I was really happy to find this board today.
I am 40 years old and was diagnosed with UC about 11 years ago. My first few flares were horrible, then I got it under control (relatively) until I got pregnant with my daughter, who is now 6 years old. I went on Pred during the pregnancy and through breastfeeding, though at much higher doses since my wacky hormones seemed to make me less responsive to the meds. As a result I went through major mood swings, osteopenia, etc. After I quit breastfeeding (about 11 months after she was born), I slowly got myself back in shape.
The last 4 years or so have been pretty good. Although I still have about 3 flares per year, they have been pretty low-level and I have been able to get them under control with cortenemas rather than Prednisone. I had gotten pretty cocky that I could handle this thing.
Until now...I am now in the middle of another major flare...my worst in years. Major pain, can't sleep, countless trips to the bathroom -- I forgot how horrible this can be. I am now back on Prednisone which scares me to death. They are also talking Remicade, which is new to me. My liver didn't do well with Imuran in the past, so that's not an option.
Anyway, I am already a mess emotionally and needed something new...so I looked for support groups and found this board. If anyone has any helpful advice on how to try to retain some sort of normalcy with your kid during a bad flare, info on Remicade, etc., I would love it. I am also curious about anyone's experience with accupuncture. I want to explore some less toxic routes to go with all this crap I'm putting in my body.
Thanks for listening -
Prednisone - 40 MG
And massive doses of Calcium!