Sorry for being away for so long.

marty1976

Veteran Member

Joined : Nov 2005

Posts : 2045

Posted 9/28/2007 9:00 AM (GMT -6)

I should be abe to get on a bit more. My daughter has been really ill and we have been at 3 different hospitals with her in past 2 weeks, so i haven't been at home much.Hope everyone is doing well.

Marty

keep the faith

Pred40mgs/asacol/proctifoam/omoparazole 40mgs/Domperidone10mgs x 3 daily

http://www.myspace.com/martybuzz1<FONT]

Red_34

Elite Member

Joined : Apr 2004

Posts : 23551

Posted 9/28/2007 10:55 AM (GMT -6)

Hi Marty - hows your Uc been behaving with these hospital runs? I hope it's giving you a break so you can care for Beth. Hope you and your wife can finally take a deep breath......so is Beth home or she in the hospital?

^{@--->--SHERRY--<---@}

^{Left sided Uc -'92 - Colazal, Canasa, 6mp, Prilosec, Biotin, Forvia}

^{Secondary Reynauds Syndrome - '04 - Norvasc}

^{Fibromyalgia - '06}

^{PLEASE HELP HEALINGWELL CONTINUE TO HELP OTHERS BY CLICKING HERE: DONATE}

^{@--->--Moderator for Allergies/Asthma and Co-moderator for UC--<---@}

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marty1976

Veteran Member

Joined : Nov 2005

Posts : 2045

Posted 9/28/2007 2:28 PM (GMT -6)

She is here with us, we are never apart. She's doing a lot better. I'm not too good, but i'll be grand. I just have been so busy with Beth that my own health has been suffering. But i'm not too worried, i've been worse. Stupid Fibro flare causing me more hassle than i need right now.I'm also off the cigarettes since Monday. I made a promise that i would do it for my kids.I've been on that new drug Champix. So far so good, no bad cravings at all.I know it may not be a good time to do it, but i'm going to do it.

keep the faith

Pred40mgs/asacol/proctifoam/omoparazole 40mgs/Domperidone10mgs x 3 daily

http://www.myspace.com/martybuzz1<FONT]

jano437

Veteran Member

Joined : Jul 2005

Posts : 1614

Posted 9/28/2007 4:10 PM (GMT -6)

Hey Marty,
I hope that Beth is feeling better. Quiting smoking is hard, but hang in there. Take care of yourself and little Beth. My prayers are with you

Janice

Diagnosed July 2005 with Pancolitis

Asacol 4 tabs 3 times daily

GNC Probiotic

Forvia

calcium

Currently in Remission

http://mysite.verizon.net/vzewor6c

dmacell

Veteran Member

Joined : Nov 2005

Posts : 1003

Posted 9/28/2007 4:18 PM (GMT -6)

quiting smoking is one of the hardest things to do especially when your stressin. I think it was right up there with giving up caffeine. But anything that will keep me on this earth for a few years longer has gotta be worth it.

Danno

Did I mention how much I enjoy life?

Fulminent Ulcerative Colitis

2X500mg Pentasa 2x day

multivitamin

Remicade Remission

Bennie

Veteran Member

Joined : Nov 2006

Posts : 552

Posted 9/28/2007 4:25 PM (GMT -6)

Marty, glad you checked in. Sorry it has been rough recently for you. Hope Beth is feeling better soon. And please take good care of yourself too! I'll keep you in my thoughts.

--Mom of bratcat (16 years old)--

bratcat was diagnosed with pancolitis October 2006

Current meds:

Asacol - 4 pills/3Xday

Rowasa - 7/07 tapering slowly

hydrocortisone enema - alternating with Rowasa

11/14/06 - started prednisone; 1/28/07 - finished prednisone!

3/3/07 - began to taper off hydrocortisone sloowwly! No more hydrocortisone enemas! Summer 2007 - slowly began tapering Rowasa

Keeping our fingers and toes crossed!!

9/07 -- flaring? Nightly Rowasa. 9/21/07 -- added hydrocortison enemas.

dakotagirl

Veteran Member

Joined : Apr 2006

Posts : 3402

Posted 9/29/2007 4:45 PM (GMT -6)

Marty - so sorry to hear that little Beth has been so ill! Is she doing better now?

Hope you're feeling better too!

Congrats on quitting the cigs :)

Pan-colitis and GERD diagnosed May 2003

Asacol 12 per day, Azathioprine 75mg, Rowasa and Canasa as needed

Aciphex, Effexor XR, BCP, Rhinocort nasal spray

Culturelle, Biotin, Folic Acid, Forvia, Calcium, and B12

Osteopenia (hip and spine) from prednisone use. Started Azathioprine because I was steroid dependent.

Co-Mod for the UC forum

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quincy

Elite Member

Joined : May 2003

Posts : 31095

Posted 9/29/2007 1:24 PM (GMT -6)

Hi Marty...healing and caring thoughts for you and Beth. I hope that quitting smoking has eased the worries of your children..it's stressful for them to see you suffering....it's good that the med is helping with your cravings.

