Hello all and please forgive me for being MIA

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schrek-chewbacca hunk
Veteran Member

Date Joined Jun 2005
Total Posts : 2666
   Posted 9/25/2007 11:07 AM (GMT -6)   
I have been in and out of hospital now for nearly a month.  I have had a series of complications from another bout of pancreatitus (this one much less severe) to extreme pain in my extremeties due to Neuropathy and Charkot Foot Disease.  The worst part is being on the pain killers - which make me feel awful, and then once you slow or stop - you have a withdrawal pain.  I have been a burden to my poor wife during the last month...and feel very guilty about that.
If there is a bright side with this, I have lost 13 lbs in one month.  Hope this trend continues.
My doc has decided to continue the remi, and I feel it is helping but no pure remission yet.  He reduced my 6mp to 100mg from 125.  I am down to 15mg of pred. 
I have great fatigue right now, and my walking is reduced.  I don't want to eat out of fatigue, not nausea.  Living on eggs and toast with a simple diet right now.
I am sorry for leaving you here without an update - that was very rude of me...I will endeavor to do better and as always love to you all.

Elite Member

Date Joined May 2003
Total Posts : 30976
   Posted 9/25/2007 11:32 AM (GMT -6)   
Hi Bob...it wasn't rude..you've been sick. You have no choice but to take the time to get better. Was the pancreatitis caused from you having diabetes?

Take baby steps and I hope you start to feel improvement soon. Try not to feel too guilty, although, I can understand that emotion really well.

quincy xx
*Heather*Status:mini flare June 23* 6asacol daily+ Salofalk (tapered every 3rd night)
~diagnosed January 1989 UC (proctosigmoiditis)
~5ASA: Asacol + Salofalk enemas (increase for flares tapered to maintenance)
~Bentylol (dicyclomine) 20mg as needed
~Probiotic 2 (Natural Factors Protec) + 1 (Primadophilus Reuteri) at bedtime
~Natural Factors Multi Digestive Enzymes with supper
~Ranitidine,Pariet (reflux) Effexor XR 75mg;  Pulmicort/Airomir (asthma)
~URSO for PSC (or PBC) 500mg X 2 daily (LFTs back to NORMAL!!)
My doc's logic.. "TREAT (FROM)BOTH ENDS"  worth it !!!

Veteran Member

Date Joined Dec 2005
Total Posts : 3238
   Posted 9/25/2007 11:47 AM (GMT -6)   
Hey Bob! I missed you! So sorry things are tough right now. You just take your time and update us when you can.
Tabitha (Tab)

100mg Azathioprine, 2 Fibercon, Colazal-6 a day, Acidopholis Pearls, Prilosec OTC

Co-Moderator UC Forum

Regular Member

Date Joined Aug 2007
Total Posts : 326
   Posted 9/25/2007 11:51 AM (GMT -6)   
Bob, I hope you feel better soon! My thoughts are with you. Take it easy and take care of yourself!
diagnosed with cecal volvulus, 2006; two colon resections in the same year
diagnosed with colitis 2007
malrotated colon
no cecal valve, removed during surgery

VSL #3
Amitriptyline to slow gastric emptying

Veteran Member

Date Joined Jul 2007
Total Posts : 2148
   Posted 9/25/2007 12:05 PM (GMT -6)   
Hi Bob,

I am sorry to hear you are going through such a difficult time and I can understand the guilt over your wife (even though you shouldn't feel guilty). I hope you are able to get through this quickly and come out healthier.

Thinking of you,
Beth, 31
UC Diagnosed March 2000
Lialda 2.4mg 1xday since 8/24/07 (prev. Asacol 4800mg day),Calcium and Vit D 500mg 2xday.
Minimal Change Disease (Kidney Disorder) Diagnosed Sept 2007
Prednisone 60mg 1xday, Simvastatin 20 mg 1xday
Diovan 80mg 1xday. Fosomax 1xweek 70mg. MCD may be from hypersensitivty to 5ASA drugs.

Elite Member

Date Joined Apr 2004
Total Posts : 23551
   Posted 9/25/2007 12:09 PM (GMT -6)   
((Bob)) I'm so glad you came on to let us know how you were doing. It seems that you've quite a rough go lately. I wish there was some way I could help you. We missed you and I hope next month brings brighter skies.
Left sided Uc -'92 - Colazal, Canasa, 6mp, Prilosec, Biotin, Forvia
Secondary Reynauds Syndrome - '04 - Norvasc
Fibromyalgia - '06 
@--->--Moderator for Allergies/Asthma and Co-moderator for UC--<---@


Veteran Member

Date Joined Jul 2005
Total Posts : 1614
   Posted 9/25/2007 3:01 PM (GMT -6)   
Hi Bob, Hope You are feeling better. We missed yu
Diagnosed July 2005 with Pancolitis
Asacol 4 tabs 3 times daily
GNC Probiotic
Currently in Remission

potty girl
Veteran Member

Date Joined Dec 2006
Total Posts : 835
   Posted 9/25/2007 4:15 PM (GMT -6)   
Bob, hope you feel better soon. and no you werent being rude, just not feeling good. I think we all understand how that is. but glad to hear from you.

