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Posted 10/9/2007 12:40 PM (GMT -6)
Just wondering if anyone has trouble digesting soy products - specifically, things like meal replacement bars that have soy protein in them.  The bars are an easy snack while I'm at work but they seem to cause some stomach upset and discomfort.  Maybe it's just me???  I also wonder about peanut butter - it seems like I tolerate it fine for awhile and then will start having a lot of indigestion.  Could it be the oil in the peanut buttter? 
 
Thanks to everyone for your support and wisdom.  I've gained so much from reading your posts.  It's so helpful to know I'm not alone.
Posted 10/9/2007 1:03 PM (GMT -6)
I'm in remission thanks to Remicade, but can't touch Soy. It's ok if it's one of the minor ingredients, but wouldn't eat a soy bar, can't drink soy milk, tofu etc.
Gives me terrible pains, same with turkey for some reason. Go figure?!?
Don't seem to have trouble with peanut butter, but everyone is different, it just takes time to figure out what foods are ok.
James
Current Meds www.myspace.com/gardenerjames

Asacol 4 tabs 2x daily
Forvia once a day
Probiotic twice daily
Methotrexate 3 pills once a week
Actonel once a week
Calcium supp.
Omega-3 once daily
Eighth Remicade infusion End of August

Posted 10/9/2007 1:53 PM (GMT -6)
smitharoo..welcome to the forum.

I get lots of gas from soy products. I only eat tofu in chinese foods...normally nothing else soy based.

One thing...soy has estrogen in it...so, for those women who have hormone sensitive UC symptoms..it could exacerbate them.

The peanut butter is difficult to digest...and if it bothers your stomach, you could have a reflux problem. How much pb to you eat and on what? Is it on an empty stomach? Is it natural pb or is it skippy or other brands that have other oils and sugars in them? I'd suggest you try one that has peanuts only...President's choice is awesome..but natural pbs are easy to get.

please tell us more about you, your UC and what meds you're on..etc.

quincy
*Heather*Status:mini flare June 23* 6asacol daily+ Salofalk (tapered every 3rd night)
~diagnosed January 1989 UC (proctosigmoiditis)
~5ASA: Asacol + Salofalk enemas (increase for flares tapered to maintenance)
~Bentylol (dicyclomine) 20mg as needed
~vitamins/minerals 
~Probiotic 2 (Natural Factors Protec) + 1 (Primadophilus Reuteri) at bedtime
~Natural Factors Multi Digestive Enzymes with supper
~Ranitidine,Pariet (reflux) Effexor XR 75mg;  Pulmicort/Airomir (asthma)
~URSO for PSC (or PBC) 500mg X 2 daily (LFTs back to NORMAL!!)
My doc's logic.. "TREAT (FROM)BOTH ENDS"  worth it !!!

Posted 10/9/2007 2:52 PM (GMT -6)
I definitely have problems with Soy.  I will sometimes buy Soy yogurt, but it often bothers my stomach.  Same with Soy milk.  I asked my GI about it, and he said that many people have a Soy sensitivity.  There is not a test for it at this time, so they don't call it an allergy, but people can tell from their food diaries, etc.
Current Medications:
- Asacol (4 pills, 2x per day)
- Rowasa (1 enema daily, as needed)
- Folic Acid (1 mg, 1x per day)
- Calcium (600 mg, 2x per day)
- Prenatal Vitamin (1x per day)

Posted 10/9/2007 3:08 PM (GMT -6)
Soy does not agree w/ me either. It gives me a tummy ache. Interesting!
Tabitha (Tab)

100mg Azathioprine, 2 Fibercon, Colazal-6 a day, Acidopholis Pearls, Prilosec OTC

http://www.healingwell.com/donate
Co-Moderator UC Forum

Posted 10/9/2007 3:29 PM (GMT -6)
You have all been very helpful - it's always good to know the problems we share. Now I know it's not just my imagination. I'll make a few changes and see how things go.

I tried to update my profile - I hope it appears soon.

I have ulcerative pancolitis - left side mostly. I was diagnosed in 2000. My flares seem to be getting worse the past two years. Currently I am on Colazol (6-9 caps per day), Rowasa when needed. I just finished a 4 month round of Prednisone. I take Reuteri and assorted vitamins/minerals, along with fish oil. I try to be very cautious about my diet and exercise. But, you know how it goes...I start feeling a little better and let my guard down. As I'm sure all of you know - it's very frustrating not being in control. I'm one of those people that likes everything organized and in order - UC is very OUT OF ORDER!!
No matter how hard I try - sometimes I don't feel like I'll ever be in charge of my health again - not completely anyway - and that's hard to accept.

That's why I need all of you - it helps me so much to know there are others out there that understand.

Thanks for your thoughts.
Ulcerative Pancolitis diagnosed in 2000
Colazol (6-9 daily)
Off and On Prednisone
Rowasa When Needed
Most Recent Flare: May, 2007
Probiotics - Reutera
Assorted Vitamins/Minerals Along with Fish Oil
 

Posted 10/9/2007 3:34 PM (GMT -6)

I have trouble with soy as well - although I can tolerate tofu.  Go figure.  Also peanut butter also can disagree with me.  I can only have very small servings of it.

