In need of friends with U.C.

Hello fellow sufferers. I was diagnosed in Feb.2007. I am 30. I've noticed blood in my stool since my early teens though. I had my first flare-up in Jan.2007 and it was a very rough period. I had daily accidents. I was so feverish and lethargic. After my colonoscopy in March, I was on Asacol and everything kind of went back to normal. My urgency went down, I realized how precious it is to be able to control my b.m. I'm on Lialda now, 4 pills a day, because its easier than 12 Asacol pills a day. I've lost a lot of hair since my flare-up which I attribute to the Asacol and Lialda. Two weeks ago I began another flare-up. Only one accident so far so its not as bad as the first time, but the lethargy and multiple b.m. are back. What is weird with my flare-ups is I have an "urgency-attack" and after I rush to a bathroom I end up with a very small b.m. I know I have a lot inside me that I need to excrete, but I just can't. Its like there is blockage, or like my colon has constricted. My doctor put me on 40mg. of Prednison a week ago and after a month of tappering down, he wants to do another colonoscopy. It will actually be his first because I had to switch doctors for insurance reasons. I really want to go to the next level of treatment, which I believe is Remicade. Even between my flare-ups, I was never quite right. I was always sluggish and having diarhea. I wanted to go to this riverwalk over the weekend, but I am glued to the toilet right now. I'm tired of this and its only been a year. I already have social issues, I'm highly isolative, and I have depression, anxiety, asthma, allergies, hair loss, acne, lose shin from a 100 lb. weight loss, a bad scar from a poorly done abdominoplasty, a mis-centered belly button, carple tunnels or arthritis or something like that. I'm just such a mess and now this U.C. has really made things more complicated. I'm so alone as it is and this won't help. I think I'm at the angry stage in my grief proceess, don't you? :) I know this is a lot but Ive only had doctors to talk to until I found this site. I need friends with U.C. Well I need friends period. Lol. I'm not just a complainer, I do things to be proactive. I work out a lot for my mood, I volunteer, I  read a lot about U.C., I am on Match.com to try and meet a girl, I am able to keep a lot of my conditions under control with meds. I just hate the loss of energy and being chained to a toilet with U.C., you know, its horrible. Ok, now my carple tunnels is acting up, lol. If you want to exchange numbers, or just email me, I could use some peer support. Thank you all.

Sorry to hear things aren't going well for you at the moment. Healingwell is a great place to get support and chat to people who understand what you are going through. Have you tried any rectal meds like the steroid foam or Rowasa? Sometimes they can provide good relief from symptons - just a suggestion.

Hang in there buddy - once you get a treatment plan with your Dr and get off the prednisone you'll hopefully start feeling a lot better. I used to get really down when I was on prednisone so I can relate. Things will get better

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UC since 2001, diagnosed May 2005
Salofalk tablets (Asacol) 3 x 2 tablets daily for maintenance, Salofalk enemas for flares
Oat bran 60grams daily, Metamuscil and multivitamins

hi

 

just thought id say a hello and ur not alone in feeling the way u do

its a real crap condition isnt it