synthroid .088 mg, lowpressor 50 mg x 2, cozaar 25mg x2, imdur 30 mg
nitroquick, proventol, plavix 75 mg, protonix 40 mg x 2, asacal 400mg x 9
carafate 1 gm x 4, zyrtec 10 mg, rhinocort aqua nose spray, fish oil,

Veteran Member

Date Joined Feb 2007
Total Posts : 648
   Posted 9/25/2007 5:23 PM (GMT -6)   
Are you talking about Charcot-Marie-Tooth, Bob?

You poor guy. Life is not playin' fair with you at all. Un-uh. Not a bit.


Sporadic proctitis since about 1985. Mother had UC, then J-pouch surgery 1983.
DX'd with clostridium difficile in 2000. Prednisone, two courses of Flagyl, then Vancomycin finally got rid of it. Symptomatic with UC after that.
Colonoscopy in 2001 dx'd left-sided UC. Was pretty darn ill at that time. Treated with prednisone, Rowasa, Asacol. Asacol not working so switched to Imuran. Three small flares since in 2002, 2005, and 2007.
Gall bladder attack 6/13; ultrasound showed stones; surgery before end of 2007.
100 mg Azathioprine and 225 mg Effexor XR (for chronic, longstanding depression) daily.

Veteran Member

Date Joined Feb 2005
Total Posts : 6448
   Posted 9/25/2007 7:03 PM (GMT -6)   
I'll send all my hugs and get well wishes for you Bob, our favorite Wookie.

Remicade - will have my 19th infusion on November 1.
Imuran - 100 mgs....taken before bedtime
Vitamin B-12/Biotin, Probiotics

"Life is short -- make fun of it"
Co-Moderator for the UC Forum

Regular Member

Date Joined May 2005
Total Posts : 56
   Posted 9/25/2007 7:24 PM (GMT -6)   
So sorry to hear your not feeling well Bob.Hope things get better soon.

UC/IBS diagnosed Oct. 2004 
Colazal 3,3x a day,6mp 100 mgs,Lomotil,Rowasa,Canasa as needed.
30 mgs prednisone,tapering.
Probiotics,Olay vitamins,Calcium supplement.
      Stop the ride I wanna get off.

Regular Member

Date Joined Jul 2007
Total Posts : 208
   Posted 9/25/2007 9:26 PM (GMT -6)   
Hope you feel better soon, Bob.
Ash 39 NH, vegetarian
Diagnosed with UC July 06 (I think 6/6/6) during 10 day hospitalization
Current meds: Asacol 12, Imuran 150mg
Centrum Silver, Primadophilus Reuteri, DHA-Omega 3, L-glutamine

Another UC wife
Veteran Member

Date Joined Jun 2007
Total Posts : 2111
   Posted 9/25/2007 9:46 PM (GMT -6)   
Bob warm wishes to you and your wife. Hope things turn around soon for you.

60 yr old male~Colitis 1st diagnosed Jan '05-cleared up within a few wks. Flared again in May '06 ... left sided UC now, fully involved and trying to get in remission. Acute inflammation-pancolitis-tenesmus rectal pain-granulation is showing some healing started. Osteopena of spine from prednisone DX 8/07  July 07 good days & bad days 75mg Imuran 40  mg prednisone (tapering 8/07) 12 Asacol, Lidocaine Hydrochloride Jelly 2%,multi vitamin, iron 3X day, DanActive, chewable calcium, Prilosec 20mg, enalapril 10mg, glipizide 5 mg, zocor 20 mg, baby aspirin, (Fentanyl pain patch 50mg 72 hrs  Morphine Sulf 15 mg twice daily)Colocourt enemas at night. Fosamax and mthly B12 shots folic acid 1mg

Regular Member

Date Joined May 2007
Total Posts : 458
   Posted 9/26/2007 9:44 AM (GMT -6)   
Hope you are feeling better soon.  No need to be sorry at all.  Hugs to you.
Dx:  2006
Meds:  None so far. Garlic works to ease flares. My GI laughed when I told him and said it was just coincidence.
Diet:  Regular fresh garlic, Biobest yogurt daily, Omega 3 supplements, very limited junk food, carbs and processed food, low fat diet.  Lots of fresh fruit and veggies (limited potatoes). 
Added: tumeric and probiotics.

Veteran Member

Date Joined Nov 2005
Total Posts : 2045
   Posted 9/28/2007 10:00 AM (GMT -6)   
Nightmare for you Bob. I've been away for a while too, i really pray that you get some relief soon. Its just not fair on you big GUY.
keep the faith

Pred40mgs/asacol/proctifoam/omoparazole 40mgs/Domperidone10mgs x 3 daily


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