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We leave Sunday

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Ulcerative Colitis
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Another UC wife
Veteran Member
Joined : Jun 2007
Posts : 2111
Posted 9/27/2007 9:38 AM (GMT -6)
Hi Everyone..............we leave Sunday FINALLY for the Mayo Clinic.

Oddly enough these past 2 weeks he has had far more better days than bad.  (Kind of like bringing your car to the mechanic - stops making the noise or problem you made the appt for....lol).  It really does appear to be the start of a remission with everything that is going on for him.  Major improvement is 4-6 BMs a day which usually is 2 or 3 with well formed stool and the others are usually just gas related.  My major concern is being able to get off the pain meds.  I don't like the reliance on them but it is a touchy subject....that is what has allowed him to function and go out and play golf and do some "normal things" with frequency and not having to stay indoors due to pain or urgency.

The data base spreadsheet I have done up in prep for this was a good idea.  It really does show the pattern (and major improvement overall) regarding the BM's.  When you start to feel better and have a functional life you don't realize until you see it detailed on paper where you currently are and where you were only 4 months ago.  He is maintaining a safe diet that seems to agree with him and not "rock the boat".  He will have a little something here and there to test the waters and hasn't had any bad reactions that we can see.

I was kind of afraid that by the time we got this appt and would go there that possibly the combination of Asacol with the Imuran might take hold and make a difference which it seems to be doing.  It was 4 1/2 months ago the Imuran was started and I know it is 3-6 months usually for it to help if it is going to help.  If we didn't have this appt I think we would both be kind of satisfied where we are at the moment.

Regardless of the additional hotel expense and maybe some uncovered insurance expenses I'm sure it is still important to go and have them as part of the healthcare for hubby.  Our local place is very good but it's a small practice in comparison and they urged us to get care there as well to make sure he is on the proper road to remission.

I am sooooooooooooooo overly prepared and have a number of things to inquire about based on info I have been collecting here at Healing Well.

Kind of jazzed about going there and getting their opinion on some of these things and insight for potential down the road stuff to consider as well.

I hope we are only there for the week or less and home by the weekend.  We leave for Aruba the following week and would like to be back here to get the Aruba stuff ready even though I started already packing for there. (Our Aruba trip last year was not good as he was flaring and in the midst of alot of major discomfort so it is kind of nice that things have turned around for him at this point and w can look forward to this vacation.)

I will try to post an update with our results when we get back.  And THANKS SO MUCH for all that you have given me to be able to advocate on his behalf even though sometimes I was a pain in the rear end (ha ha) constantly reporting back and forth to him about this and that as he just could not sit at the computer and still doesn't....I've won that job with Healing Well now!!!

Take care all.  You've become my extended family and I appreciate you!!!

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NuffinButtTrouble
Veteran Member
Joined : Mar 2007
Posts : 679
Posted 9/27/2007 11:35 AM (GMT -6)
Another UC wife,

Excellent news, it's not often that we get to hear good news with this condition...may I ask what the "safe diet" is?

thx,

NBT
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quincy
Elite Member
Joined : May 2003
Posts : 33222
Posted 9/27/2007 11:51 AM (GMT -6)
You're prepared fully...that's the best thing you can do. At least you'll understand the answers you'll be getting for the wonderful formulated questions you'll be asking. I'm sure the docs will appreciate it (or not..lol..since you'll be making them work a bit harder).

I can't wait to hear the updates.

Have an awesome time in Aruba.

You a pita? Nevah!

quincy xx
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barbl
Regular Member
Joined : Jul 2006
Posts : 320
Posted 9/27/2007 11:54 AM (GMT -6)
Have a great trip!

Visualizing complete remission yeah

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Another UC wife
Veteran Member
Joined : Jun 2007
Posts : 2111
Posted 9/27/2007 3:30 PM (GMT -6)
I'm chuckling here....about his safe diet....it is safe for him anyway....considering when he was flaring so badly he ate so little. For him what does not seem to bother him are -- eggs, pasta with some butter, cereal with 1 % milk, he eats the Boston Market turkey dinner with mash potato entree almost every day (the smaller size one with no stuffing or mushy vegetables) shrimp on occasion with pasta in a light scampi type sauce, at night he loves popsicles - he switches from the regular and the artificial sweetened ones and milk duds!!! Chicken soup agrees with him very well. Applesauce. Tea with honey and coffee on a very rare occasion and stoppped all the carbonated drinks.

He will order fish outside - sometimes fried but takes off the batter - 3 or 4 french fries. Also fruit in moderation.

Some of these foods wreak havoc for others but these seem to be ok for him anyway.

Heather,,,,, didn't catch what the Pita reference was....nevah is definitely how we say "never" with our Bostonian accent :-)
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quincy
Elite Member
Joined : May 2003
Posts : 33222
Posted 9/27/2007 5:27 PM (GMT -6)
Pain In The A (butt) (pita)  nono tongue

H scool

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Another UC wife
Veteran Member
Joined : Jun 2007
Posts : 2111
Posted 9/27/2007 5:34 PM (GMT -6)
Oh Heather.....I'm used to just PIA -- that extra lettah threw me...lol
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chicagoatc
Regular Member
Joined : Sep 2006
Posts : 133
Posted 9/27/2007 7:53 PM (GMT -6)

  I wish you so much luck and can't wait to hear how it goes!

Becky

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marty1976
Veteran Member
Joined : Nov 2005
Posts : 2045
Posted 9/28/2007 9:06 AM (GMT -6)
Good Luck, i hope it all goes well.
KEEP THE FAITH
M arty
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