Curiosity poll...At what age were you diagnosed with UC?

What age were you diagnosed with Uc?
3
1-10 Years - 3.1%
16
11 - 20 Years - 16.5%
14
21- 25 Years - 14.4%
26
26 - 30 years - 26.8%
22
31 - 40 Years - 22.7%
16
41 + Years - 16.5%

 
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Red_34
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   Posted 10/5/2007 8:56 AM (GMT -7)   
:-)  

The reason I did 5 year spans between the ages of 20 and 30 is because that is when most people are diagnosed.


 @--->--SHERRY--<---@
Left sided Uc -'92 - Colazal, Canasa, 6mp, Prilosec, Biotin, Forvia
Secondary Reynauds Syndrome - '04 - Norvasc
Fibromyalgia - '06 
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Post Edited (Red_34) : 10/5/2007 9:59:49 AM (GMT-6)


Paul L
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Date Joined Dec 2005
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   Posted 10/5/2007 9:27 AM (GMT -7)   
Good poll but why did you stop with 41 + Years? I was diagnosed at age 43 and really don’t like being put in with 60 year olds and more. According to Medline Plus at:

http://www.nlm.nih.gov/medlineplus/ency/article/000250.htm

“It may affect any age group, although there are peaks at ages 15 to 30 and then again at ages 50 to 70.”
Paul
Diagnosed in 2000 at age 43 with UC extending half way across transverse colon.
Allergic reaction to Asacol, Pentasa and Dipentum - can’t take any more 5ASAs.
Prednisone - worked well for 1 month, then side effects became unbearable.
6-MP - blood tests showed not metabolizing properly.
Corticosteroid enema, Flagyl, Ciprofloxin, VSL#3, Adacolumn Apheresis – no effect
Methotrexate with Remicade - 7 infusions with no improvement
Folic Acid and B12 injections.
Currently in Abatacept trial - waiting for remision
 


NuffinButtTrouble
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Date Joined Mar 2007
Total Posts : 679
   Posted 10/5/2007 9:32 AM (GMT -7)   
I was diagnosed this year (I think I'm 42...lol), but I had symptoms for about six years before that.

NBT


Diagnosed with Ulcerative Colitis January 2007
Meds: Remicade, Primal Defense Ultra, Multi-vitamins (also iron, B12, Magnesium and Zinc), Flaxseed/Natures Bounty Fish Oil
Swanson Ultra Caprylic Acid (natural anti-fungal) 600mg x2 daily
Carrot & Garlic supplements (natural anti-fungal) x2 daily
 


Red_34
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Date Joined Apr 2004
Total Posts : 23549
   Posted 10/5/2007 9:37 AM (GMT -7)   
Why Paul?? Because I ran out of lines! lol I wish the poll had more then 6 lines or I would've put in the 40 - 50 range.
 @--->--SHERRY--<---@
Left sided Uc -'92 - Colazal, Canasa, 6mp, Prilosec, Biotin, Forvia
Secondary Reynauds Syndrome - '04 - Norvasc
Fibromyalgia - '06 
PLEASE HELP HEALINGWELL CONTINUE TO HELP OTHERS BY CLICKING HERE: DONATE
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BigLucy
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Date Joined Mar 2007
Total Posts : 413
   Posted 10/5/2007 10:19 AM (GMT -7)   
You know, an interesting poll would be at what age--in retrospect--did you start having sx's. I believe I started to have mild sx's as a teenager, but b/c noone talks about bathroom habits, what is "normal," I thought everyone went to the bathroom like me; I know I didn't want to talk about having excessive amounts of diarrhea at 15 y/o.
Dx Ulcerative Colitis 1999; IBS; CP: Asacol x3 x3/day, Rowasa, Proctofoam, Prilosec, Bentyl, Prozac, Endocet (as needed), multi vit, probiotic, fish oil caps x2/day, calcium 1200 mg./day, Prednisone (off/on, unfortunately).


sweetmelody
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Date Joined Aug 2007
Total Posts : 650
   Posted 10/5/2007 10:22 AM (GMT -7)   
what are sx's???


Still fairly new to UC.

