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marty1976
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Date Joined Nov 2005
Total Posts : 2045
   Posted 9/28/2007 7:00 AM (GMT -7)   
I should be abe to get on a bit more. My daughter has been really ill and we have been at 3 different hospitals with her in past 2 weeks, so i haven't been at home much.Hope everyone is doing well.
            Marty
keep the faith

Pred40mgs/asacol/proctifoam/omoparazole 40mgs/Domperidone10mgs x 3 daily




http://www.myspace.com/martybuzz1<FONT]


Red_34
Forum Moderator


Date Joined Apr 2004
Total Posts : 23549
   Posted 9/28/2007 8:55 AM (GMT -7)   
Hi Marty - hows your Uc been behaving with these hospital runs? I hope it's giving you a break so you can care for Beth. Hope you and your wife can finally take a deep breath......so is Beth home or she in the hospital?
 @--->--SHERRY--<---@
Left sided Uc -'92 - Colazal, Canasa, 6mp, Prilosec, Biotin, Forvia
Secondary Reynauds Syndrome - '04 - Norvasc
Fibromyalgia - '06 
PLEASE HELP HEALINGWELL CONTINUE TO HELP OTHERS BY CLICKING HERE: DONATE
@--->--Moderator for Allergies/Asthma and Co-moderator for UC--<---@
 
 
 
 

 
 


marty1976
Veteran Member


Date Joined Nov 2005
Total Posts : 2045
   Posted 9/28/2007 12:28 PM (GMT -7)   
She is here with us, we are never apart. She's doing a lot better. I'm not too good, but i'll be grand. I just have been so busy with Beth that my own health has been suffering. But i'm not too worried, i've been worse. Stupid Fibro flare causing me more hassle than i need right now.I'm also off the cigarettes since Monday. I made a promise that i would do it for my kids.I've been on that new drug Champix. So far so good, no bad cravings at all.I know it may not be a good time to do it, but i'm going to do it.
keep the faith

Pred40mgs/asacol/proctifoam/omoparazole 40mgs/Domperidone10mgs x 3 daily




http://www.myspace.com/martybuzz1<FONT]


jano437
Veteran Member


Date Joined Jul 2005
Total Posts : 1611
   Posted 9/28/2007 2:10 PM (GMT -7)   
Hey Marty,
I hope that Beth is feeling better. Quiting smoking is hard, but hang in there. Take care of yourself and little Beth. My prayers are with you

Janice
Diagnosed July 2005 with Pancolitis
Asacol 4 tabs 3 times daily
GNC Probiotic
Forvia
calcium 
Currently in Remission


dmacell
Veteran Member


Date Joined Nov 2005
Total Posts : 1003
   Posted 9/28/2007 2:18 PM (GMT -7)   
quiting smoking is one of the hardest things to do especially when your stressin. I think it was right up there with giving up caffeine. But anything that will keep me on this earth for a few years longer has gotta be worth it.
Danno
Did I mention how much I enjoy life?
 
Fulminent Ulcerative Colitis
2X500mg Pentasa 2x day 
multivitamin
Remicade Remission


Bennie
Veteran Member


Date Joined Nov 2006
Total Posts : 552
   Posted 9/28/2007 2:25 PM (GMT -7)   
Marty, glad you checked in. Sorry it has been rough recently for you. Hope Beth is feeling better soon. And please take good care of yourself too!  I'll keep you in my thoughts.

--Mom of bratcat (16 years old)--
bratcat was diagnosed with pancolitis October 2006
Current meds:
Asacol - 4 pills/3Xday
Rowasa - 7/07 tapering slowly
 
hydrocortisone enema - alternating with Rowasa
11/14/06 - started prednisone; 1/28/07 - finished prednisone!
3/3/07 - began to taper off hydrocortisone sloowwly! No more hydrocortisone enemas! Summer 2007 - slowly began tapering Rowasa
Keeping our fingers and toes crossed!!
9/07 -- flaring? Nightly Rowasa. 9/21/07 -- added hydrocortison enemas.


dakotagirl
Veteran Member


Date Joined Apr 2006
Total Posts : 3402
   Posted 9/29/2007 8:45 AM (GMT -7)   
Marty - so sorry to hear that little Beth has been so ill! Is she doing better now?

Hope you're feeling better too!

Congrats on quitting the cigs :)
Pan-colitis and GERD diagnosed May 2003
 
Asacol 12 per day,  Azathioprine 75mg, Rowasa and Canasa as needed
Aciphex, Effexor XR, BCP, Rhinocort nasal spray
Culturelle, Biotin, Folic Acid, Forvia, Calcium, and B12
 
Osteopenia (hip and spine) from prednisone use.  Started Azathioprine because I was steroid dependent.
 
Co-Mod for the UC forum
Keep HealingWell running smoothly:  www.healingwell.com/donate


quincy
Elite Member


Date Joined May 2003
Total Posts : 29843
   Posted 9/29/2007 11:24 AM (GMT -7)   
Hi Marty...healing and caring thoughts for you and Beth. I hope that quitting smoking has eased the worries of your children..it's stressful for them to see you suffering....it's good that the med is helping with your cravings.

