Bratcat marched in the homecoming parade!

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Bennie
Veteran Member


Date Joined Nov 2006
Total Posts : 552
   Posted 9/29/2007 11:54 AM (GMT -7)   
As most of you know, bratcat started flaring again about 2 weeks ago, almost exactly one year since she first flared. This time around though she was already diagnosed and on medication. She has been out of school for the past week and a half. I have seen a little improvement each day since she added the hydrocortisone enemas. Her doctor is trying to hold off putting her back on steroids (even at a low dose). We spoke with him on Thursday and he said, unless we felt a need to speak with him over the weekend, we should touch base with him on Monday. If bratcat continues to slowly improve, hopefully she will go back to school (at least for a few classes) this week.
 
However, today was Homecoming. Bratcat is in the symphonic band and they are amazing to listen to. Last year she was very sick (she had her colonoscopy 3 days after Homecoming last year). She sat on the sidelines and I can vividly remember how sick she looked. This year she was determined to march. We had to make one stop on the way to the parade for a bathroom break but we got to the lineup. She hasn't seen anyone for almost 2 weeks. It was wonderful to see the response from the kids and the teachers. Rather than watch with my husband from our usual spot, she asked me to walk along the parade route staying near her band (just in case).  She plays trombone and was in the middle of the entire band. It was great watching her play and march (and having had to keep up I can tell you they really move at a quick pace). (If you get a chance, listen to the songs Vehicle and Horse on the computer to hear what they played.) It was a one and a half mile parade. By the end she was wiped out (and we forgot to bring a water bottle). She got back to the truck, got a drink, got her body temperature leveled out and felt a bit better. Right now she is totally exhausted and is taking a nap. But she made it through the parade!
 
And by the way, her younger brother marched with his middle school band for the first time this year. He plays trombone also. And he was fabulous (they played Yankee Doodle Dandy)! Hey you never know if he is going to check out this website--I had to give a shout out to him too.
--Mom of bratcat (16 years old)--
bratcat was diagnosed with pancolitis October 2006
Current meds:
Asacol - 4 pills/3Xday
Rowasa - 7/07 tapering slowly
 
hydrocortisone enema - alternating with Rowasa
11/14/06 - started prednisone; 1/28/07 - finished prednisone!
3/3/07 - began to taper off hydrocortisone sloowwly! No more hydrocortisone enemas! Summer 2007 - slowly began tapering Rowasa
Keeping our fingers and toes crossed!!
9/07 -- flaring? Nightly Rowasa. 9/21/07 -- added hydrocortison enemas.


potty girl
Veteran Member


Date Joined Dec 2006
Total Posts : 835
   Posted 9/29/2007 12:09 PM (GMT -7)   
Glad to hear she made it threw ok, even though she was worn out after, she probably enjoyed being out there with the rest of her friends and band members.Hope she gets to feeling better soon.
Rona

synthroid .088 mg, lowpressor 50 mg x 2, cozaar 25mg x2, imdur 30 mg
nitroquick, proventol, plavix 75 mg, protonix 40 mg x 2, asacal 400mg x 9
carafate 1 gm x 4, zyrtec 10 mg, rhinocort aqua nose spray, fish oil,
potassium.


marty1976
Veteran Member


Date Joined Nov 2005
Total Posts : 2045
   Posted 9/29/2007 12:31 PM (GMT -7)   
Great to hear!!!Well done.
keep the faith

Pred40mgs/asacol/proctifoam/omoparazole 40mgs/Domperidone10mgs x 3 daily




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dakotagirl
Veteran Member


Date Joined Apr 2006
Total Posts : 3402
   Posted 9/29/2007 4:02 PM (GMT -7)   
So glad to hear she was able to participate!

I played trombone in HS too. To this day I still miss certain aspects of it - just gotta love the music :)
Pan-colitis and GERD diagnosed May 2003
 
Asacol 12 per day,  Azathioprine 75mg, Rowasa and Canasa as needed
Aciphex, Effexor XR, BCP, Rhinocort nasal spray
Culturelle, Biotin, Folic Acid, Forvia, Calcium, and B12
 
Osteopenia (hip and spine) from prednisone use.  Started Azathioprine because I was steroid dependent.
 
