Posted 9/30/2007 10:26 PM (GMT -7)
Hello fellow sufferers. I was diagnosed in Feb.2007. I am 30. I've noticed blood in my stool since my early teens though. I had my first flare-up in Jan.2007 and it was a very rough period. I had daily accidents. I was so feverish and lethargic. After my colonoscopy in March, I was on Asacol and everything kind of went back to normal. My urgency went down, I realized how precious it is to be able to control my b.m. I'm on Lialda now, 4 pills a day, because its easier than 12 Asacol pills a day. I've lost a lot of hair since my flare-up which I attribute to the Asacol and Lialda. Two weeks ago I began another flare-up. Only one accident so far so its not as bad as the first time, but the lethargy and multiple b.m. are back. What is weird with my flare-ups is I have an "urgency-attack" and after I rush to a bathroom I end up with a very small b.m. I know I have a lot inside me that I need to excrete, but I just can't. Its like there is blockage, or like my colon has constricted. My doctor put me on 40mg. of Prednison a week ago and after a month of tappering down, he wants to do another colonoscopy. It will actually be his first because I had to switch doctors for insurance reasons. I really want to go to the next level of treatment, which I believe is Remicade. Even between my flare-ups, I was never quite right. I was always sluggish and having diarhea. I wanted to go to this riverwalk over the weekend, but I am glued to the toilet right now. I'm tired of this and its only been a year. I already have social issues, I'm highly isolative, and I have depression, anxiety, asthma, allergies, hair loss, acne, lose shin from a 100 lb. weight loss, a bad scar from a poorly done abdominoplasty, a mis-centered belly button, carple tunnels or arthritis or something like that. I'm just such a mess and now this U.C. has really made things more complicated. I'm so alone as it is and this won't help. I think I'm at the angry stage in my grief proceess, don't you? :) I know this is a lot but Ive only had doctors to talk to until I found this site. I need friends with U.C. Well I need friends period. Lol. I'm not just a complainer, I do things to be proactive. I work out a lot for my mood, I volunteer, I read a lot about U.C., I am on Match.com to try and meet a girl, I am able to keep a lot of my conditions under control with meds. I just hate the loss of energy and being chained to a toilet with U.C., you know, its horrible. Ok, now my carple tunnels is acting up, lol. If you want to exchange numbers, or just email me, I could use some peer support. Thank you all.