3 weeks of Prednisone....should I be improving????

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Beth75
Veteran Member


Date Joined Jul 2007
Total Posts : 2148
   Posted 9/30/2007 8:56 AM (GMT -7)   
just curious how long it takes people to have prednisone help them?   I also just started hydrocortisone enemas this past wednesday (I just needed some relief) I don't see any improvement.  GI wrote the prescription for two a day but told me to take one a day, I am going to take two  today.
 
Looking for a new GI this week and will see my Nephrologist to see if any tests any possibilities I can go back on 5ASA and what outcomes, benefits, complications....I am so tired and miserable.
Beth, 31
UC Diagnosed March 2000
Hydrocortisone enemas 1xday
Lialda 2.4mg 1xday since 8/24/07 ;prev. Asacol 4800mg day,Calcium and Vit D 500mg 3xday.
Minimal Change Disease (Kidney Disorder) Diagnosed Sept 2007
Prednisone 60mg 1xday, Simvastatin 20mg 1xday, Diovan 80mg 1xday. Fosomax 70mg 1xweek. MCD may be from hypersensitivty to 5ASA drugs.


UCJuly2007
Regular Member


Date Joined Aug 2007
Total Posts : 95
   Posted 9/30/2007 10:29 AM (GMT -7)   

I have been on prednisone since July 18 starting with 30mg, going up to 40mg, and for the past few weeks have been tapering off and today started just 10mg.  I can finally say that I have now seen improvement.  I have little or no blood.  I am really new to the whole UC thing since I was just diagnosed in July, so therefor this has been my first flare.  I pray that once I am completely over this flare that it will be a long time before another :-)    I am now having side effects as well, loss of hair, muscle and joint pain, a nice blood clot in my leg... I just want to be back to my ol' self.  My only question now, "what is normal?"  I have no clue.  I hope you start to see improvement soon. 


Smiles,
29/F Diagnosed UC July 18, 2007 
Meds: 6 Asacol 400mg Tab
         2 1/2 5mg Prednisone total 12 1/2mg (down from 40mg)
         1/2 30mg Tylenol #3
         1 1000mg Canasa Suppository
         1 Calcium 500+D
         1 Cerovite Vitamin and Mineral Supplement
         1 325mg Ferrous Sulfate
 
 


AlabamaBabs
Regular Member


Date Joined Jul 2007
Total Posts : 172
   Posted 9/30/2007 2:25 PM (GMT -7)   
Beth, I've been on 40 mg pred for two weeks and now on my first week of 35mg. The day after I started 40, I had immediate relief. Now after two days of 35, I'm gassy (I sound like the Titanic hitting the ocean floor in my tummy) and I did have a little bleeding yesterday. Kinda scary! I do have less of a forceful munchy mood at 35, but the sweats are definitely still there. I am feeling miserable today with the gas and b/f without the pred!

I agree with UCJuly2007: "what is normal?" I have no clue, either.
AlabamaBabs
Pancolitis diagnosed 5/07 
started on 2 Lialda/day and increased to 4 Lialda/day since 8/01/07
40 mg. Prednisone for two weeks starting 9/16/07 and tapering by 5mg per week started 9/28/07
Activia yogurt; multi-vitamin; extra calcium supplement; omega 3's


UCSFer
Regular Member


Date Joined Aug 2007
Total Posts : 25
   Posted 9/30/2007 7:58 PM (GMT -7)   
I started with 40mg and it didn't work, went to 60 - didn't work. Added Asacol and it finally started working. Took about 3 weeks....I am tapering slowly at 35mg right now......

AlabalmaBabs - "gassy" may be due to something you ate yesterday

princesa
Veteran Member


Date Joined Aug 2007
Total Posts : 2198
   Posted 10/1/2007 7:05 AM (GMT -7)   
I'm on a pred taper. Started at 40 mg for a week, then 35 for a week, etc. The relief was almost instantaneous. I definitely felt like a totally different person by day two. No ill effects yet, that I can tell, although I have noticed it takes me a little longer to get to sleep. On the flip side, I wake up feeling rested and jazzed... not dragging through my morning, wishing I could go back to bed.
Diagnosed with ulcerative colitis spring 1999
C-scope confirmed UC diagnosis 9/18/2007
No explanation for right side pain and thickening of bowel wall
 
Maintenance dose sulfasalazine, back on a pred taper for first flare in years
Probiotics, l-glutamine and fish oil caps. George's aloe vera juice and Mucosaheal.
 
