Posted 10/1/2007 3:41 PM (GMT -7)
Sorry, have not been able to post -

Yes I have had UC since about 99 - had times were it was gone - then when I had our son in 2003 - WOW - it came back with a force - lost 130 LBS before I gave in and went to the doc......
the GI and I did not see eye to eye on everything but I kept trying. I dont think diet starts UC but when you are in a flare - I have to be careful.

Anyway I got sick - an infection in my leg in 2005 = they never could figure out why, but it was possible of immune system due to the pills from the UC - so I stopped taking all of it.

Well, I now take Xanax XR 1mg tablets, I was taking psyllium husk fiber .52 mg per tablet. I was taking the ( and am back to taking them ) 6-7 pills 2 or 3 times per day. I take Probiotics, calcium with Vitamin D, and slow release Iron. I was having some formed BMS sometimes a little blood but very little - and very little mucus

Well when I went to the new GI last week he told me that fiber can be rough on the colon and I need to take Imodium AD -
plus
Lialda 1.2 mg ( 2 of them) in the AM
canasa 1000 mg suppositories 2 xs per day

he told me to take the Probiotics, calcium with Vitamin D, and slow release Iron
just no fiber - replace it with Imodium A-D

WELL!!!!!!!!!

I did that for 2 days and had almost a full red bowel in the bathroom - sorry for graphics - I have been taking the fiber yesterday and today - all is back to normal and have not seen any blood today - and starting to get formed BMs back.

I thought about calling the GI - I have my first scope with him on the 16? of October.

I am glad to know that others are not fans of Imodium A-D - the first doc had me taking 10-15 per day -
this time I only took 3 for the whole day.
Posted 10/2/2007 1:04 AM (GMT -7)
Wow...interesting regarding the imodium daily dosage. It's not to say you can't ever take them....but I think that if it's flare related, you shouldn't unless you absolutely need to for an occasion, etc.

It seems the fibre is working for you already...which is awesome. What form of psyllium are you taking and how much?

I personally would encourage you to ask for the retention enemas rather than using the Canasa. It'll treat up to and into the sigmoid.

Hope each day you feel better.

Some doctors..sheesh!

quincy
*Heather*Status:mini flare June 23* 6asacol daily+ Salofalk (tapered every 3rd night)
~diagnosed January 1989 UC (proctosigmoiditis)
~5ASA: Asacol + Salofalk enemas (increase for flares tapered to maintenance)
~Bentylol (dicyclomine) 20mg as needed
~vitamins/minerals 
~Probiotic 2 (Natural Factors Protec) + 1 (Primadophilus Reuteri) at bedtime
~Natural Factors Multi Digestive Enzymes with supper
~Ranitidine,Pariet (reflux) Effexor XR 75mg;  Pulmicort/Airomir (asthma)
~URSO for PSC (or PBC) 500mg X 2 daily (LFTs back to NORMAL!!)
My doc's logic.. "TREAT (FROM)BOTH ENDS"  worth it !!!

Posted 10/2/2007 4:56 AM (GMT -7)
10-15 a day??? Holy cow! What he trying to send you the hospital???? I can't believe a doctor would say that let alone a GI. I tried Immodium years ago and it didn't agree with me at all. I only took 2 or so and had such a horrible rebound affect and my gut hurt for a long time. Occasional use of Immodium is ok, like when you need to be in social situations but as long as you don't use it long term or in high doses you should be ok.


 @--->--SHERRY--<---@
Left sided Uc -'92 - Colazal, Canasa, 6mp, Prilosec, Biotin, Forvia
Secondary Reynauds Syndrome - '04 - Norvasc
Fibromyalgia - '06 
PLEASE HELP HEALINGWELL CONTINUE TO HELP OTHERS BY CLICKING HERE: DONATE
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Posted 10/2/2007 5:11 AM (GMT -7)
I used imodium that way, Red_34. Some people, like me, can tolerate and need that many in order not to get dehydrated. I used to take 6 when I got up in the morning prior to work. I'd then pop several more throughout the day. I had no problems and my GI was fully aware of it. Now in remission, I couldn't possibly take that much. Everyone's different.
 

