Should I up treatment to the next level?

Have you given rectal meds a try? Many of us still flare while using Asacol but use the Salofalk or Rowasa enemas to treat flares at the first sign of anything being wrong. I now do that rather than use prednisone to treat flares. I still flare a few times a year but I get right onto with the enemas and fix it up. If this method stops working for me or I can't handle it anymore then I'll go onto Imuran. However, for now, I'm pretty pleased with how well the enemas work - certainly better than having to take pred!

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UC since 2001, diagnosed May 2005
Salofalk tablets (Asacol) 4 x 2 tablets daily for maintenance, Salofalk enemas for flares
Oat bran 60grams daily, Metamuscil and multivitamins

You put the enemas in at night so hopefully they stay in overnight while you sleep. This is so that you don't excrete them with a bm until the morning and also so that you put them in laying down and remain laying down so that the liquid spreads as far up the colon as possible. I don't know much about the suppositories - I take the liquid salofalk enema. This is the same 5ASA drug as your Lialda tablets, but in enema form so it gets right to where it is needed. Some people find them a bit tricky to keep in at first but you'll quickly get the skills plus, as they get to work and reduce your inflammation, they'll also be easier to retain. I can now cope with a flare using these, whereas I used to have to take steroids. I just love the rectal meds!

Be careful about going off all meds - many people have done that and regretted it (do some searching through the forum and you'll find quite a few stories). Plus, the Lialda tablets you are on are also given to UCers to help protect against colon cancer, which we are at an increased chance of developing after years of having UC.

Some people have had luck with dietary changes and some people have tried every diet and supplement around without any luck. It seems to be an individual thing. I'd recommend that you talk to your Dr about Rowasa enemas and give them a serious try. Keep up the Lialda and perhaps try some ideas like a different diet or flax oil (etc.) one a time and see if any of them work for you.

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UC since 2001, diagnosed May 2005
Salofalk tablets (Asacol) 4 x 2 tablets daily for maintenance, Salofalk enemas for flares
Oat bran 60grams daily, Metamuscil and multivitamins

Call your doctor rather than waiting to see him. Request him to call in a script to the pharmacy for a 5ASA retention enema such as Rowasa (I'm assuming you're in the US)...Salofalk if you're not.

Best to do it sooner than later...really. We're not suggesting it because they don't work...we're suggesting it because they do.

quincy

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*Heather*Status:mini flare June 23* 6asacol daily+ Salofalk (tapered every 3rd night)

~diagnosed January 1989 UC (proctosigmoiditis)

~5ASA: Asacol + Salofalk enemas (increase for flares tapered to maintenance)

~Bentylol (dicyclomine) 20mg as needed

~vitamins/minerals 

~Probiotic 2 (Natural Factors Protec) + 1 (Primadophilus Reuteri) at bedtime

~Natural Factors Multi Digestive Enzymes with supper

~Ranitidine,Pariet (reflux) Effexor XR 75mg;  Pulmicort/Airomir (asthma)

~URSO for PSC (or PBC) 500mg X 2 daily (LFTs back to NORMAL!!)

My doc's logic.. "TREAT (FROM)BOTH ENDS"  worth it !!!

Post Edited (quincy) : 10/7/2007 2:13:50 AM (GMT-6)

Thank you all for your feedback. I appreciate it :)
I have a colonoscopy tomorrow and I am going to discuss Rowasa. I really need to get off sugar but food has been a coping mechanism my whole life and I eat a lot when Im lonely or depressed which is pretty constant lately. Especially with the prednisone, man have I been hungry. I went from 330lbs to 180lbs a couple years ago. Now I am at 220 and Im having a lot of anxiety because Im not nipping this weight gain in the bud. Im scared. I know this isnt the forum for this, but I need to vent. If I kick the sugar I think Ill be better off(with my UC too) Im just having such a bad year...the UC diagnosis, legal issues, a pay cut, unhappiness and depression and most of all lonliness. And this UC keeping me prisoner in my own home isnt helping. Well, thanks for listening :)
Have a great weekend everyone!

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 I was diagnosed with U.C. in early 2007. I am 30, single and no kids.

I am currently taking 4 Lialda pills a day and 30 mg of Prednisone temporarily.

Also I take:Propecia(hair loss), Trentenoin(acne), Paxil(depression), Allegra(allergies), Advair&albuterol(asthma), multi-vitamins, b-complex, flax oil.

I eat a vegan diet.

This is a difficult illness. Being single (I can relate) sometimes makes this more difficult. On the other hand, being with an unsympathetic partner can be even more difficult, I would imagine. Anyway, it's tough, tough, tough no matter what.

I echo what others have said about rectal meds. Imagine the length the drugs have to go to to get to the most (probably) inflamed portion of your body. From your mouth to your rectum must be about a mile (just kidding, but it is a long distance). Instead of hoping and praying that the meds make it there, why not address the problem from the other end and see if direct application of meds works for you like it has worked so well for so many others. I urge you to follow the advice you've been given and get a script for Rowasa or even the steroid enemas. They really will heal and town down the inflammation.

As to your depression or anxiety about the hair loss and your weight, that's completely understandable. You may discover there is quite a high number of participants here with depression issues. I am one of them. One of the most successful antidotes to depression is physical activity and exercise. If you can find the energy and the time (make the time!) and can be away from a bathroom for any length of time, try to incorporate some physical activity into your life. It really can have amazing effects. If you feel too overwhelmed to handle that, perhaps speak to your doctor about your feelings and have an assessment as to whether further treatment for your depression might be warranted.

Anyway, good luck. You are not alone. Living with this illness is difficult, but as is testament here, it is not impossible. We're here to listen, commiserate and at least try to help.

Mitz

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Sporadic proctitis since about 1985. Mother had UC, then J-pouch surgery 1983.
DX'd with clostridium difficile in 2000. Prednisone, two courses of Flagyl, then Vancomycin finally got rid of it. Symptomatic with UC after that.
Colonoscopy in 2001 dx'd left-sided UC. Was pretty darn ill at that time. Treated with prednisone, Rowasa, Asacol. Asacol not working so switched to Imuran. Three small flares since in 2002, 2005, and 2007.
Gall bladder attack 6/13; ultrasound showed stones; surgery before end of 2007.
100 mg Azathioprine and 225 mg Effexor XR (for chronic, longstanding depression) daily.

Post Edited (MitzMN) : 10/7/2007 10:46:01 AM (GMT-6)