Patients with IBD more likely to die from C-Diff...

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pb4
Elite Member


Date Joined Feb 2004
Total Posts : 20577
   Posted 10/4/2007 10:57 PM (GMT -7)   
 
 
:)
My bum is broken....there's a big crack down the middle of it!  LOL  :)


pb4
Elite Member


Date Joined Feb 2004
Total Posts : 20577
   Posted 10/5/2007 11:15 AM (GMT -7)   
bump
My bum is broken....there's a big crack down the middle of it!  LOL  :)


Sara14
Veteran Member


Date Joined Mar 2007
Total Posts : 4034
   Posted 10/5/2007 11:46 AM (GMT -7)   
Well, that's scary... but, good to know. Thanks for the info.
23 years old
Diagnosed with UC March 2007
Current inflamation in the rectum
Asacol 4 tablets 3x/day
Rowasa (generic) - nightly
Nature's Way Primadophilus Reuteri 1/day; Chewable multivitamin


ks1905
Veteran Member


Date Joined Sep 2005
Total Posts : 4812
   Posted 10/5/2007 12:10 PM (GMT -7)   
I'm a C.Diff Survivor. it was very painful; much worse than a UC flare. And the smell was awful.

One of the easiest ways to get C.diff is by taking Anti-biotics.

--Keith
DX'd with Pan-Colitis June 2005
Current Status: Flaring since May
 
Current Meds:  6-mp & Colocort
Supplements:  None 
 


dakotagirl
Veteran Member


Date Joined Apr 2006
Total Posts : 3402
   Posted 10/5/2007 5:19 PM (GMT -7)   
Um - gulp - yikes!
Pan-colitis and GERD diagnosed May 2003
 
Asacol 12 per day,  Azathioprine 75mg, Rowasa and Canasa as needed
Aciphex, Effexor XR, BCP, Rhinocort nasal spray
Culturelle, Biotin, Folic Acid, Forvia, Calcium, and B12
 
Osteopenia (hip and spine) from prednisone use.  Started Azathioprine because I was steroid dependent.
 
Co-Mod for the UC forum
Keep HealingWell running smoothly:  www.healingwell.com/donate


dakotagirl
Veteran Member


Date Joined Apr 2006
Total Posts : 3402
   Posted 10/5/2007 5:52 PM (GMT -7)   
I got to thinking - I know - scary! - but I wonder if this is true because as IBDers we're "used" to having D, etc and they let the infection progress further than a non-IBDer would???
Pan-colitis and GERD diagnosed May 2003
 
Asacol 12 per day,  Azathioprine 75mg, Rowasa and Canasa as needed
Aciphex, Effexor XR, BCP, Rhinocort nasal spray
Culturelle, Biotin, Folic Acid, Forvia, Calcium, and B12
 
Osteopenia (hip and spine) from prednisone use.  Started Azathioprine because I was steroid dependent.
 
Co-Mod for the UC forum
Keep HealingWell running smoothly:  www.healingwell.com/donate


Paul L
Veteran Member


Date Joined Dec 2005
Total Posts : 647
   Posted 10/5/2007 6:53 PM (GMT -7)   
Now they tell me. I just got over a case of C. difficile about 1 ½ months ago. I really didn’t feel any different. The only difference was that I went from 8 or 9 BMs per day to 5 or 6 after treatment.
Paul
Diagnosed in 2000 at age 43 with UC extending half way across transverse colon.
Allergic reaction to Asacol, Pentasa and Dipentum - can’t take any more 5ASAs.
Prednisone - worked well for 1 month, then side effects became unbearable.
6-MP - blood tests showed not metabolizing properly.
Corticosteroid enema, Flagyl, Ciprofloxin, VSL#3, Adacolumn Apheresis – no effect
Methotrexate with Remicade - 7 infusions with no improvement
Folic Acid and B12 injections.
Currently in Abatacept trial - waiting for remision
 


Horus
Regular Member


Date Joined Feb 2007
Total Posts : 190
   Posted 10/6/2007 2:25 PM (GMT 0)   
To Paul L,

Could it be that you weren't responding to anything because of the C difficile this whole time?

Paul L
Veteran Member


Date Joined Dec 2005
Total Posts : 647
   Posted 10/9/2007 6:27 PM (GMT -7)   
Horus, I’m sorry I didn’t reply sooner but we went away for the long weekend. Yesterday was Thanksgiving Day here in Canada.

No I do not think that C. difficile had any effect on me not responding to any treatments. Because I was in two different clinical studies over the last two years I have been tested for C. difficile and other things many many times. about 2 months ago was the first and only time it came back positive. In fact for my current study I am tested just before every treatment. My doctor and I have determined that a round of antibiotics I took for an infection unrelated to UC last May and June was most likely the cause of my C. difficile. At that time I was off all UC meds until I entered the current study a month ago.
Paul
Diagnosed in 2000 at age 43 with UC extending half way across transverse colon.
Allergic reaction to Asacol, Pentasa and Dipentum - can’t take any more 5ASAs.
Prednisone - worked well for 1 month, then side effects became unbearable.
6-MP - blood tests showed not metabolizing properly.
Corticosteroid enema, Flagyl, Ciprofloxin, VSL#3, Adacolumn Apheresis – no effect
Methotrexate with Remicade - 7 infusions with no improvement
Folic Acid and B12 injections.
Currently in Abatacept trial - waiting for remision
 

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