sorry to hear you are having such a tough time. I've been on 60mg of pred for 3 weeks and I don't think it's helping me either, also, don't know if the hydrocortisone enemas are helping me either, too.
I am working on finding a GI who can wrap their head around what's going on w/me. Don't give up!!! I feel beaten down right now but we've got to just keep on trying and pushing them and being my own advocate.
I was 24 when I was dx'd but had it pretty good for 7 years, I know what it's like to be young and married and deal w/all this. I'm also very active and the last two weeks have been such a pain to deal with.
Keep on trying and this place has been great for me. My Mom had UC (she now has an ostomy) my father's new wife has Chron's, my friend has Chron's and my friends Mother in-law has Chron's and my best friends father has UC. I had never really talked about
it to any of them before. Poop or rather bloody/mucous/diareah is easier to talk about
on-line I guess!
UC Diagnosed March 2000
Hydrocortisone enemas 1xday
Lialda 2.4mg 1xday since 8/24/07 ; prev. Asacol 4800mg day,Calcium and Vit D 500mg 3xday.
Minimal Change Disease (Kidney Disorder) Diagnosed Sept 2007
Prednisone 60mg 1xday, Simvastatin 20mg 1xday, Diovan 80mg 1xday. Fosomax 70mg 1xweek. MCD may be from hypersensitivty to 5ASA drugs.