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Posted 10/8/2007 11:06 PM (GMT -7)
regarding diets:

has any one tried the paleo/caveman diet - basicly eliminating grains, sugar, milk products etc?

C

Posted 10/9/2007 12:11 AM (GMT -7)
Food doesn't cause flares or make them go away....and considering we've evolved since the days of the caveman shouldn't require one to return to them.

quincy

*Heather*Status:mini flare June 23* 6asacol daily+ Salofalk (tapered every 3rd night)

~diagnosed January 1989 UC (proctosigmoiditis)

~5ASA: Asacol + Salofalk enemas (increase for flares tapered to maintenance)

~Bentylol (dicyclomine) 20mg as needed

~vitamins/minerals 

~Probiotic 2 (Natural Factors Protec) + 1 (Primadophilus Reuteri) at bedtime

~Natural Factors Multi Digestive Enzymes with supper

~Ranitidine,Pariet (reflux) Effexor XR 75mg;  Pulmicort/Airomir (asthma)

~URSO for PSC (or PBC) 500mg X 2 daily (LFTs back to NORMAL!!)

My doc's logic.. "TREAT (FROM)BOTH ENDS"  worth it !!!

Posted 10/9/2007 2:26 AM (GMT -7)

quincy said...
Food doesn't cause flares or make them go away....and considering we've evolved since the days of the caveman shouldn't require one to return to them.

quincy

I don't see where anyone said anything about food causing a flare?

Diets help, even if it's just for alittle relief. I mean, if you eat hotpockets and drink soda all day and you think it isn't hurting you... Good for you.

You know what doesn't help make a flare go away? Rectal meds and immuno drugs. Tried them for 6 years. Anyway, the topic is asking if anyone has tried it. He didn't ask if it's going to bring on a flare. And who is anyone to say it wont make his current flare go away? I mean, the guy wants to try a diet, first thing you try to do is make it sound like he should eat whatever he wants and ignore diets. Yet, you promote people to get on harmful immuno drugs that have alot of bad side effects down the road.

All I'm saying is.. as I've said before.. We all know you don't support diets to get rid of a flare or if they cause one. But the guy never even asked that.. Just seems silly to me.
Posted 10/9/2007 5:20 AM (GMT -7)
Eric704...I think you may want to reread your posts and the tone that comes across before you hit the submit button. We have a new member here that is looking for help. Don't you think it would be better for them if you presented your side of the argument rather than attacking Quincy?

For CONNOR....personally diet doesn't affect my UC. I do drink Lactaid milk as I am a bit lactose intolerant. Did your GI suggest this diet or is this something you were thinking of trying out? We have a lot of members that use the SCD diet. You could do a search at the top of the page to find old posts regarding this.
Tabitha (Tab)

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Posted 10/9/2007 6:08 AM (GMT -7)
I know that when I am already in a flare - and depending how bad - certain foods seem to upset my body worse.

Last year milk - ice cream that type of a thing would be a sure way for me to have worse times in the bathroom - I know this for a fact becouse I was craving white milk, funny how when I was a kid I would not drink the stuff - but then when my body was telling me no ~ know that was all I wanted,

Diagonsed with UC in about 99 - 

Started new GI 9-25-07

Lialda 2.4 in AM(started 9-26-07) canasa 1000mg  2xs per day(started 9-26-07)
Probiotics, calcium with Vitamin D, slow release Iron, Psyllium Husk Fiber. 

Post Edited (okiemom) : 10/9/2007 10:00:53 AM (GMT-6)

Posted 10/9/2007 6:17 AM (GMT -7)
Connor,

Allow me to take this opportunity to welcome you to HealingWell, I'm with Quincy and Tabitha in that diet doesn't seem to affect my UC, but importantly we are all different and respond differently to meds, diet, stress and many other factors which life puts our way. We have to learn what is right for us personally and that of course takes time, it is a good idea to keep a food diary and monitor if anything does affect your UC. Of course Eric has a good point in that junk food is usually best avoided, in my opinion we should all eat healthily.

