Posted 10/3/2007 10:54 AM (GMT -6)
Hey Paul! Thanks for the update. I hate you are suffering but I do enjoy reading your posts.
Tabitha (Tab)

100mg Azathioprine, 2 Fibercon, Colazal-6 a day, Acidopholis Pearls, Prilosec OTC
Co-Moderator UC Forum

Posted 10/3/2007 1:57 PM (GMT -6)

Hi Paul

Its interesting to see how you are getting on in the abatacept trial as I myself am hoping to enter the exact same trial.  I still have to get all the pre-screening tests done first (TB, Hepatitis, etc).  In the trial documentation that my GI emailed to me, it says that if your UC does not improve after the initial 3 months - you can ask to be guaranteed to receive the real medication and not the placebo.  You dont have to wait the full 12 months.

Hope you do getter better though. I am pinning my hopes on this working, I have exhausted all other medical options now to get into remission....

Back on Pred - 8mg - Steroid Dependent :-(
Azathioprine 150mg
Actonel 35mg
Predfoam Enema
VSL #3 with Activia Yoghurt
EPA Fish Oils
Various Homeopathic meds
Asacol x 9
Remicade every 8 weeks  (Stopped working)
Aloe Vera Lily of the Desert Juice  Gave me the worst D !
Primadophilus Reuteri Probiotic
Prograf Tacrolimus 4mg

Posted 10/3/2007 9:12 PM (GMT -6)
Thanks Tabatha and KSU.

KSU, I hope you qualify for the study. Actually I mentioned in my last post above that If the Induction period doesn’t help I will be able to go right to the open label (real medication).
Diagnosed in 2000 at age 43 with UC extending half way across transverse colon.
Allergic reaction to Asacol, Pentasa and Dipentum - can’t take any more 5ASAs.
Prednisone - worked well for 1 month, then side effects became unbearable.
6-MP - blood tests showed not metabolizing properly.
Corticosteroid enema, Flagyl, Ciprofloxin, VSL#3, Adacolumn Apheresis – no effect
Methotrexate with Remicade - 7 infusions with no improvement
Folic Acid and B12 injections.
Currently in Abatacept trial - waiting for remision

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