I have a call into the GI for Bratcat. When she has seen him in the past he has mentioned that if she flares again, he would want to put her on 6-mp. She had a round of prednisone with last year's flare that worked but he said if she flared again it would mean that she is steroid dependent.
We know there are terrible side effects (both short-term and long-term) with steroids but they did work the first time.
And once the drugs (pred, asacol, rowasa) started working, she went into remission (she had a great summer). She doesn't mind taking the asacol and rowasa daily.
What are the good and bad sides to 6-mp? He mentioned that he would use it in conjunction with Entocort (Endocort?) until the 6-mp started working. If she does start the 6-mp, how long could it be until she starts to feel better? She missed 9 weeks of school last year and doesn't want to have that happen again.
It's hard enough admitting that she is in a flare again. She did try to lower her dosage of rowasa. Maybe too much (down to 3x week). But the asacol and daily rowasa seemed to work when she finally got the flare under control with the prednisone.
Thanks for any help, Bennie
--Mom of bratcat (16 years old)--
bratcat was diagnosed with pancolitis October 2006
Asacol - 4 pills/3Xday
Rowasa - 7/07 tapering slowly
hydrocortisone enema - alternating with Rowasa
11/14/06 - started prednisone; 1/28/07 - finished prednisone!
3/3/07 - began to taper off hydrocortisone sloowwly! No more hydrocortisone enemas! Summer 2007 - slowly began tapering Rowasa
Keeping our fingers and toes crossed!!
9/07 -- flaring? Nightly Rowasa. 9/21/07 -- added hydrocortison enemas.