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kickboxer
Regular Member


Date Joined Sep 2007
Total Posts : 123
   Posted 9/27/2007 4:28 PM (GMT -7)   
Hello everybody, Ive been following the forum for some time so i wouldn't say im new, but this is my first post... So anyways I saw my doctor(one of many lol) about a month ago and he mentioned to me something called enzyme potentiated dessensification. From what I undertstand it's only used in Canada, England and I think maybe Europe. Here is a link you can go to read up on it by yourself. http://www.dma.org/~rohrers/allergy/epd_faq.htm#3.1 , I was wondering if anybody else has heard of this or has tried it, and if so what kind of results if any have you had???

It's nice to have somewhere to talk with people with the same health issues. It's also comforting to know that im not the only one dealing with these issues.
 
**Just activated your link :)

Post Edited By Moderator (dakotagirl) : 9/27/2007 10:06:51 PM (GMT-6)


quincy
Elite Member


Date Joined May 2003
Total Posts : 29856
   Posted 9/28/2007 11:05 PM (GMT -7)   
hi..why would your doctor have suggested this and how is it connected to UC?

When were you diagnosed, where in the colon is your UC and what meds are you on?

You haven't mentioned your health issues...just checking if you're in the right forum.

quincy
*Heather*Status:mini flare June 23* 6asacol daily+ Salofalk (tapered every 3rd night)
~diagnosed January 1989 UC (proctosigmoiditis)
~5ASA: Asacol + Salofalk enemas (increase for flares tapered to maintenance)
~Bentylol (dicyclomine) 20mg as needed
~vitamins/minerals 
~Probiotic 2 (Natural Factors Protec) + 1 (Primadophilus Reuteri) at bedtime
~Natural Factors Multi Digestive Enzymes with supper
~Ranitidine,Pariet (reflux) Effexor XR 75mg;  Pulmicort/Airomir (asthma)
~URSO for PSC (or PBC) 500mg X 2 daily (LFTs back to NORMAL!!)
My doc's logic.. "TREAT (FROM)BOTH ENDS"  worth it !!!


kickboxer
Regular Member


Date Joined Sep 2007
Total Posts : 123
   Posted 9/30/2007 6:52 AM (GMT -7)   
If you read the link i posted you can see how it is connected to UC.. Apparently the EPD treatment has been shown to help some people with their UC symptoms and even put some into long term remission.. The doctor explained to me that it is possible to be allergic to your own gut bacteria and that this treatment would desenssitize you to them. I don't know a whole lot im still researching.

And i was diagnosed new years of 2005, from what i understand it affects my whole colon.. But that i dont even know for sure because my doctor is a joke. Im in the midst of getting anotehr referal to see another gi. And as for meds, i try to stay off of them, i dont like the fact of having to depend on meds for the rest of my life even tho i know it is necessary for some and possibly may be for me some day. When I was first dieagnosed they gave me a course of prednisone, a 6 week term, and also salofalk. I was to take the salofalk everyday indefinitely, 10 pills in total 3 in the morning 3 at lunch and 4 at night, after about 6 months i had another flare up and didnt believe that the salofalk was even doing anything so i told my doc i wanted to discontinue taking that. He said its up to you. So pretty meach i stay off the meds and watch my diet whilee im in remissions(my longest so far has only been 8 months, i was dong well but i think am heavy night at the bar put me back into a flare up).. So yeah anyways right now im just taking a pack of VSL in the morning with a fiber supplement and my multivitamins.. I just got finished a flare about a month ago.

Sara14
Veteran Member


Date Joined Mar 2007
Total Posts : 4034
   Posted 9/30/2007 12:42 PM (GMT -7)   
This is really interesting. Thanks for posting.
23 years old
Diagnosed with UC March 2007
Current inflamation in the rectum
Asacol 4 tablets 3x/day
Rowasa (generic) - nightly
Nature's Way Primadophilus Reuteri 1/day; Chewable multivitamin


quincy
Elite Member


Date Joined May 2003
Total Posts : 29856
   Posted 9/30/2007 2:15 PM (GMT -7)   
Whatever works for you..trial and error.

I'd also suggest you do more research on the meds...prednisone is something you can refuse..I'm hardcore 5ASA,however, so my tendency is to suggest that because it works well for me 18+ years so far.

q
*Heather*Status:mini flare June 23* 6asacol daily+ Salofalk (tapered every 3rd night)
~diagnosed January 1989 UC (proctosigmoiditis)
~5ASA: Asacol + Salofalk enemas (increase for flares tapered to maintenance)
~Bentylol (dicyclomine) 20mg as needed
~vitamins/minerals 
~Probiotic 2 (Natural Factors Protec) + 1 (Primadophilus Reuteri) at bedtime
~Natural Factors Multi Digestive Enzymes with supper
~Ranitidine,Pariet (reflux) Effexor XR 75mg;  Pulmicort/Airomir (asthma)
~URSO for PSC (or PBC) 500mg X 2 daily (LFTs back to NORMAL!!)
My doc's logic.. "TREAT (FROM)BOTH ENDS"  worth it !!!


kickboxer
Regular Member


Date Joined Sep 2007
Total Posts : 123
   Posted 10/1/2007 5:15 AM (GMT -7)   
I know I can refuse prednisone.. How long does the 5ASA take to work for you?? Im aware that there is other drugs, i'll admit tho that i dont know much about them or how they work. But what i do know is that when im in a flare prednisone does work extremely well, really i dont get many side effectsd either as long as i only do a 6 week course. Maybe some headaches here and there and a slighlty chubbier face, but those are thing i can deal with at the moment to be feeling better.. Right now im in college and very active in the sport of kickboxing and when im having a flare the last thing i want is for it to be around any longer than it has to be.. Although now that i have been using VSL#3 im gonna see if i can put a flare back into remission by uping the amount of packets i intake a day and see if that helps.. I know prednisone is really bad for u, but in my situation i feel its my best option.. Please give me some more info on the 5ASA if you dont mind, Thanks!!
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