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Seahorselover
Regular Member


Date Joined Sep 2007
Total Posts : 30
   Posted 9/29/2007 4:27 PM (GMT -7)   
So happy that she got to march in the parade, my son used to be in marching band too and he just loved it... He plays the tenor saxophone tongue
congrats to your son too, he musta had a great time too tongue

tjf
Veteran Member


Date Joined Dec 2005
Total Posts : 3238
   Posted 9/29/2007 4:42 PM (GMT -7)   
That's awesome!
Tabitha (Tab)

100mg Azathioprine, 2 Fibercon, Colazal-6 a day, Acidopholis Pearls, Prilosec OTC

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Another UC wife
Veteran Member


Date Joined Jun 2007
Total Posts : 2111
   Posted 9/29/2007 7:19 PM (GMT -7)   
Super!!!!

60 yr old male~Colitis 1st diagnosed Jan '05-cleared up within a few wks. Flared again in May '06 ... left sided UC now, fully involved and trying to get in remission. Acute inflammation-pancolitis-tenesmus rectal pain-granulation is showing some healing started. Osteopena of spine from prednisone DX 8/07  July 07 good days & bad days 75mg Imuran 40  mg prednisone (tapering 8/07) 12 Asacol, Lidocaine Hydrochloride Jelly 2%,multi vitamin, iron 3X day, DanActive, chewable calcium, Prilosec 20mg, enalapril 10mg, glipizide 5 mg, zocor 20 mg, baby aspirin, (Fentanyl pain patch 50mg 72 hrs  Morphine Sulf 15 mg twice daily)Colocourt enemas at night. Fosamax and mthly B12 shots folic acid 1mg


barbl
Regular Member


Date Joined Jul 2006
Total Posts : 320
   Posted 9/29/2007 7:24 PM (GMT -7)   
Good for her!!!! yeah
Dx'D in 1990. Remission 1991 - 1/2005
Fish Oil, Probiotics, Lialda a nightmare for me, Caprylic acid
watch my sugar and carb intake
Both flares were in extremely stressful times in my life
Colonoscopy 10/2005 80% of Colon diseased, or as I like to say "Intestinely challenged"


quincy
Elite Member


Date Joined May 2003
Total Posts : 29859
   Posted 9/29/2007 9:29 PM (GMT -7)   
Wow Bennie, it's fabulous that Bratcat was able to get through the parade without any interruptions. She deserves the long nap!

She's come a long way in a year yeah
quincy


*Heather*Status:mini flare June 23* 6asacol daily+ Salofalk (tapered every 3rd night)
~diagnosed January 1989 UC (proctosigmoiditis)
~5ASA: Asacol + Salofalk enemas (increase for flares tapered to maintenance)
~Bentylol (dicyclomine) 20mg as needed
~vitamins/minerals 
~Probiotic 2 (Natural Factors Protec) + 1 (Primadophilus Reuteri) at bedtime
~Natural Factors Multi Digestive Enzymes with supper
~Ranitidine,Pariet (reflux) Effexor XR 75mg;  Pulmicort/Airomir (asthma)
~URSO for PSC (or PBC) 500mg X 2 daily (LFTs back to NORMAL!!)
My doc's logic.. "TREAT (FROM)BOTH ENDS"  worth it !!!

Post Edited (quincy) : 9/30/2007 11:35:19 AM (GMT-6)


Red_34
Forum Moderator


Date Joined Apr 2004
Total Posts : 23549
   Posted 9/30/2007 4:58 AM (GMT -7)   
I agree with everyone else here.......good for her! Even small victories seem like huge ones with this disease. Good job Bratcat!
 @--->--SHERRY--<---@
Left sided Uc -'92 - Colazal, Canasa, 6mp, Prilosec, Biotin, Forvia
Secondary Reynauds Syndrome - '04 - Norvasc
Fibromyalgia - '06 
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