She's doing ok. She was having sudden drops in her blood pressure, which is being investigated again by the cardiologists. She had a Myocardiatis at 8 months and she is 4 now, this is the first time that her heart has had any problems since.She contracted a viral infction a few weeks ago which set off a barrel of problems, 30 seizures daily and constant drowsiness. Very worrying.
The cardiologists have done loads of tests and her heart seems to be functioning properly and her ultra sounds and ecg's have been within normal limits.There are more tests to do.We are waiting for results from an EEG which was done in a hospital who have a department who excel in treating children with severe seizure activity.She also had a videofluoroscopy done on Thursday in Belfast which will finally determine if she is ever going to be able to eat or drink anything.It doesn't look good though as most kids with severe C/P don't usually get their swallow reflex back at any stage.
keep her in your prayers people, she's a truly remarkable girl.Here's a few recent pics of our angel.