Eric,

As Tabitha has mentioned, your words do come over a bit strong, please ensure you comply with forum rules in particular rule No 3. No posts that attack, insult, "flame", defame, or abuse members or non-members. Respect other members of the community and don’t belittle, make fun off, or insult another member or non-member. Decisions about health and well-being are highly personal, individual choices. "Flaming" and insults, however, will not be tolerated. Agree to disagree. This applies to both the forums and chat.

Take care.

Dave
Dansky Co-moderator UC forum

 TAKE FLYING LESSONS ON A MOUNTAIN BIKE TODAY!

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Post Edited (Dansky) : 10/9/2007 7:23:57 AM (GMT-6)

Posted 10/9/2007 6:36 AM (GMT -7)
This site doesn't have private messaging, so what do you want me to do? NOT direct it to someone while making my points?

We have a new member here that is looking for help. Don't you think it would be better for them if you presented your side of the argument rather than attacking Quincy?

Yes I do, which is why I asked Quincy why she made the post she did. It has nothing to do with what he asked. Just another "Oh god another diet thread nothing will help you get out of a flare except meds." She's posted it a billion times.
Posted 10/9/2007 7:16 AM (GMT -7)
For the record, even the Crohn's and Colitis Foundation of America - known for being very mainstream and pro pharmaceuticals - says diet does indeed play role in the management of inflammatory bowel disease:

Because Crohn's disease and ulcerative colitis are diseases of the digestive tract, it is only natural that you will have many questions about diet and nutrition if you have been diagnosed with one of these disorders. First of all, you may be surprised to learn that there is no evidence that anything in your diet history caused or contributed to these diseases. Once you develop IBD, however, paying special attention to what you eat may go a long way toward reducing symptoms and promoting healing.



Connor, yes: there are different diets you can experiment with to see if they give you relief from symptoms and help your gut to heal. I'm on a limited version of the SCD which is basically, paleo... no grains, no sugar, no artificial sweeteners, no dairy. It has made a huge difference for me and I believe it helped me achieve years of remission in combination with probiotics, omega-3 supplementation and other natural approaches.

Diagnosed with ulcerative colitis spring 1999

C-scope confirmed UC diagnosis 9/18/2007

No explanation for right side pain and thickening of bowel wall

 

Maintenance dose sulfasalazine, back on a pred taper for first flare in years

Probiotics, l-glutamine and fish oil caps. George's aloe vera juice and Mucosaheal.

Posted 10/9/2007 7:31 AM (GMT -7)
Eric all you are requested to do is to comply with the forum rules so that we can keep the peace, the forum is intended for offering mutual personal support.

Take care.

Dave
Dansky Co-moderator UC forum

 TAKE FLYING LESSONS ON A MOUNTAIN BIKE TODAY!

Bisoprolol Fumarate

Lisinopril

Sulfasalazine

Azathioprine
Prednisolone

Pariet

Citalopram Hydrobromide
 https://www.healingwell.com/donate/

 

Posted 10/9/2007 7:32 AM (GMT -7)
The Paleo diet sounds similiar to SCD and some here have tried this diet and found that it works for them. I tried the SCD for one week and decided that it wasn't for me because I love my food too much, especially my sweets. Yes, I'm weak! But I say if you want to give it a go, then do it. It might help you :)

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Posted 10/9/2007 9:04 AM (GMT -7)
I have found that since I cut down on my milk and carbs significantly, my flares are not nearly as bad or as frequent.  I used to drink milk every day, now only in my coffee, but I do eat yogurt on a daily basis and does not seem to bother me.

I can't eat Dairy Queen ice cream when I am anywhere near flaring, makes me nauseated and crampy about one hour after consuming!

 

 

Dx:  2006

Meds:  None so far. Garlic works to ease flares. My GI laughed when I told him and said it was just coincidence.

Diet:  Regular fresh garlic, Biobest yogurt daily, Omega 3 supplements, very limited junk food, carbs and processed food, low fat diet.  Lots of fresh fruit and veggies (limited potatoes). 

Added: tumeric and probiotics.

Posted 10/9/2007 10:39 AM (GMT -7)
Yes, reducing carbs and eliminating milk/sugar/grains has been very helpful for me. I've been in remission for over a year now and I attribute it in large part to my change in eating habits.

