Quick recap: Diagnosed 3 years ago, first flareup very quickly ended with prednisone 40mgs, next flare up a year later was HORRIBLE (stuck at home for months), treated eventually with hydrocort retention enemas, 3rd flare up 6 months after that beginning in February of this year. No combination of hydrocort/rowasa was stopping the bleeding, nor was I able to get my weight up. After 5 months of this, I took matters into my own hands.
I realized that my bleeding had to be 'higher' up... stools were bloodless at the beginning, then bled towards the end. I also had very little urgency, which to me is a sign the rectum is not inflamed. The retention enemas, even if done 2x a day, seemed to keep things at bay, but I would still bleed basically every other day. Frustration and sadness were mounting.
SO I decided the 'trick' would be to get the retention enemas higher in the colon. I also augmented my regimen with a few other weapons. Within 3 days, the bleeding stopped. Now, I haven't bled for 6 weeks, I've gained 10 pounds, I don't walk around with immodium in my pocket, and I'm tapering off the enemas.
Here's what I did:
-I turned upside down when administering them (legs up against bed)
-I would alternate hydrocort and Rowasa (generic) every night
-I would administer, wait about
2 minutes, and here's the trick... fill the now-empty bottle with distilled water. The water MUST BE DISTILLED! You WILL hurt yourself if you use tap water
. Shake well, then inject this additional solution.
-Stay upside down another 3-5 minutes. Then get in bed and roll around. Wa-la-- your enema is now a good part of the way up your descending colon. You'll have no urgency if you were upside down given the enema solution will pass the ennervated region of the intestine.
New additions to regimen:
-For the first week, I ate pasta + chicken + olive oil every day (give time to heal to colon, but still eat)
-Gargle with mouthwash morning and night (get rid of those sinus infection buggies)
-Take a teaspoon of organic turmeric powder (get from whole foods-- SO MUCH cheaper than pills and the appropriate dose) every night
-Take a tablespoon of coconut oil and borage/flax oil in the morning
-Take a tablespoon of olive oil and flax oil at night
-Take psyllium SEED powder capsule with each meal (not the commonly available husk-- studies show the seed is as good as 5-ASA)
-1/4 cup of aloe juice morning and night, mixed with fruit juice (pomegranate, blueberry, pineapple... anything to disguise the vile taste)
-4 probiotics each night: Nature's Way Reuteri, Kyodophilus, Nature's Way Bifidus, Acidophilus pearls.
I'm now doing the enemas every 3rd day. Stool frequency is up, but I'm also eating pretty much anything and everything (within reason: keep sugars down, no sodas, avoid fried foods and wine). I hope I can get off the enemas... no guarantees, but I'm doing a LOT better.
The critical things, IMO:
-The oils-- calories + good things for your body
-The double dose enemas (enema + distilled water)-- gets the meds higher
-Turmeric POWDER every night
-Psyllium Seed Powder every meal
-Branched Chain Amino Acids, Vitamin CDE, Selenium
I have a VERY thorough regimin, but it still takes less than 10 minutes a day. It isn't cheap, but neither is being ill. Feel free to ask questions... and wish me luck tapering off the enemas entirely!
Left-sided UC, Jun 2005. Flex-sig only... clear for first 20cms, then inflamed through next 30cms.
Pharmaceutical: Pentasa 3G/day, hydrocort 1x every 7 days
Probiotics: Acidophilus Pearls, Primadophilus Bifidus
Naturals: Caprylic Acid, Methylated B-12, Vit ACDE, Zinc (w/copper), Selenium, Turmeric, Bromelain, Luteolin
Killer Foods: Soda, Fried Food (especially french fries!), Beer, Red Wine, Pepperoncinis
Post Edited (AKB) : 9/26/2007 9:55:42 PM (GMT-6)