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tjf43
Regular Member


Date Joined Jun 2007
Total Posts : 69
   Posted 10/7/2007 6:21 AM (GMT -7)   
I have been doing really well since July and I'm thrilled! BMs once a day, no blood, no diarreah, no pain. I still do not have my energy levels back to normal though. Is this typical? Any suggestions on what I can do?
 
Thanks!
Female, age 43
Diagnosed with Ulcerative Colitis 2/2007
In remission since 7/2007
9 Asacol daily
Rowasa 1x weekly
Fish oil, multi-vitamin, B complex, Mag Oxide, Calcium, Vit C, Vit E, Multi-vit


UCreallySUCKS
Regular Member


Date Joined May 2006
Total Posts : 260
   Posted 10/7/2007 6:57 AM (GMT -7)   
The only times I've had very low energy were when I got off prednisone.  Were you on it recently?  As soon as I got below 10mg of pred, I had a hard time keeping myself awake throughout the day.  And from what I remember, it lasted months.  I'm on pred again, so looks like I have that to look forward to in a few weeks.  If that's not what's causing your lack of energy, then I'm not really sure exactly what it would be, though it obviously has something to do with this insane disease.
---Nathan---  31 yr old male
Diagnosed May 2006 w/severe UC
Currently in mild/moderate flare
2 400mg Asacol 4X day
20 mg Prednisone
1 multivitamin/day
2 grams calcium/day
75mg Imuran/day
100mg Tramadol/day for abdominal pain (as needed)
1 Fioricet ever 4 hrs as needed for severe migraines


MitzMN
Veteran Member


Date Joined Feb 2007
Total Posts : 622
   Posted 10/7/2007 7:25 AM (GMT -7)   
I'm always low energy. I believe mine is related to my depression, but it could be the UC.

I have my two chronic illnesses pretty well under control with meds, etc., but the low energy is something that just frustrates the heck outta me. I cannot seem to shake it. And I didn't used to be this way. My favorite thing to do, it seems, is sleep. Ugh!

Mitz
Sporadic proctitis since about 1985. Mother had UC, then J-pouch surgery 1983.
DX'd with clostridium difficile in 2000. Prednisone, two courses of Flagyl, then Vancomycin finally got rid of it. Symptomatic with UC after that.
Colonoscopy in 2001 dx'd left-sided UC. Was pretty darn ill at that time. Treated with prednisone, Rowasa, Asacol. Asacol not working so switched to Imuran. Three small flares since in 2002, 2005, and 2007.
Gall bladder attack 6/13; ultrasound showed stones; surgery before end of 2007.
100 mg Azathioprine and 225 mg Effexor XR (for chronic, longstanding depression) daily.


Meesh
Veteran Member


Date Joined May 2006
Total Posts : 619
   Posted 10/7/2007 7:41 AM (GMT -7)   
Ah, so that is the explanation? I am alternating 5 mg and 0 mg Prednisone daily. I had been hoping to be off by now but the Remicade infusions don't seem to last the entire 8 weeks so I stopped the taper until I have the next infusion (next week). I am so tired (and nauseous as well) that I can barely make it through my rather physical work dy. Thank goodness for this three-day weekend! How long can I epxect this to last? I have been on Pred for just shy of 18 months.
 
  
Diagnosed UC April 27, 2006
Remicade: 1st infusion 7/21/07; 2nd infusion 8/18/07
Lialda, 4 tabs in the morning; Protonix; Prednisone 4/27/06-present, holding taper at alternating 5/0 mg; Xanax; Lexipro, Rowesa; Asacol; Colazal three 750 mg capsules 3X day;
[2/22/07 started Imuran, off within two weeks due to bad reaction]


dakotagirl
Veteran Member


Date Joined Apr 2006
Total Posts : 3402
   Posted 10/7/2007 9:01 AM (GMT -7)   
I've never completely regained my energy :( I tend to think it's the UC itself.
Pan-colitis and GERD diagnosed May 2003
 
Asacol 12 per day,  Azathioprine 75mg, Rowasa and Canasa as needed
Aciphex, Effexor XR, BCP, Rhinocort nasal spray
Culturelle, Biotin, Folic Acid, Forvia, Calcium, and B12
 
Osteopenia (hip and spine) from prednisone use.  Started Azathioprine because I was steroid dependent.
 
