I have been in and out of hospital now for nearly a month. I have had a series of complications from another bout of pancreatitus (this one much less severe) to extreme pain in my extremeties due to Neuropathy and Charkot Foot Disease. The worst part is being on the pain killers - which make me feel awful, and then once you slow or stop - you have a withdrawal pain. I have been a burden to my poor wife during the last month...and feel very guilty about that.
If there is a bright side with this, I have lost 13 lbs in one month. Hope this trend continues.
My doc has decided to continue the remi, and I feel it is helping but no pure remission yet. He reduced my 6mp to 100mg from 125. I am down to 15mg of pred.
I have great fatigue right now, and my walking is reduced. I don't want to eat out of fatigue, not nausea. Living on eggs and toast with a simple diet right now.
I am sorry for leaving you here without an update - that was very rude of me...I will endeavor to do better and as always love to you all.