I've found that if I'm already in a flare the dietary changes don't really do much, but once I'm in remission they help me to stay in remission longer. Watch your symptoms and you'll be able to tell fairly quickly if the diet works for you.
Diagnosed Ulcerative Pancolitis
25mg Imuran

Probiotics
Fish Oil
Vitamin C
Slippery Elm
TURMERIC!!!

Posted 10/9/2007 10:46 AM (GMT -7)
First off, sorry mods but from reading Erics post I don't find it to be inflammatory or ignorant in any way, maybe because he's disagreeing with Q makes it easier for it to seem that way, but I don't read it that way at all...

Secondly, I've posted this link already but here it is again....I know it's talking specifically about food intolerances being linked to IBD, but I'd love to know exactly how many of us IBDers have been tested for food intolerances so that we know what foods to completely avoid. 

Here's the link...

http://www.news-medical.net/?id=27401

:)

My bum is broken....there's a big crack down the middle of it!  LOL  :)

Posted 10/9/2007 10:57 AM (GMT -7)
Pb4,

Thanks for your comments, however in such matters moderators make a decision and take appropriate action, should you or any other member disagree with our comments then feel free to alert Peter Waite he will assess the situation and take appropriate action, here is not the place to disagree with moderators decisions.

Moderators have a tough role and spend many hours trawling through the forums in an attempt to ensure that members don't feel offended by others comments, welcoming new members, keeping spammers out etc etc. the last thing we need to do is spend valuable time justifying our every action.

Thanks for your understanding.

Take care.

Dave
Dansky Co-moderator UC forum

 TAKE FLYING LESSONS ON A MOUNTAIN BIKE TODAY!

Bisoprolol Fumarate

Lisinopril

Sulfasalazine

Azathioprine
Prednisolone

Pariet

Citalopram Hydrobromide
 https://www.healingwell.com/donate/

 

Posted 10/9/2007 11:07 AM (GMT -7)
I have found that there are just a few foods that affect my UC, but I did watch that new show "Cavemen" last week and it kind of made me sick to my stomach ;)
James
Current Meds www.myspace.com/gardenerjames

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Posted 10/9/2007 11:30 AM (GMT -7)
Eric....I didn't mention meds. I have a well-rounded diet, and don't even consume what you suggested, although I might on occasion. If I did, I'd have gas for sure but it wouldn't cause me to flare or if I didn't consume it..it wouldn't heal a flare.

Common sense rules, and I don't see the need for people to go to extremes. If one has a bad diet (of course that's the common sense part and is subjective)...adjust it. There's no need to revert to an extreme diet.

Regarding food sensitivities...that's another health issue in relation to UC. Both should be looked at separately and dealt with accordingly.

Cave "people" may not have had many eating options....we do. Our brains have also evolved.

I repeat...food doesn't cause flares nor heal them. Food has action in the digestive tract...definitely.

I haven't mentioned meds at all....and if anyone doesn't like my information (which isn't to the extreme)...put me on your ignored list.

I had turkey, dressing, cranberry sauce, green beans, carrots, gravy, pumpkin pie with topping, coffee for supper last night. Actually, no discomfort, only a satisfied full belly.

One normal bm today.

quincy

*Heather*Status:mini flare June 23* 6asacol daily+ Salofalk (tapered every 3rd night)

~diagnosed January 1989 UC (proctosigmoiditis)

~5ASA: Asacol + Salofalk enemas (increase for flares tapered to maintenance)

~Bentylol (dicyclomine) 20mg as needed

~vitamins/minerals 

~Probiotic 2 (Natural Factors Protec) + 1 (Primadophilus Reuteri) at bedtime

~Natural Factors Multi Digestive Enzymes with supper

~Ranitidine,Pariet (reflux) Effexor XR 75mg;  Pulmicort/Airomir (asthma)

~URSO for PSC (or PBC) 500mg X 2 daily (LFTs back to NORMAL!!)

My doc's logic.. "TREAT (FROM)BOTH ENDS"  worth it !!!

Posted 10/9/2007 12:14 PM (GMT -7)
For those who are not aware, there's a huge difference between a "well rounded diet" and a healthy one....including inflammatory foods in ones diet is not a healthy one...if you eat inflammatory foods on a daily basis, expect to have inflammatory illnesses, IBD, heart disease, arthritis, ect.

