New GI - Who takes Lialda

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okiemom
Regular Member


Date Joined Sep 2007
Total Posts : 104
   Posted 9/25/2007 4:32 PM (GMT -7)   
New GI has me starting Lialda & Canasa suppositories.
 
Who takes it?   And how long before you saw any happy signs of getting better.   I have not been having much blood or mucus   &  my BM's have been staying under 10 per day.
 
I am not taking any meds from the doctor, but other stuff.  I just cant seem to get all the way better.
 
 
Billie

AlabamaBabs
Regular Member


Date Joined Jul 2007
Total Posts : 172
   Posted 9/25/2007 6:23 PM (GMT -7)   
Hi!  I've been on Lialda for 18 weeks now and if I think back to that time, it was terrible!  about a week after Lialda, the urgency had stopped, bleeding and frequent D (from 15X per day to 2-4), as well.  I've had a few ups and downs since then, but nothing like when I was first diagnosed and going all the time with blood, cramping, etc.  I was one of my GI's firsts to go on it, too.  I hope it continues to work well for you! 

AlabamaBabs
Pancolitis diagnosed 5/07 
2 Lialda/day increased to
4 Lialda/day since 8/01/07
40 mg. Prednisone for two weeks starting 9/16/07
Activia; multi-vitamin; extra calcium supplement; omega 3's


okiemom
Regular Member


Date Joined Sep 2007
Total Posts : 104
   Posted 9/26/2007 6:19 AM (GMT -7)   
Thanks for the reply = did you start a flare on 8-7 - then ended up on prednisone now

AlabamaBabs
Regular Member


Date Joined Jul 2007
Total Posts : 172
   Posted 9/26/2007 5:08 PM (GMT -7)   

Hey, there!  What is your diagnosis?  I hope I didn't worry you with my profile and the increase in meds.  I had a very stressful July and I flared in late July and went on 4 Lialda for that.Then had a sinus infection for which I took an antibiotic that made me have worse D than when I was diagnosed with pancolits and ended up on prednisone on 9/16/07. I would like to think it was the antibiotic and menstrual changes, although my GI does not share that same viewpoint.   

 I really like the Lialda and how it is once a day and it worked so quickly and I love that I can make it through the entire day at work with no urgency or D; just a little time in the bathroom upon getting up.  However, after that first week of Lialda, I had no more no cramping or blood (unless it is that time of month/flare) and regular bm's (soft, but not D). I hope you do well on it, too!! Keep us posted!!


AlabamaBabs
Pancolitis diagnosed 5/07 
2 Lialda/day increased to
4 Lialda/day since 8/01/07
40 mg. Prednisone for two weeks starting 9/16/07
Activia; multi-vitamin; extra calcium supplement; omega 3's

Post Edited (AlabamaBabs) : 9/26/2007 6:14:32 PM (GMT-6)


Meesh
Veteran Member


Date Joined May 2006
Total Posts : 619
   Posted 9/29/2007 7:00 PM (GMT -7)   
It's good to hear these successes with Lialda. I just started Lialda this morning, it was weird not taking my 2 pm dose of Colazal. The Colazal helped me but never completely. I have been reading lots of posts here that people do well on Lialda. Hope I'm one of them!
Diagnosed UC April 27, 2006
Remicade: 1st infusion 7/21/07; 2nd infusion 8/18/07
Lialda, 4 tabs in the morning; Protonix; Prednisone 4/27/06-present, holding taper at alternating 5/0 mg; Xanax; Lexipro, Rowesa; Asacol; Colazal three 750 mg capsules 3X day;
[2/22/07 started Imuran, off within two weeks due to bad reaction]

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