Love to all here

bob

Posted 10/10/2007 8:59 AM (GMT -6)
I've read that the majority of people with UC are sensitive to soy. For the most part, I'm one of those people too. Soy sauce in a stir fry is they only way I can take it. As far as peanut butter goes, I never noticed a problem with it. everyone's different though.
diagnosed Dec 2006 and flaring since with 2 hospital stays (one for 6mp allergic reaction)
 

Posted 10/10/2007 9:29 AM (GMT -6)
eating soy yogurt right now.....will see what this does, thanks Quincy. My bowels get some extra movement when I have my period, so I will watch for that.
Beth, 32
UC Diagnosed March 2000
Hydrocortisone enemas 1xday
Lialda 2.4mg 1xday since 8/24/07 ;prev. Asacol 4800mg day,Calcium and Vit D 500mg 3xday.
Minimal Change Disease (Kidney Disorder) Diagnosed Sept 2007
Prednisone 60mg 1xday, Simvastatin 20mg 1xday, Diovan 80mg 1xday. Fosomax 70mg 1xweek. MCD may be from hypersensitivty to 5ASA drugs.

Posted 10/10/2007 1:05 PM (GMT -6)
smitharoo....would you mind explaining the "Rowasa when needed"....

Are you having symptoms at this time? Are you on the Rowasa?

q
*Heather*Status:mini flare June 23* 6asacol daily+ Salofalk (tapered every 3rd night)
~diagnosed January 1989 UC (proctosigmoiditis)
~5ASA: Asacol + Salofalk enemas (increase for flares tapered to maintenance)
~Bentylol (dicyclomine) 20mg as needed
~vitamins/minerals 
~Probiotic 2 (Natural Factors Protec) + 1 (Primadophilus Reuteri) at bedtime
~Natural Factors Multi Digestive Enzymes with supper
~Ranitidine,Pariet (reflux) Effexor XR 75mg;  Pulmicort/Airomir (asthma)
~URSO for PSC (or PBC) 500mg X 2 daily (LFTs back to NORMAL!!)
My doc's logic.. "TREAT (FROM)BOTH ENDS"  worth it !!!

Posted 10/10/2007 2:35 PM (GMT -6)
Hi Quincy,

I always have Rowasa on hand and if I have signs of a flare, I start using it. After I'm doing better, I will taper down to every other night, every third night, etc....and eventually stop using it. My doctor is OK with this plan, as long as I can stay healthy without it. I'm fortunate, in that the Colazal seems to be enough - most of the time. I know a lot of people use the Rowasa as a maintanence med. I had a flare this summer and have been on prednisone. I was taking 30 mg per day for about a month then started tapering by 2 1/2 mgs. per week. I just finished that last week. Right now, I'm doing great!

I noticed that you take your Reuteri at bedtime - do you feel that's the best time? I take mine in the morning. I just started using it a few months ago and think it's been a big help. According to the research I did, the Reuteri was one of the most highly recommended brands for UC patients.

By the way - I skipped the soy today and feel much better. I guess that's one of those things that I just don't tolerate. Good thing it's not my dark chocolate...I don't know what I'd do without my chocolate fix!!!

Have a great day.
Ulcerative Pancolitis diagnosed in 2000
Colazal (6-9 daily)
Off and On Prednisone
Rowasa When Needed
Most Recent Flare: May, 2007
Probiotics - Reuteri
 
 

Posted 10/10/2007 6:36 PM (GMT -6)
After reading these posts last night I went back to organic whole milk at the store this evening.  I tried the Silk Soy (unsweetened) for some time and have really had a lot of gas lately.  It may not be totally related to the soy but anything's worth a try.
 
Left-sided UC Diagnosed 2004
Iron Deficiency Anemia Diagnosed 2007
Indeterminate Dysplasia Biopsy Result 2006   
Colazal  -  3X3 daily 
Entocort - 3 daily
Nexium
Folic Acid 
Ferrous Sulfate - 325 mg X3 daily
Vitamin C - 500 mg 
Canasa - As Needed
 
 
 
 

Posted 10/11/2007 10:31 AM (GMT -6)

I have no trouble with soy products but I take a generous dose of probiotics daily.

In fact, I have only started soy products in the past year or so for symptoms, hot flashes primarily.  But since I started taking Lialda in August I take OTC tablets soy products at least 3-4 times a day for intense, horrible night sweats and hot flashes.  But, I'll put up with them for all the relief that Lialda has given me.

  • LINDA
         
Prescriptions: Lialda (on a study) asacol, hycosamine, protonix, synthroid, zyrtec, avalide, nasocort, Miacalcin spray and Trazadone for sleep.
OTCs:  Usana multivitamins and multiminerals, Usana Procosa, Usana Mega Antioxidants, Omega 3, Vit. E,  Healthy trinity probiotics, Calcium Citrate

Posted 10/11/2007 3:49 PM (GMT -6)
My current flare was brought on by soy protein powder made
in soy milk, I believe. I loved the taste of it, but had to throw
it out and forgo soy anymore.

I had a hysterectomy last October to try and control my UC
flares, or at least the pain, which has worked for the most part.
So it could be the estrogen mentioned in another post.
Posted 10/11/2007 4:13 PM (GMT -6)
I don't seem to have a problem with soy products. I'm vegetarian and eat lots of soy veggie burgers, veggie hot dogs, etc, and I like chocolate soy milk and soy ice cream. I have noticed that I almost always have to have a BM after drinking Silk chocolate soy milk, but that may be because of the chocolate in it.

Soy and peanut allergies are both common though.
23 years old
Diagnosed with UC March 2007
Current inflamation in the rectum
Asacol 4 tablets 3x/day
Rowasa (generic) - nightly
Nature's Way Primadophilus Reuteri 1/day; Chewable multivitamin; experimenting w/fiber supplements (Metamucil and Fiber Choice); Viactiv (Calcium and Vit. D) for Osteopenia; ground flaxseed

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