yes, I am scared now. I have had UC for 7 years and up until two months ago, thought hey I can manage this, I'd get slack w/my meds and then start taking them again and be fine, no problem at all. I would always say, yes I have UC but I am lucky b/c I could have it a lot worse and seriously I could have it a alot worse.....I keep on trying to say that to myself.
Now I have minimal change disease MCD which can be caused from taking drugs that contain mesalamine if you are 'hypersensitive' to them and the timeline fits, now no one can say 100% for sure but within 6 mos to a year of me taking it I began to have symptoms of MCD (edema) and did not get dx'd w/it until 9/6/07. (if your urine is frothy in the toilet get a urinalysis to check for proteins - symptom of MCD too).
I can no longer take meslamine drugs for my 'mild' colitis and after this course of prednisone for the MCD (also hoping it benfits my UC) I don't know what drugs I will take to help me stay in remission and the mesalmine drugs are the easier drugs on your system and I am scared of the side effects of taking other drugs. So I have 5.5 more months of prednisone and in 1.5 mos will begin researching my options and possibly changing Dr's. for my UC right now I can only handle the MCD.
I wish my post could help you feel better but I don't think it's that uplifting. Yes, I am scared of how I can manage my symptoms the safest and most effective way and also want to begin a family (as soon as I am healthy again).
Maybe the best thing to say would be I was not really scared for 7 years...... I am scared now but I hope that within a year I have a regimine that works for me and one that I am comfortable with and keeps me in remission for a long time. Also when I was first dx'd I was scared then of course too.