 


expecting226
Regular Member


Date Joined Jul 2007
Total Posts : 402
   Posted 10/1/2007 9:04 AM (GMT -7)   
I agree with what people said above - I usually see improvement from the Prednisone within the first week of taking it.  I will add that my GI has always told me if I don't see improvement within the first week, I should call him because that means it is not working.

Old Hat
Veteran Member


Date Joined Feb 2007
Total Posts : 5136
   Posted 10/1/2007 9:21 AM (GMT -7)   
Luckily Pred & Cortenemas always worked within hours to bring me relief from urgency, D, & bleeding. HOWEVER, my gastros have always urged me to rest, rest, rest while taking steroids-- so that the inflamed tissue has more chance to heal. I think that the younger generation UC patients are not getting this invaluable advice! You may need to alter your work schedule, etc. to fully benefit from the drugs: I had to!!! Think about the total picture because the meds alone are not always enough to reverse a severe flare. Good luck, Beth, pursuing a new GI; it sounds like you really need someone with IBD expertise. / Old Hat (nearly 30 yrs with left-sided UC; currently on 6 Colazal daily for July flare in descending colon; should be back in remission again soon)

Beth75
Veteran Member


Date Joined Jul 2007
Total Posts : 2148
   Posted 10/1/2007 10:04 AM (GMT -7)   
thanks Old Hat, I think my NY trip did not do me any good and I took a day of rest yesterday and my day job I sit on my butt all day (do have a nice comfy chair). I stayed in on Friday (even though plans for my bday) and went out Sat but then started to cramping so I went home early. I don't think I did the enema's right the first couple of nights, I am now. I may be getting slightly better and am going to do an enema when I get home then another one before bed. I seem to have most problems in the am and the pm, once I go I have to continue going repetiveley.

My employer is really good, so if I do need to stay home, I shouldn't really have any issues.
Beth, 31
UC Diagnosed March 2000
Hydrocortisone enemas 1xday
Lialda 2.4mg 1xday since 8/24/07 ;prev. Asacol 4800mg day,Calcium and Vit D 500mg 3xday.
Minimal Change Disease (Kidney Disorder) Diagnosed Sept 2007
Prednisone 60mg 1xday, Simvastatin 20mg 1xday, Diovan 80mg 1xday. Fosomax 70mg 1xweek. MCD may be from hypersensitivty to 5ASA drugs.


Old Hat
Veteran Member


Date Joined Feb 2007
Total Posts : 5136
   Posted 10/1/2007 10:32 AM (GMT -7)   
Sitting is sometimes not as good for the colon as reclining or lying down! (re desk job) I had to take a 3-month disability leave from work one time due to severe left-sided UC flare when it actually HURT to sit at a desk, & gastro put me on Pred because I was centimeters away from blockage. So-- good that your employer is understanding; take the time off to rest because it helps the meds to work better. That's my experience with steroids. One needs to rest adequately while on them even if/when they give a patient a physical "high". Otherwise, one can "crash"! MitzMN & I are concerned about your situation & want you to take good care of yourself & find that IBD gastro in Boston for consultation ASAP. That will make a big difference toward your progress in combatting the MCD & this flare. / Old Hat (nearly 30 yrs with left-sided UC; currently on 6 Colazal daily for July flare in descending colon; should be back in remission again soon)

Beth75
Veteran Member


Date Joined Jul 2007
Total Posts : 2148
   Posted 10/1/2007 12:14 PM (GMT -7)   

Thanks Old Hat and Mitz & everyone else!!

I just called the Chron's and Colitis Center and they told me what I need to do and how I need to do it.  Next stop I think is going to be a battle with my Primary/GI on getting a referral (I don't think they refer out of the building and if not, I'll find a new primary who will.)  Meeting w/Nephrologist on Friday and I want to discuss with him the possiblity that Red Plum brought up (If I understood correctly) about the sulfasalazine possibly being the culprit not the mesalamine for my MCD (hoping I can still take Asacol).  Also, will be contacting Dr.'s office this afternoon to get copies of my records so I can try to make sense of everything and put it all on a timeline.


Beth, 31
UC Diagnosed March 2000
Hydrocortisone enemas 1xday
Lialda 2.4mg 1xday since 8/24/07 ;prev. Asacol 4800mg day,Calcium and Vit D 500mg 3xday.
Minimal Change Disease (Kidney Disorder) Diagnosed Sept 2007
Prednisone 60mg 1xday, Simvastatin 20mg 1xday, Diovan 80mg 1xday. Fosomax 70mg 1xweek. MCD may be from hypersensitivty to 5ASA drugs.

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