It also takes time for the body to heal from inflammatory foods/beverages.

:)
My bum is broken....there's a big crack down the middle of it!  LOL  :)

Posted 10/9/2007 12:20 PM (GMT -7)


:)

PB4 there is no requirement for you to quote the forum rules to me, I am quite well aware of them and took the moderator title quite some time ago in order to ensure members are compliant with them, two moderators agreed in a matter and that in my eyes is justification to request a member to consider his choice of words, I will not expain my actions to you again, so I suggest if you wish to make any comments regarding mine or anyother moderators actions direct them to Peter Waite and not on this forum.

Post Edited By Moderator (Dansky) : 10/9/2007 1:55:49 PM (GMT-6)

Posted 10/9/2007 12:24 PM (GMT -7)
should I say balanced instead? There's lots of information available now-a-days...again, not needing to go caveman.

quincy

*Heather*Status:mini flare June 23* 6asacol daily+ Salofalk (tapered every 3rd night)

~diagnosed January 1989 UC (proctosigmoiditis)

~5ASA: Asacol + Salofalk enemas (increase for flares tapered to maintenance)

~Bentylol (dicyclomine) 20mg as needed

~vitamins/minerals 

~Probiotic 2 (Natural Factors Protec) + 1 (Primadophilus Reuteri) at bedtime

~Natural Factors Multi Digestive Enzymes with supper

~Ranitidine,Pariet (reflux) Effexor XR 75mg;  Pulmicort/Airomir (asthma)

~URSO for PSC (or PBC) 500mg X 2 daily (LFTs back to NORMAL!!)

My doc's logic.. "TREAT (FROM)BOTH ENDS"  worth it !!!

Posted 10/9/2007 12:26 PM (GMT -7)
If balanced includes inflammatory foods, it's no different then well rounded.


:)
My bum is broken....there's a big crack down the middle of it!  LOL  :)

Posted 10/9/2007 12:26 PM (GMT -7)

Dansky said...
Eric all you are requested to do is to comply with the forum rules so that we can keep the peace, the forum is intended for offering mutual personal support.

Take care.

Dave

That's fine. But if you think anything I said is an "attack, insult, "flame", defame, or abuse"..... Then I see why alot of good people stop posting on these forums time to time.
Posted 10/9/2007 1:09 PM (GMT -7)
Eric

Agree to disagree is usually the best policy, Tabitha and myself both said that your words came across a bit strong, you have had no words deleted to my knowledge just a request to consider your wording.

Now let's please get back to offering Connor the support he/she is searching for.
Take care.

Dave
Dansky Co-moderator UC forum

 TAKE FLYING LESSONS ON A MOUNTAIN BIKE TODAY!

Bisoprolol Fumarate

Lisinopril

Sulfasalazine

Azathioprine
Prednisolone

Pariet

Citalopram Hydrobromide
 https://www.healingwell.com/donate/

 

Posted 10/9/2007 1:38 PM (GMT -7)
CONNOR :)

Many have success with eliminating such things as processed/refined sugar, grains and milk producst ect...many have also had success with not only eliminating foods that they have intolerances but portion size definitely plays into the equation as well...feasting on a large dinner doesn't do the digestive system any favors, it has to work very hard to process large meals, so it's not only "you are what you eat" it's also "you are how much you eat" too.

This is not only my opinion but widely suggested by dieticians as well, eating 5-6 small meals throughout the day rather then 3 large ones with snacks on top of that.

:)
My bum is broken....there's a big crack down the middle of it!  LOL  :)

Posted 10/9/2007 1:49 PM (GMT -7)

17. No irrelevant or off-topic posts. Posts which are not relevant to the forum topic may be deleted at the moderator's discretion. 

Post Edited By Moderator (Dansky) : 10/9/2007 3:06:49 PM (GMT-6)

Posted 10/9/2007 2:11 PM (GMT -7)

This post seems to be going in a different direction from the original intent.  Perhaps this wonderful community can get together and take a moment for a virtual group hug - I know I could use one right about  now.

with love to all here

bob

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