in remission again soon)
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