Curiosity poll...At what age were you diagnosed with UC?

 

The reason I did 5 year spans between the ages of 20 and 30 is because that is when most people are diagnosed.

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Good poll but why did you stop with 41 + Years? I was diagnosed at age 43 and really don’t like being put in with 60 year olds and more. According to Medline Plus at:

http://www.nlm.nih.gov/medlineplus/ency/article/000250.htm

“It may affect any age group, although there are peaks at ages 15 to 30 and then again at ages 50 to 70.”

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I was diagnosed this year (I think I'm 42...lol), but I had symptoms for about six years before that.

NBT

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Diagnosed with Ulcerative Colitis January 2007

Why Paul?? Because I ran out of lines! lol I wish the poll had more then 6 lines or I would've put in the 40 - 50 range.

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You know, an interesting poll would be at what age--in retrospect--did you start having sx's. I believe I started to have mild sx's as a teenager, but b/c noone talks about bathroom habits, what is "normal," I thought everyone went to the bathroom like me; I know I didn't want to talk about having excessive amounts of diarrhea at 15 y/o.

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Dx Ulcerative Colitis 1999; IBS; CP: Asacol x3 x3/day, Rowasa, Proctofoam, Prilosec, Bentyl, Prozac, Endocet (as needed), multi vit, probiotic, fish oil caps x2/day, calcium 1200 mg./day, Prednisone (off/on, unfortunately).

what are sx's???


Still fairly new to UC.

sx's = abbreviation for symptoms

diagnosed at 23...when I was diagnosed the doctors told me UC is often called a "disease of the young."

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23 years old
Diagnosed with UC March 2007
Current inflamation in the rectum
Asacol 4 tablets 3x/day

I was diagnosed at 15 and a half.

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Text
Diagnosed 10/12/06


Daughter of Bennie
Meds:

Asacol 4 pills 3 times a day

Rowasa and hydrocortisone enema
Prednisone

That would be an interesting poll Lucy because many of us has had symptoms prior to our official diagnoses. I went into see my GI once and he sort of shook his head and said, "Wow, can you believe you have had this for (at the time) 12 years??" I just looked at him and said, "Well actually I've had it longer and he agreed. So even though I was diagnosed at 22, I actually started showing symptoms after the birth of my son which would've put me at 21.

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i was dx'd at 18 but have always had problems. My mom says it goes back to birth, that i never had a solid stool as a child. I started having tests (upper and lower gi's, ect) at 7.

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Kelly, 29

Left sided UC diagnosed 1/98 age 19, Pan colitis diagnosed 1/07
Currently on 4x3 Asacol, Rowasa every other night, down to 15 mg pred.
75mg Imuran starting 8/23/07---fingers crossed!
Prontonix once daily for acid reflux, zofran twice daily for nausea

I think I was 16 almost 17

I was 33, but I'd suffered with "irritable bowel syndrome" for years - diagnosed in college - and I can remember having "stomach aches," "nervous stomach," and being constipated since I was a child. They did an upper and lower GI on me when I was about nine years old and found nothing.

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Diagnosed with ulcerative colitis spring 1999

My 16 year old son was dx at age 10, but had sx for 4 or so years before that. My daughter was dx at 8 and first had blood in her stool at 5 months of age. She would have blood and mucus 2 or so times per year after that, but never lasted more than 2-3 days and never had loose stool until this past summer when she was dx.

It was actually kind of hard to get the doctors to take me seriously with my son. They'd say that it is almost never blood, more than likely something he ate or that there was a virus going around and one could have diarrhea from it for several weeks. That went on for a couple of years. Finally I took him in with a specimen and they're like, oh yeah, that's blood. With my daughter at 5 months, doctor was like it is likely a fissure (son had not been dx yet). Then later it was easier to get them to take me seriously with her since her brother had IBD.

I was about eight when I first began having symptoms. Talk about a fun childhood!

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"Of one thing I am certain, the body is not the measure of healing - peace is the measure. ~George Melton~"

Current Meds include:Colazal, Prednisone, Nexium and Remicade

43 years of age when diagnosed

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My daughter was 5.

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Joan

47

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Rona

synthroid .088 mg, lowpressor 50 mg x 2, cozaar 25mg x2, imdur 30 mg
nitroquick, proventol, plavix 75 mg, protonix 40 mg x 2, asacal 400mg x 9
carafate 1 gm x 4, zyrtec 10 mg, rhinocort aqua nose spray, fish oil,
potassium.

I was hospitalized at age 7 and had all the tests to determine why I always had a "stomach ache." They could not find anything except "an inflamed stomach." There was no treatment. I'm 51 yrs. old now. After suffering with symptoms all my life, I was diagnosed just last year with pancolitis.

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• _{Pancolitis since 5/06 at age 50, IBS since childhood}
• _{Degenerative Disc Disease/Spinal Stenosis - L4 and L5}
• _{Prescribed: Asacol, Atenolol, Zoloft, Synthroid, Menest}
• _{Prescribed: Xanax & Hydrocodone as needed}
• _{OTC:  Probiotic 15-35, Multi Vitamin, B Complex, Turmeric, Fish Oil, Biotin}

Ha! I'm definitely in the 41+ years. Hee hee. I was dx'd when I was 46.

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Carol

Remicade - will have my 19th infusion on November 1.

Its strange that you say that most people are diagnosed between 20-30yrs because UC is usually diagnosed in young people in their teens from everything I've read. Also the people with the most severe UC are usually the ones who are diagnosed when they are young. My GI told me that older people diagnosed don't usually suffer as severe of sx. Interesting Poll! My dx was at 16yrs.

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Vikki, 28

Mine was at 19. I think it would be interesting to see how often it's hereditary. No one in my family has ever had anything like UC, so I'm curious how many other people out there have no family history/a family history of UC.

I was diagnosed when I was 5 years old although my parents think I'd had it since birth. I had my ileostomy when I was 10 years old and life has been great ever since.

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I have had an ileostomy for 31 years now due to UC.

I heard that the most common age "group" is 15-35.

I think a lot of the information out there is a bit out dated. They still say only 500,000 in the US dx'd. They said that in '03 when I was dx'd. There seem to be a lot of people dx'd since then. Also, a lot more people talking about it. I also heard that the 500k number was from those that were hospitalized. I know many that have never been hospitalized.

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Pan-colitis and GERD diagnosed May 2003

 

Asacol 12 per day,  Azathioprine 75mg, Rowasa and Canasa as needed

Aciphex, Effexor XR, BCP, Rhinocort nasal spray

Culturelle, Biotin, Folic Acid, Forvia, Calcium, and B12

 

Osteopenia (hip and spine) from prednisone use.  Started Azathioprine because I was steroid dependent.

 

Co-Mod for the UC forum

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I had gastrointestinal problems from birth. My first proper flare was when i was 12 but i wasn't diagnosed until 3 years later.

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                                     keep the faith

                      asacol/proctifoam/Zoton (lansoprazole)



http://www.myspace.com/martybuzz1<FONT]

31 here

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Prednisone 10mg (2) tabs twice per day for one week- (then dr. wants an update) started Thursday 10-4-2007

Asacol 400mg (3) tabs twice per day- started Thursday 10-4-2007

-just came off Sulfasalazine (2) 500mg tabs twice per day