I met with my new GI, this afternoon, for the first time. Got to get the good ol' Flex. Sig. Seemed like a good guy, suppose to be one of the best on the island. Anyways, he said that right now on a scale of 1 - 4 (4 being the worst UC) I am at about
a 2 1/2 (moderate/severe) which was kinda a shock, cuz of all the meds Ive been taking. Thought it wouldnt be that bad. He scoped the complete left side up to the sigmoid and just around the bend. He said that as he got to the transvers colon it looked as if it was not as bad from what he could see, but being the sig...it can only go so far.
He wants me to start weining off Pred. and is putting me on Imuran 150mg / day. Anyone have any advice/opinions on Imuran. Kinda nervous about leaving Pred. cuz its actually been really good to me. I am also to stay with Asacol and cortofoam (only to use if needed)
Did anyone else have to do lots of blood work when they first started on Imuran? Im to have bloodwork done 1 / week for 3 weeks....then 1 / month for 3 months....then 1 every 3 months. Im gonna feel like a pin cushion.
Then I get to meet with him again in 3 months.
On a different note....while I was waiting to go in for my scope, there was a guy across from me around my age who was waiting, then went in, and came back out from a Colonoscopy and Dr. Holland (my doc) was talking to him. He has run outta options and is going in for surgury. Kinda puts ya in a weird place when your just at the start of figuring out your UC and you hear someone at the end of figuring out their UC. Anyways...if by chance the guy at Vic. Gen. who wouldnt give up his spot for me (lol) is on the board here. Hang in there.
Just diagnosed Aug. 14/07
Asacol 8 / day (5-Aminosalicylic Acid 400mg)
Cortafoam (butt mousse, not emima)