I fear getting old and not being able to function with all I have. The suspicion of PSC 10 years ago had me crying for 3 weeks solid, for I thought my life was over. It was eventually confirmed last year....but I felt empowered at not having one of the diagnostic tests..the ERCP because it's known to trigger the disease active and also to cause pancreatitis that I don't want.
My way of dealing for the future is to make the changes and do what's needed for me to function in the best possible way. If I weren't functioning due to severe UC symptoms, my colon would be out asap.
I recently fell/slipped on the stairs and injured my shoulder. Although I was happy nothing was broken, it brought me to the realisation that my brain or body don't sometimes work in conjunction with each other. Automatically learned processes have to be tweaked as I'm getting older.
I have more pains...constant pains...that gives me more grief because it's constant. Just sitting on the toilet is painful on my knees. Nothing is different than when I was a kid...it's just more constant, which is wearing on my emotional state.
I am what I am, and if I don't change as I age and exercise to increase my strength, I'll be swirling down the toilet at a fast rate with the poo. Not a direction I want to go....so, it's now or later...better than too late.
Toughkicker...you have your life ahead of you. Fear is normal, but don't let it rule. Seek options so that you can function to the best of your ability. Options...that's what will give you hope and determination to continue.
Therapy may also help you get things into perspective.
It's not what you can't do....it's what you can do.
*Heather*Status:mini flare June 23* 6asacol daily+ Salofalk (tapered every 3rd night)
~diagnosed January 1989 UC (proctosigmoiditis)
~5ASA: Asacol + Salofalk enemas (increase for flares tapered to maintenance)
~Bentylol (dicyclomine) 20mg as needed
~Probiotic 2 (Natural Factors Protec) + 1 (Primadophilus Reuteri) at bedtime
~Natural Factors Multi Digestive Enzymes with supper
~Ranitidine,Pariet (reflux) Effexor XR 75mg; Pulmicort/Airomir (asthma)
~URSO for PSC (or PBC) 500mg X 2 daily (LFTs back to NORMAL!!)
My doc's logic.. "TREAT (FROM)BOTH ENDS" worth it !!!