Sara14
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Date Joined Mar 2007
Total Posts : 4034
   Posted 10/5/2007 10:25 AM (GMT -7)   
sx's = abbreviation for symptoms

diagnosed at 23...when I was diagnosed the doctors told me UC is often called a "disease of the young."
23 years old
Diagnosed with UC March 2007
Current inflamation in the rectum
Asacol 4 tablets 3x/day
Rowasa (generic) - nightly
Nature's Way Primadophilus Reuteri 1/day; Chewable multivitamin


bratcat
Regular Member


Date Joined Jan 2007
Total Posts : 74
   Posted 10/5/2007 10:42 AM (GMT -7)   
I was diagnosed at 15 and a half.
Text
Diagnosed 10/12/06


Daughter of Bennie
Meds:

Asacol 4 pills 3 times a day

Rowasa and hydrocortisone enema
Prednisone


Red_34
Forum Moderator


Date Joined Apr 2004
Total Posts : 23549
   Posted 10/5/2007 10:45 AM (GMT -7)   
That would be an interesting poll Lucy because many of us has had symptoms prior to our official diagnoses. I went into see my GI once and he sort of shook his head and said, "Wow, can you believe you have had this for (at the time) 12 years??" I just looked at him and said, "Well actually I've had it longer and he agreed. So even though I was diagnosed at 22, I actually started showing symptoms after the birth of my son which would've put me at 21.
 @--->--SHERRY--<---@
Left sided Uc -'92 - Colazal, Canasa, 6mp, Prilosec, Biotin, Forvia
Secondary Reynauds Syndrome - '04 - Norvasc
Fibromyalgia - '06 
PLEASE HELP HEALINGWELL CONTINUE TO HELP OTHERS BY CLICKING HERE: DONATE
@--->--Moderator for Allergies/Asthma and Co-moderator for UC--<---@
 
 
 
 

 
 


kb5
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Date Joined Jan 2007
Total Posts : 1015
   Posted 10/5/2007 11:03 AM (GMT -7)   
i was dx'd at 18 but have always had problems. My mom says it goes back to birth, that i never had a solid stool as a child. I started having tests (upper and lower gi's, ect) at 7.
Kelly, 29

Left sided UC diagnosed 1/98 age 19, Pan colitis diagnosed 1/07
Currently on 4x3 Asacol, Rowasa every other night, down to 15 mg pred.
75mg Imuran starting 8/23/07---fingers crossed!
Prontonix once daily for acid reflux, zofran twice daily for nausea


basa0806
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Date Joined Feb 2005
Total Posts : 2103
   Posted 10/5/2007 11:07 AM (GMT -7)   
I think I was 16 almost 17

Sam

18 years old

Diganosed in Sept 2004
Currently taking 12 asacol, immodium occasionally, 25mg Elavil and Ortho Lo

Remission since April 2006

"If you dont like something, change it. If you can't change it, change your attitude"

Maya Angelou


princesa
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Date Joined Aug 2007
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   Posted 10/5/2007 11:12 AM (GMT -7)   
I was 33, but I'd suffered with "irritable bowel syndrome" for years - diagnosed in college - and I can remember having "stomach aches," "nervous stomach," and being constipated since I was a child. They did an upper and lower GI on me when I was about nine years old and found nothing.
Diagnosed with ulcerative colitis spring 1999
C-scope confirmed UC diagnosis 9/18/2007
No explanation for right side pain and thickening of bowel wall
 
Maintenance dose sulfasalazine, back on a pred taper for first flare in years
Probiotics, l-glutamine and fish oil caps. George's aloe vera juice and Mucosaheal.
 
 


JewelsOK
Regular Member


Date Joined Jun 2007
Total Posts : 364
   Posted 10/5/2007 12:24 PM (GMT -7)   
My 16 year old son was dx at age 10, but had sx for 4 or so years before that. My daughter was dx at 8 and first had blood in her stool at 5 months of age. She would have blood and mucus 2 or so times per year after that, but never lasted more than 2-3 days and never had loose stool until this past summer when she was dx.

It was actually kind of hard to get the doctors to take me seriously with my son. They'd say that it is almost never blood, more than likely something he ate or that there was a virus going around and one could have diarrhea from it for several weeks. That went on for a couple of years. Finally I took him in with a specimen and they're like, oh yeah, that's blood. With my daughter at 5 months, doctor was like it is likely a fissure (son had not been dx yet). Then later it was easier to get them to take me seriously with her since her brother had IBD.

jellybean1887
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Date Joined May 2005
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   Posted 10/5/2007 1:17 PM (GMT -7)   
I was about eight when I first began having symptoms. Talk about a fun childhood!
"Of one thing I am certain, the body is not the measure of healing - peace is the measure. ~George Melton~"

Current Meds include:Colazal, Prednisone, Nexium and Remicade


jano437
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Date Joined Jul 2005
Total Posts : 1611
   Posted 10/5/2007 3:29 PM (GMT -7)   
43 years of age when diagnosed
Diagnosed July 2005 with Pancolitis
Asacol 4 tabs 3 times daily
GNC Probiotic
Forvia
calcium 
Currently in Remission


ithurtsmom
Regular Member


Date Joined Nov 2006
Total Posts : 289
   Posted 10/5/2007 6:45 PM (GMT -7)   
My daughter was 5.
Joan
 
Daughter 5, UC
Pentasa 2X2 daily
Omega 3
Folic Acid 1000mcg.
Fiber
Probiotics
 


potty girl
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Date Joined Dec 2006
Total Posts : 835
   Posted 10/5/2007 6:54 PM (GMT -7)   
47
Rona

synthroid .088 mg, lowpressor 50 mg x 2, cozaar 25mg x2, imdur 30 mg
nitroquick, proventol, plavix 75 mg, protonix 40 mg x 2, asacal 400mg x 9
carafate 1 gm x 4, zyrtec 10 mg, rhinocort aqua nose spray, fish oil,
potassium.


