EPD??

Hello everybody, Ive been following the forum for some time so i wouldn't say im new, but this is my first post... So anyways I saw my doctor(one of many lol) about a month ago and he mentioned to me something called enzyme potentiated dessensification. From what I undertstand it's only used in Canada, England and I think maybe Europe. Here is a link you can go to read up on it by yourself. http://www.dma.org/~rohrers/allergy/epd_faq.htm#3.1 , I was wondering if anybody else has heard of this or has tried it, and if so what kind of results if any have you had???

It's nice to have somewhere to talk with people with the same health issues. It's also comforting to know that im not the only one dealing with these issues.

**Just activated your link :)

Post Edited By Moderator (dakotagirl) : 9/27/2007 10:06:51 PM (GMT-6)

If you read the link i posted you can see how it is connected to UC.. Apparently the EPD treatment has been shown to help some people with their UC symptoms and even put some into long term remission.. The doctor explained to me that it is possible to be allergic to your own gut bacteria and that this treatment would desenssitize you to them. I don't know a whole lot im still researching.

And i was diagnosed new years of 2005, from what i understand it affects my whole colon.. But that i dont even know for sure because my doctor is a joke. Im in the midst of getting anotehr referal to see another gi. And as for meds, i try to stay off of them, i dont like the fact of having to depend on meds for the rest of my life even tho i know it is necessary for some and possibly may be for me some day. When I was first dieagnosed they gave me a course of prednisone, a 6 week term, and also salofalk. I was to take the salofalk everyday indefinitely, 10 pills in total 3 in the morning 3 at lunch and 4 at night, after about 6 months i had another flare up and didnt believe that the salofalk was even doing anything so i told my doc i wanted to discontinue taking that. He said its up to you. So pretty meach i stay off the meds and watch my diet whilee im in remissions(my longest so far has only been 8 months, i was dong well but i think am heavy night at the bar put me back into a flare up).. So yeah anyways right now im just taking a pack of VSL in the morning with a fiber supplement and my multivitamins.. I just got finished a flare about a month ago.

Whatever works for you..trial and error.

I'd also suggest you do more research on the meds...prednisone is something you can refuse..I'm hardcore 5ASA,however, so my tendency is to suggest that because it works well for me 18+ years so far.

q

---

*Heather*Status:mini flare June 23* 6asacol daily+ Salofalk (tapered every 3rd night)

~diagnosed January 1989 UC (proctosigmoiditis)

~5ASA: Asacol + Salofalk enemas (increase for flares tapered to maintenance)

~Bentylol (dicyclomine) 20mg as needed

~vitamins/minerals 

~Probiotic 2 (Natural Factors Protec) + 1 (Primadophilus Reuteri) at bedtime

~Natural Factors Multi Digestive Enzymes with supper

~Ranitidine,Pariet (reflux) Effexor XR 75mg;  Pulmicort/Airomir (asthma)

~URSO for PSC (or PBC) 500mg X 2 daily (LFTs back to NORMAL!!)

My doc's logic.. "TREAT (FROM)BOTH ENDS"  worth it !!!