Heather xx

*Heather*Status:mini flare June 23* 6asacol daily+ Salofalk (tapered every 3rd night)

~diagnosed January 1989 UC (proctosigmoiditis)

~5ASA: Asacol + Salofalk enemas (increase for flares tapered to maintenance)

~Bentylol (dicyclomine) 20mg as needed

~vitamins/minerals

~Probiotic 2 (Natural Factors Protec) + 1 (Primadophilus Reuteri) at bedtime

~Natural Factors Multi Digestive Enzymes with supper

~Ranitidine,Pariet (reflux) Effexor XR 75mg; Pulmicort/Airomir (asthma)

~URSO for PSC (or PBC) 500mg X 2 daily (LFTs back to NORMAL!!)

My doc's logic.. "TREAT (FROM)BOTH ENDS" worth it !!!

marty1976

Veteran Member

Joined : Nov 2005

Posts : 2045

Posted 9/29/2007 7:48 PM (GMT 0)

She's doing ok. She was having sudden drops in her blood pressure, which is being investigated again by the cardiologists. She had a Myocardiatis at 8 months and she is 4 now, this is the first time that her heart has had any problems since.She contracted a viral infction a few weeks ago which set off a barrel of problems, 30 seizures daily and constant drowsiness. Very worrying.
The cardiologists have done loads of tests and her heart seems to be functioning properly and her ultra sounds and ecg's have been within normal limits.There are more tests to do.We are waiting for results from an EEG which was done in a hospital who have a department who excel in treating children with severe seizure activity.She also had a videofluoroscopy done on Thursday in Belfast which will finally determine if she is ever going to be able to eat or drink anything.It doesn't look good though as most kids with severe C/P don't usually get their swallow reflex back at any stage.
keep her in your prayers people, she's a truly remarkable girl.Here's a few recent pics of our angel.

http://s220.photobucket.com/albums/dd144/bethyboobuzz/

keep the faith

Pred40mgs/asacol/proctifoam/omoparazole 40mgs/Domperidone10mgs x 3 daily

http://www.myspace.com/martybuzz1<FONT]

Post Edited (fatboyslim) : 9/29/2007 1:17:10 PM (GMT-6)

tjf

Veteran Member

Joined : Dec 2005

Posts : 3238

Posted 9/29/2007 3:11 PM (GMT -6)

Wow.....I am sorry that your little one is going through so much. One of good buddy's daughter has a syndrome (charge) and she has a feeding tube. I know that is tough...especially with everything else she has going on.

Glad you checked in. We missed you! Please tell her we are thinking of her. Keep us updated!

Tabitha (Tab)

100mg Azathioprine, 2 Fibercon, Colazal-6 a day, Acidopholis Pearls, Prilosec OTC

http://www.healingwell.com/donate
Co-Moderator UC Forum

philly-fan

Regular Member

Joined : Dec 2006

Posts : 185

Posted 9/29/2007 9:57 PM (GMT -6)

Marty,
I will add you and your little Beth to my prayers. Try to not let the stress take you down, I know how hard that is to do.

- 5.0>

<FONT color=purple>Asacol 1200mg-3x a day,

<FONT color=#800080>Probiotic=metagenics ultra flora plus DF

<FONT color=blue>Heart meds

<FONT color=blue>Lipitor,Toprol, aspirin 81
synthroid

Red_34

Elite Member

Joined : Apr 2004

Posts : 23551

Posted 9/30/2007 7:02 AM (GMT -6)

Beth has the most amazing eyes and she always seems to be smiling. She is a very special girl Marty and you are doing a fantastic job with her. Good luck with the smoking........it's tough to quit.

^{@--->--SHERRY--<---@}

^{Left sided Uc -'92 - Colazal, Canasa, 6mp, Prilosec, Biotin, Forvia}

^{Secondary Reynauds Syndrome - '04 - Norvasc}

^{Fibromyalgia - '06}

^{PLEASE HELP HEALINGWELL CONTINUE TO HELP OTHERS BY CLICKING HERE: DONATE}

^{@--->--Moderator for Allergies/Asthma and Co-moderator for UC--<---@}

http://www.myspace.com/82595818

schrek-chewbacca hunk

Veteran Member

Joined : Jun 2005

Posts : 2666

Posted 9/30/2007 5:23 PM (GMT -6)

Poor Marty and Beth,

Hopes and prayers are always with you my friend. I am sorry I have not been here for you...I have not been completely myself of late. Love and hugs to your little one - and a big ole bear hug for you!

bob

marty1976

Veteran Member

Joined : Nov 2005

Posts : 2045

Posted 10/1/2007 11:25 AM (GMT -6)

Thanks everyone for your kind words.Beth continues to improve daily.
Love to all

keep the faith

Pred40mgs/asacol/proctifoam/omoparazole 40mgs/Domperidone10mgs x 3 daily

http://www.myspace.com/martybuzz1<FONT]

Dansky

Veteran Member

Joined : Mar 2005

Posts : 2844

Posted 10/1/2007 1:42 PM (GMT -6)

Marty,

Great to see improvement, sorry I too have been absent but just looking down at the keyboard causes too much pain my thoughts and prayers are with you though mate.

Take care.

Dave

Dansky Co-moderator UC forum

TAKE FLYING LESSONS ON A MOUNTAIN BIKE TODAY!

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Lisinopril

Sulfasalazine

Azathioprine
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