I was diagnosed with UC in 2002 and just recently with fibromyalgia, after long debates with my GI doc.
I am needing to be taken off of my medication for UC (entocort) b/c my body has become completely dependent on it. I was doing ok when reduced, until recently (friday sept 29th). After speaking to the GI doctor, I was told to tough it out. Since then I have become rather gaunt, tired, and sore... and in the w/c 7 times a day. I feel like I have the flu even though I know I don't. The rheumatologist that diagnosed me was just the referral doctor and has told me to contact my PCP. (I don't have one. I am a student and in debt up to my eyeballs.) I feel like noone understands that when I have a colitis flare, the fibromyalgia symptoms rear their ugly heads! I barely sleep b/c of the colitis and my body aches and pains. Does anybody else feel like they are being repeatedly kidney punched? Today, I broke down and cried in one of my classes. BTW i'm only 23, with a 2 year old and a fiance also in school. I am taking a 15 hr course load and doing a placement for one of my classes at an elementary school for 8 hrs a week, then there is the homework, housework and maintaining a relationship with a 2yo. My fiance is just as stressed, so there is little help from him as he has school and 2 PT jobs.
The rheumatologist said that there is nothing more (medication-wise) to be done about the fibromyalgia. My GI doc gave me Tramadol for the pain, but it makes me a zombie and pukey. I have joined a fibromyalgia clinic but don't go till the 15th. I don't know what else to do... So, maybe this turned out to be more of a rant than anything else, but I have had it with doctors!
Any advice would be welcomed and greatly appreciated!