Posted 10/6/2007 7:25 AM (GMT -7)
To Paul L,

Could it be that you weren't responding to anything because of the C difficile this whole time?
Posted 10/9/2007 6:27 PM (GMT -7)
Horus, I’m sorry I didn’t reply sooner but we went away for the long weekend. Yesterday was Thanksgiving Day here in Canada.

No I do not think that C. difficile had any effect on me not responding to any treatments. Because I was in two different clinical studies over the last two years I have been tested for C. difficile and other things many many times. about 2 months ago was the first and only time it came back positive. In fact for my current study I am tested just before every treatment. My doctor and I have determined that a round of antibiotics I took for an infection unrelated to UC last May and June was most likely the cause of my C. difficile. At that time I was off all UC meds until I entered the current study a month ago.
Diagnosed in 2000 at age 43 with UC extending half way across transverse colon.
Allergic reaction to Asacol, Pentasa and Dipentum - can’t take any more 5ASAs.
Prednisone - worked well for 1 month, then side effects became unbearable.
6-MP - blood tests showed not metabolizing properly.
Corticosteroid enema, Flagyl, Ciprofloxin, VSL#3, Adacolumn Apheresis – no effect
Methotrexate with Remicade - 7 infusions with no improvement
Folic Acid and B12 injections.
Currently in Abatacept trial - waiting for remision

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