BumTum
Regular Member


Date Joined May 2006
Total Posts : 304
   Posted 10/5/2007 6:59 PM (GMT -7)   
I was hospitalized at age 7 and had all the tests to determine why I always had a "stomach ache." They could not find anything except "an inflamed stomach." There was no treatment. I'm 51 yrs. old now. After suffering with symptoms all my life, I was diagnosed just last year with pancolitis.
  • Pancolitis since 5/06 at age 50, IBS since childhood
  • Degenerative Disc Disease/Spinal Stenosis - L4 and L5
  • Prescribed: Asacol, Atenolol, Zoloft, Synthroid, Menest
  • Prescribed: Xanax & Hydrocodone as needed
  • OTC:  Probiotic 15-35, Multi Vitamin, B Complex, Turmeric, Fish Oil, Biotin
 
 
 


Lonie
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Date Joined Feb 2005
Total Posts : 6447
   Posted 10/5/2007 7:53 PM (GMT -7)   
Ha! I'm definitely in the 41+ years. :-) Hee hee. I was dx'd when I was 46.
Carol

Remicade - will have my 19th infusion on November 1.
Imuran - 100 mgs....taken before bedtime
Vitamin B-12/Biotin, Probiotics

"Life is short -- make fun of it"
 
Co-Moderator for the UC Forum
 
 


roxZ
Regular Member


Date Joined Sep 2007
Total Posts : 21
   Posted 10/6/2007 7:11 PM (GMT -7)   
Its strange that you say that most people are diagnosed between 20-30yrs because UC is usually diagnosed in young people in their teens from everything I've read. Also the people with the most severe UC are usually the ones who are diagnosed when they are young. My GI told me that older people diagnosed don't usually suffer as severe of sx. Interesting Poll! My dx was at 16yrs.
Vikki, 28
dx with ulcerative colitis at age 16
prednisone 20 mg, colazal, entocort ec


foxieloxy
New Member


Date Joined Sep 2007
Total Posts : 5
   Posted 10/7/2007 2:50 AM (GMT -7)   
Mine was at 19. I think it would be interesting to see how often it's hereditary. No one in my family has ever had anything like UC, so I'm curious how many other people out there have no family history/a family history of UC.

Shaz032
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Date Joined Feb 2003
Total Posts : 1250
   Posted 10/7/2007 7:37 AM (GMT -7)   
I was diagnosed when I was 5 years old although my parents think I'd had it since birth. I had my ileostomy when I was 10 years old and life has been great ever since.
I have had an ileostomy for 31 years now due to UC.
 
Moderator of the Ostomy Forum
_______________________________________________
 
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dakotagirl
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Date Joined Apr 2006
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   Posted 10/7/2007 9:00 AM (GMT -7)   
I heard that the most common age "group" is 15-35.

I think a lot of the information out there is a bit out dated. They still say only 500,000 in the US dx'd. They said that in '03 when I was dx'd. There seem to be a lot of people dx'd since then. Also, a lot more people talking about it. I also heard that the 500k number was from those that were hospitalized. I know many that have never been hospitalized.
Pan-colitis and GERD diagnosed May 2003
 
Asacol 12 per day,  Azathioprine 75mg, Rowasa and Canasa as needed
Aciphex, Effexor XR, BCP, Rhinocort nasal spray
Culturelle, Biotin, Folic Acid, Forvia, Calcium, and B12
 
Osteopenia (hip and spine) from prednisone use.  Started Azathioprine because I was steroid dependent.
 
Co-Mod for the UC forum
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marty1976
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Date Joined Nov 2005
Total Posts : 2045
   Posted 10/8/2007 2:29 PM (GMT -7)   
I had gastrointestinal problems from birth. My first proper flare was when i was 12 but i wasn't diagnosed until 3 years later.
                                     keep the faith

                      asacol/proctifoam/Zoton (lansoprazole)



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icanrace
Regular Member


Date Joined Sep 2007
Total Posts : 221
   Posted 10/8/2007 3:44 PM (GMT -7)   
31 here
Prednisone 10mg (2) tabs twice per day for one week- (then dr. wants an update) started Thursday 10-4-2007

Asacol 400mg (3) tabs twice per day- started Thursday 10-4-2007

-just came off Sulfasalazine (2) 500mg tabs twice per day

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