I've had two infusions, they seem to work very well for me but just for about a month. I am due for another in two weeks. My GI thinks that stresses in my life are affecting the UC a lot (loooong story, but yesterday he put me on Lexipro for situational depression and I hope that helps). After just a day or two after my infusions I felt like I never had UC. I was off the Rowesa (back on it for the time being, did NOT miss the purple toilet stains and going to bed early to take care of biz before hubby came up) and was finally getting off Prednisone. Then my symptoms came back after a month.
I was started on Lialda today, I have been reading here that it works better than Colazal for some people, it's certainly nice to take pills in the mornng and not have to sweat them again for the rest of the day.
It would be nice to go back to no meds at all, but with UC your son will probably always be on something, probably Asacol, Colozal or Lialda to try to keep him in remission. Remicade really gives me a lot of relief when it's working.
Diagnosed UC April 27, 2006
Remicade: 1st infusion 7/21/07; 2nd infusion 8/18/07
Lialda, 4 tabs in the morning; Protonix; Prednisone 4/27/06-present, holding taper at alternating 5/0 mg; Xanax; Lexipro, Rowesa
; Asacol; Colazal three 750 mg capsules 3X day;
[2/22/07 started Imuran, off within two weeks due to bad reaction]