Co-Mod for the UC forum
Keep HealingWell running smoothly:  www.healingwell.com/donate


BigLucy
Regular Member


Date Joined Mar 2007
Total Posts : 413
   Posted 10/7/2007 9:35 AM (GMT -7)   
O.k., I'm going to bring up the dreaded concept--exercise. Are you exercising on a regular basis? I suffer from "chronic fatigue"--definitely a result of my IBD/IBS. Have had a really challenging year and about 5-6 weeks ago decided to, as much as I can, exercise regularly. I try to treadmill min. 30 min., free weights every other day and stretch/restorative yoga type stuff daily--I do it all at home, b/c the easier I make it for myself, the more likely I will do it. It hasn't decreased my sx's any, but I do see a difference physically--more stamina, sleep is more restful, slight increase in energy, not as lethargic.
Dx Ulcerative Colitis 1999; IBS; CP: Asacol x3 x3/day, Rowasa, Proctofoam, Prilosec, Bentyl, Prozac, Endocet (as needed), multi vit, probiotic, fish oil caps x2/day, calcium 1200 mg./day, Prednisone (off/on, unfortunately).


MitzMN
Veteran Member


Date Joined Feb 2007
Total Posts : 622
   Posted 10/7/2007 9:41 AM (GMT -7)   
You're right, Lucy.

The problem is, for most of us, exercise is no fun. If we don't have energy to do things we enjoy, it's really hard to find the energy to do things we don't like -- even if we KNOW it will make us feel better. And, of course, when you are depressed, you not only have zero energy, all you have is NEGATIVE energy. It's just about impossible to get off square one while depressed -- at least it is for me.

But that said, I did just get home from a walk with the kids (my dog and parrot) and I'm sweating profusely. I'm not actually thinking about anything more active for the rest of the day than a shower (and a nap, I admit), but I feel better if for no other reason than the three of us really needed some stimulation and fresh air!

Mitz
Sporadic proctitis since about 1985. Mother had UC, then J-pouch surgery 1983.
DX'd with clostridium difficile in 2000. Prednisone, two courses of Flagyl, then Vancomycin finally got rid of it. Symptomatic with UC after that.
Colonoscopy in 2001 dx'd left-sided UC. Was pretty darn ill at that time. Treated with prednisone, Rowasa, Asacol. Asacol not working so switched to Imuran. Three small flares since in 2002, 2005, and 2007.
Gall bladder attack 6/13; ultrasound showed stones; surgery before end of 2007.
100 mg Azathioprine and 225 mg Effexor XR (for chronic, longstanding depression) daily.


tjf43
Regular Member


Date Joined Jun 2007
Total Posts : 69
   Posted 10/7/2007 9:47 AM (GMT -7)   
First, I've never been on prednisone. Asacol is the only medication I've taken for my UC.

I have been exercising some. Still not back to my old routine, but I keep trying to get there. Mostly walking - treadmill or outside. Trying to hit the gym once a week for weights and elliptical, but have not been making it quite that often. Took a walk on Friday and then was wiped out Friday evening. Just got back from the gym today, so we'll see how I do later!
Female, age 43
Diagnosed with Ulcerative Colitis 2/2007
In remission since 7/2007
9 Asacol daily
Rowasa 1x weekly
Fish oil, multi-vitamin, B complex, Mag Oxide, Calcium, Vit C, Vit E, Multi-vit


BigLucy
Regular Member


Date Joined Mar 2007
Total Posts : 413
   Posted 10/7/2007 9:56 AM (GMT -7)   
I forgot to state that my favorite part of exercise is at the end, when I know it's over.
Dx Ulcerative Colitis 1999; IBS; CP: Asacol x3 x3/day, Rowasa, Proctofoam, Prilosec, Bentyl, Prozac, Endocet (as needed), multi vit, probiotic, fish oil caps x2/day, calcium 1200 mg./day, Prednisone (off/on, unfortunately).


porclein
New Member


Date Joined Aug 2007
Total Posts : 15
   Posted 10/7/2007 6:50 PM (GMT -7)   

When I was on asacol,I was so tired all of the time.  I had to get off of it because of the exhaustion it caused.  But I also think the disease itself is exhausting as our bodies are constantly fighting inflammation.

 


Porclein- Pancolitis diag. 1/05. current meds. pred.-20 mg.
imuran-250 mg. also vsl, fish oil, vitamins.


Red_34
Forum Moderator


Date Joined Apr 2004
Total Posts : 23549
   Posted 10/8/2007 6:46 AM (GMT -7)   
There are some days (while in remission) that I can barely move an arm or leg because I am so tired. When I'm flaring - forget it! That arm and leg are staying where they are! :) I too believe that it's the disease because your body is constantly at war with itself. How can that not tire you out??? Like everyone suggested, excersize, get lots of rest, eat healthy (if you can), drink lots of fluids.......but if the exhaustion continues or gets worse, you might want to go and have your B levels checked.
 @--->--SHERRY--<---@
Left sided Uc -'92 - Colazal, Canasa, 6mp, Prilosec, Biotin, Forvia
Secondary Reynauds Syndrome - '04 - Norvasc
Fibromyalgia - '06 
PLEASE HELP HEALINGWELL CONTINUE TO HELP OTHERS BY CLICKING HERE: DONATE
@--->--Moderator for Allergies/Asthma and Co-moderator for UC--<---@
 
 
 
 

 
 

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