Heather xx
*Heather*Status:mini flare June 23* 6asacol daily+ Salofalk (tapered every 3rd night)
~diagnosed January 1989 UC (proctosigmoiditis)
~5ASA: Asacol + Salofalk enemas (increase for flares tapered to maintenance)
~Bentylol (dicyclomine) 20mg as needed
~vitamins/minerals 
~Probiotic 2 (Natural Factors Protec) + 1 (Primadophilus Reuteri) at bedtime
~Natural Factors Multi Digestive Enzymes with supper
~Ranitidine,Pariet (reflux) Effexor XR 75mg;  Pulmicort/Airomir (asthma)
~URSO for PSC (or PBC) 500mg X 2 daily (LFTs back to NORMAL!!)
My doc's logic.. "TREAT (FROM)BOTH ENDS"  worth it !!!


marty1976
Veteran Member


Date Joined Nov 2005
Total Posts : 2045
   Posted 9/29/2007 11:48 AM (GMT -7)   
She's doing ok. She was having sudden drops in her blood pressure, which is being investigated again by the cardiologists. She had a Myocardiatis at 8 months and she is 4 now, this is the first time that her heart has had any problems since.She contracted a viral infction a few weeks ago which set off a barrel of problems, 30 seizures daily and constant drowsiness. Very worrying.
The cardiologists have done loads of tests and her heart seems to be functioning properly and her ultra sounds and ecg's have been within normal limits.There are more tests to do.We are waiting for results from an EEG which was done in a hospital who have a department who excel in treating children with severe seizure activity.She also had a videofluoroscopy done on Thursday in Belfast which will finally determine if she is ever going to be able to eat or drink anything.It doesn't look good though as most kids with severe C/P don't usually get their swallow reflex back at any stage.
keep her in your prayers people, she's a truly remarkable girl.Here's a few recent pics of our angel.
 


keep the faith

Pred40mgs/asacol/proctifoam/omoparazole 40mgs/Domperidone10mgs x 3 daily




http://www.myspace.com/martybuzz1<FONT]

Post Edited (fatboyslim) : 9/29/2007 1:17:10 PM (GMT-6)


tjf
Veteran Member


Date Joined Dec 2005
Total Posts : 3238
   Posted 9/29/2007 1:11 PM (GMT -7)   
Wow.....I am sorry that your little one is going through so much. One of good buddy's daughter has a syndrome (charge) and she has a feeding tube. I know that is tough...especially with everything else she has going on.

Glad you checked in. We missed you! Please tell her we are thinking of her. Keep us updated!
Tabitha (Tab)

100mg Azathioprine, 2 Fibercon, Colazal-6 a day, Acidopholis Pearls, Prilosec OTC

http://www.healingwell.com/donate
Co-Moderator UC Forum


philly-fan
Regular Member


Date Joined Dec 2006
Total Posts : 185
   Posted 9/29/2007 7:57 PM (GMT -7)   
Marty,
I will add you and your little Beth to my prayers. Try to not let the stress take you down, I know how hard that is to do.

- 5.0>

<FONT color=purple>Asacol 1200mg-3x a day,


<FONT color=#800080>Probiotic=metagenics ultra flora plus DF




<FONT color=blue>Heart meds


<FONT color=blue>Lipitor,Toprol, aspirin 81
synthroid


Red_34
Forum Moderator


Date Joined Apr 2004
Total Posts : 23549
   Posted 9/30/2007 5:02 AM (GMT -7)   
Beth has the most amazing eyes and she always seems to be smiling. She is a very special girl Marty and you are doing a fantastic job with her. Good luck with the smoking........it's tough to quit.
 @--->--SHERRY--<---@
Left sided Uc -'92 - Colazal, Canasa, 6mp, Prilosec, Biotin, Forvia
Secondary Reynauds Syndrome - '04 - Norvasc
Fibromyalgia - '06 
PLEASE HELP HEALINGWELL CONTINUE TO HELP OTHERS BY CLICKING HERE: DONATE
@--->--Moderator for Allergies/Asthma and Co-moderator for UC--<---@
 
 
 
 

 
 


schrek-chewbacca hunk
Veteran Member


Date Joined Jun 2005
Total Posts : 2666
   Posted 9/30/2007 3:23 PM (GMT -7)   

Poor Marty and Beth,

Hopes and prayers are always with you my friend.  I am sorry I have not been here for you...I have not been completely myself of late.  Love and hugs to your little one - and a big ole bear hug for you!

bob


marty1976
Veteran Member


Date Joined Nov 2005
Total Posts : 2045
   Posted 10/1/2007 9:25 AM (GMT -7)   
Thanks everyone for your kind words.Beth continues to improve daily.
Love to all
keep the faith

Pred40mgs/asacol/proctifoam/omoparazole 40mgs/Domperidone10mgs x 3 daily




http://www.myspace.com/martybuzz1<FONT]


Dansky
Veteran Member


Date Joined Mar 2005
Total Posts : 2844
   Posted 10/1/2007 11:42 AM (GMT -7)   
Marty,

Great to see improvement, sorry I too have been absent but just looking down at the keyboard causes too much pain my thoughts and prayers are with you though mate.

Take care.

Dave
Dansky Co-moderator UC forum
 TAKE FLYING LESSONS ON A MOUNTAIN BIKE TODAY!
Bisoprolol Fumarate
Lisinopril
Sulfasalazine
Azathioprine
Prednisolone
Pariet
Citalopram Hydrobromide
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