I've had this dreaded disease for about 15 yrs. My flares have gotten worse with time, but it is so different for everyone. And I personally will do everytihing I can to keep my colon. Some people react to the meds much better than others, this disease it not a one size fits all. If you do decide on surgery, please research as much has possible. You might want to check out www.jpouch.org. I think that's the right address. They have all been there, done that. It is a very serious surgery and you really need to be absolutely sure this the way you want to go.
Good Luck to you
Diagnosed with indeterminate colitis in 1992
4 asacol 3x's a day
Rowasa enemas as needed
Bunches of vitamins