Posted 10/2/2007 6:22 AM (GMT -7)
I'm going to get some bulking fiber today and I did use immodium one night last week and will be using it this weekend have a friends wedding to go to....i'm afraid if I use it too much it will make me sicker or lose it's potency.
Beth, 31
UC Diagnosed March 2000
Hydrocortisone enemas 1xday
Lialda 2.4mg 1xday since 8/24/07 ;prev. Asacol 4800mg day,Calcium and Vit D 500mg 3xday.
Minimal Change Disease (Kidney Disorder) Diagnosed Sept 2007
Prednisone 60mg 1xday, Simvastatin 20mg 1xday, Diovan 80mg 1xday. Fosomax 70mg 1xweek. MCD may be from hypersensitivty to 5ASA drugs.

Posted 10/2/2007 6:49 AM (GMT -7)
Burli, I'm very aware that everyone is different but obviously the immodium didn't agree with Okiemom. 10-15 a day is asking for trouble in SOME people. And to me, that seems like an awefully high dose to be on because anti-D's can increase the risk of toxic megacolon in people with UC. That is why it is to be used sparingly and only if needed. I realize that some people are ok with immodium and have no difficulty but the facts are the majority of people with Uc should always use caution when taking this.
 @--->--SHERRY--<---@
Left sided Uc -'92 - Colazal, Canasa, 6mp, Prilosec, Biotin, Forvia
Secondary Reynauds Syndrome - '04 - Norvasc
Fibromyalgia - '06 
PLEASE HELP HEALINGWELL CONTINUE TO HELP OTHERS BY CLICKING HERE: DONATE
@--->--Moderator for Allergies/Asthma and Co-moderator for UC--<---@
 
 
 
 

 
 

Posted 10/2/2007 7:40 AM (GMT -7)
It was the GI before the one I am currently seeing that had me taking that many.

Now I just tried to take 2 - 3 per day and that is what happend - the blood was horriable. I stopped taking them and the next day it went away.

I plan to call new GI and tell him what happend when I tried to take Imoduim.
I would not suggest anyone take that many at a time. Again some people recat differently do different things.

The bulking fiber seems to work better in the long run for me.

I am not sure what toxic megacolon is.
Diagonsed with UC in about 99 - 
Started new GI 9-25-07
Lialda 2.4 in AM(started 9-26-07) canasa 1000mg  2xs per day(started 9-26-07)
Probiotics, calcium with Vitamin D, slow release Iron, Psyllium Husk Fiber. 

Posted 10/2/2007 9:02 AM (GMT -7)
http://ibdcrohns.about.com/od/ulcerativecolitis/a/toxicmegacolon.htm

You will need to copy and paste to your webbrowser.
 @--->--SHERRY--<---@
Left sided Uc -'92 - Colazal, Canasa, 6mp, Prilosec, Biotin, Forvia
Secondary Reynauds Syndrome - '04 - Norvasc
Fibromyalgia - '06 
PLEASE HELP HEALINGWELL CONTINUE TO HELP OTHERS BY CLICKING HERE: DONATE
@--->--Moderator for Allergies/Asthma and Co-moderator for UC--<---@
 
 
 
 

 
 

Posted 10/2/2007 4:56 PM (GMT -7)
Just to set things straight. I would never suggest others pop 4-6 imodiums in a whole day let alone at one time as I have done on occaisions. Don't do as I do they always say? I've had UC for a long time and know my conditions and body well. I clear everything through my GI. He suggested I increase my dosage as needed in order to prevent me from complications due to severe diarrhea I was having. I agree that imodium can cause TM and TM can lead to death.
 

Posted 10/2/2007 8:43 PM (GMT -7)
I do not know why I started reacting to the Imodium. But after living with UC - nothing seems to stay constant :)
Diagonsed with UC in about 99 - 
Started new GI 9-25-07
Lialda 2.4 in AM(started 9-26-07) canasa 1000mg  2xs per day(started 9-26-07)
Probiotics, calcium with Vitamin D, slow release Iron, Psyllium Husk Fiber. 

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