taking a break from Healing Well

UCinNC

Veteran Member

Joined : May 2007

Posts : 528

Posted 9/26/2007 7:15 PM (GMT -7)

Hi Friends - I have decided to take a little break from our website in an attempt to spend less time focused on UC. I have been off prednisone for 2 weeks now and am in that period of just having to wait and see if Imuran is going to work. I find myself thinking all the time about Imuran, about what will happen if it doesn't work....it is really stressing me out.... so I am trying to quit thinking about it so much and I think that taking a break from our website will help me. This site has been great - you are an amazing collection of people- and I will definitely be back, but hopefully I will be back when I choose to, as oppose to needing to because I have failed Imuran. I am just telling you this because I know that we all tend to worry about each other when we haven't heard from someone in awhile, so I didn't want you to worry. Wish me luck as I try to stop thinking about my UC, and please send me all your good vibes so that the Imuran will work. I will check back in sometime in the next few weeks, I guess. In the mean time, I will keep you guys in my thoughts as we all march on through this crazy illness.

29/Female/NC
Pancolitis dx 3/07
*12 Asacol/day
*100mg Imuran/day (steroid dependent)
Various vitamins, probiotics, fish oil.
Engaged: June 1, 2007

UCJuly2007

Regular Member

Joined : Aug 2007

Posts : 95

Posted 9/26/2007 7:27 PM (GMT -7)

Will be thinking of you! Let us know how the Imuran works. My Gastro says he thinks that when I get off of the prednisone that I will most likely start Imuran. Not sure exactly how to send good vibes (computer illiterate at times), but they are sent your way!!!

Smiles,

29/F Diagnosed UC July 18, 2007

Meds: 6 Asacol 400mg Tab

6 5mg Prednisone total 30mg (down from 40mg)

1/2 30mg Tylenol #3

1 1000mg Canasa Suppository

1 Calcium 500+D

1 Cerovite Vitamin and Mineral Supplement

1 325mg Ferrous Sulfate

potty girl

Veteran Member

Joined : Dec 2006

Posts : 835

Posted 9/26/2007 8:37 PM (GMT -7)

hope the Imuran works for you, good luck.

Rona

synthroid .088 mg, lowpressor 50 mg x 2, cozaar 25mg x2, imdur 30 mg
nitroquick, proventol, plavix 75 mg, protonix 40 mg x 2, asacal 400mg x 9
carafate 1 gm x 4, zyrtec 10 mg, rhinocort aqua nose spray, fish oil,
potassium.

birdiem

Regular Member

Joined : Aug 2007

Posts : 326

Posted 9/26/2007 9:22 PM (GMT -7)

I'm glad you are doing what you feel is best for you. Good luck and we will be sending you healing thoughts!

katie
23
diagnosed with cecal volvulus, 2006; two colon resections in the same year
diagnosed with colitis 2007
malrotated colon
no cecal valve, removed during surgery
gastritis

VSL #3
Amitriptyline to slow gastric emptying
Forvia
compazine

Red_34

Forum Moderator

Joined : Apr 2004

Posts : 23575

Posted 9/27/2007 11:01 AM (GMT 0)

I know what you mean, there are times that I take breaks too just so I'm not focusing on my health all the time. Best wishes and remember you're welcome back anytime!

^{@--->--SHERRY--<---@}

^{Left sided Uc -'92 - Colazal, Canasa, 6mp, Prilosec, Biotin, Forvia}

^{Secondary Reynauds Syndrome - '04 - Norvasc}

^{Fibromyalgia - '06}

^{PLEASE HELP HEALINGWELL CONTINUE TO HELP OTHERS BY CLICKING HERE: DONATE}

^{@--->--Moderator for Allergies/Asthma and Co-moderator for UC--<---@}

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MitzMN

Veteran Member

Joined : Feb 2007

Posts : 660

Posted 9/27/2007 5:34 AM (GMT -7)

Good idea. Get out and take a walk, enjoy the beauty of fall. I bet it's simply gorgeous in North Carolina at this time of the year.

Stay well.

Mitz

Sporadic proctitis since about 1985. Mother had UC, then J-pouch surgery 1983.
DX'd with clostridium difficile in 2000. Prednisone, two courses of Flagyl, then Vancomycin finally got rid of it. Symptomatic with UC after that.
Colonoscopy in 2001 dx'd left-sided UC. Was pretty darn ill at that time. Treated with prednisone, Rowasa, Asacol. Asacol not working so switched to Imuran. Three small flares since in 2002, 2005, and 2007.
Gall bladder attack 6/13; ultrasound showed stones; surgery before end of 2007.
100 mg Azathioprine and 225 mg Effexor XR (for chronic, longstanding depression) daily.

Harpo

Regular Member

Joined : Jul 2007

Posts : 262

Posted 9/27/2007 6:10 AM (GMT -7)

It'll help.. Don't focus.. Live life..

Male 36yrs old. Indeterminate Colitis 6 yrs.

100 mg 6-mp
Lialda 2 a day

Protonix
multi vitamin

therearemiracles

Veteran Member

Joined : Dec 2006

Posts : 3672

Posted 9/27/2007 6:45 AM (GMT -7)

Go for it! I truly believe I can get obsessed with this too. The mind and gut have such a strong connection, ease the mind and ease the gut.

I had the Rocephin shot and 2 weeks of Omnicef, this helped with my bloating and digestion. That was 4/15/07

Had Cipro and Predison for 10 & 5 days, 7/3/07

Colonoscopy & Endoscopy 7/27, Left sided colitis and near cecum (mild)

Had a shot of steriods for my ear inflammation 8/31

Stopped Colozal 9/11/07

On Standard Process supplements, trying a new protocal from a

natural path as of 9/10/07

Old Hat

Veteran Member

Joined : Feb 2007

Posts : 5211

Posted 9/27/2007 8:15 AM (GMT -7)

A new approach can be helpful-- so get out there & enjoy. Best wishes & thanks for keeping us posted. / Old Hat (nearly 30 yrs with left-sided UC; currently on 6 Colazal daily for July flare in descending colon; should be back in remission again soon)

Another UC wife

Veteran Member

Joined : Jun 2007

Posts : 2111

Posted 9/27/2007 9:21 AM (GMT -7)

Absolutely - a refreshing change for you. I am assuming at some point this will probably be something I should do as well as it can be "all consuming" and play on the emotions as well and I am not the one struggling with this personally.

Take care and I truly hope the Imuran helps and makes a big difference as it appears 4 months later it is what made the major difference and change for my husband after suffering for almost a year or so before going on the Imuran.

60 yr old male~Colitis 1st diagnosed Jan '05-cleared up within a few wks. Flared again in May '06 ... left sided UC now, fully involved and trying to get in remission. Acute inflammation-pancolitis-tenesmus rectal pain-granulation is showing some healing started. Osteopena of spine from prednisone DX 8/07 July 07 good days & bad days 75mg Imuran 40 mg prednisone (tapering 8/07) 12 Asacol, Lidocaine Hydrochloride Jelly 2%,multi vitamin, iron 3X day, DanActive, chewable calcium, Prilosec 20mg, enalapril 10mg, glipizide 5 mg, zocor 20 mg, baby aspirin, (Fentanyl pain patch 50mg 72 hrs Morphine Sulf 15 mg twice daily)Colocourt enemas at night. Fosamax and mthly B12 shots folic acid 1mg

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